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Adult North Star Network (ANSN): Consensus Guideline For The Standard Of Care Of Adults With Duchenne Muscular Dystrophy
There are growing numbers of adults with Duchenne Muscular Dystrophy living well into their fourth decade. These patients have complex medical needs that to date have not been addressed in the International standards of care. We sought to create a consensus based standard of care through a series of...
Autores principales: | Quinlivan, R., Messer, B., Murphy, P., Astin, R., Mukherjee, R., Khan, J., Emmanuel, A., Wong, S.C., Kulshresha, R., Willis, T., Pattni, J., Willis, D., Morgan, A., Savvatis, K., Keen, R., Bourke, J., Marini Bettolo, C., Hewamadduma, C. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
IOS Press
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8673515/ https://www.ncbi.nlm.nih.gov/pubmed/34511509 http://dx.doi.org/10.3233/JND-200609 |
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