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Family Caregiver Needs and Preferences for Virtual Training to Manage Behavioral Symptoms of Dementia

STAR-Caregivers Virtual Training and Follow-up (STAR-VTF) is adapted from an evidence-based, in-person program that teaches family caregivers to manage behavioral and psychological symptoms of dementia (BPSD). The study objective was to understand the needs of family caregivers for improving BPSD ma...

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Autores principales: Ramirez, Maggie, Duran, Miriana, Pabiniak, Chester, Hansen, Kelly, Ralston, James, McCurry, Susan, Teri, Linda, Penfold, Robert
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8679549/
http://dx.doi.org/10.1093/geroni/igab046.007
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author Ramirez, Maggie
Duran, Miriana
Pabiniak, Chester
Hansen, Kelly
Ralston, James
McCurry, Susan
Teri, Linda
Penfold, Robert
author_facet Ramirez, Maggie
Duran, Miriana
Pabiniak, Chester
Hansen, Kelly
Ralston, James
McCurry, Susan
Teri, Linda
Penfold, Robert
author_sort Ramirez, Maggie
collection PubMed
description STAR-Caregivers Virtual Training and Follow-up (STAR-VTF) is adapted from an evidence-based, in-person program that teaches family caregivers to manage behavioral and psychological symptoms of dementia (BPSD). The study objective was to understand the needs of family caregivers for improving BPSD management and the extent to which caregivers perceived that STAR-VTF could address those needs. We conducted 15 semi-structured interviews with family caregivers of people with dementia. We showed caregivers prototypes of STAR-VTF online self-directed materials. We obtained caregiver feedback, focusing on needs and preferences and perceived barriers to using STAR-VTF. We used a hybrid approach of inductive and deductive coding and aggregated codes to develop themes. The idea of a virtual training program for learning to manage BPSD appealed to caregivers. They said healthcare providers did not provide adequate education in the early disease stages about the personality and behavior symptoms that can affect people with dementia. Caregivers found it unexpected and frustrating when the person with dementia began experiencing BPSD, symptoms they felt unprepared to manage. Accordingly, caregivers expressed a strong desire for the healthcare organization to offer programs such as STAR-VTF much sooner. Many were interested in the virtual aspect of the training due to the convenience of receiving help from home and the perception that help from a virtual program would be timelier than traditional service modalities. Given caregivers’ limited time, they suggested dividing the STAR-VTF content into chunks to review as time permitted. Caregivers reported a preference for having the same coach for the program duration.
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spelling pubmed-86795492021-12-17 Family Caregiver Needs and Preferences for Virtual Training to Manage Behavioral Symptoms of Dementia Ramirez, Maggie Duran, Miriana Pabiniak, Chester Hansen, Kelly Ralston, James McCurry, Susan Teri, Linda Penfold, Robert Innov Aging Abstracts STAR-Caregivers Virtual Training and Follow-up (STAR-VTF) is adapted from an evidence-based, in-person program that teaches family caregivers to manage behavioral and psychological symptoms of dementia (BPSD). The study objective was to understand the needs of family caregivers for improving BPSD management and the extent to which caregivers perceived that STAR-VTF could address those needs. We conducted 15 semi-structured interviews with family caregivers of people with dementia. We showed caregivers prototypes of STAR-VTF online self-directed materials. We obtained caregiver feedback, focusing on needs and preferences and perceived barriers to using STAR-VTF. We used a hybrid approach of inductive and deductive coding and aggregated codes to develop themes. The idea of a virtual training program for learning to manage BPSD appealed to caregivers. They said healthcare providers did not provide adequate education in the early disease stages about the personality and behavior symptoms that can affect people with dementia. Caregivers found it unexpected and frustrating when the person with dementia began experiencing BPSD, symptoms they felt unprepared to manage. Accordingly, caregivers expressed a strong desire for the healthcare organization to offer programs such as STAR-VTF much sooner. Many were interested in the virtual aspect of the training due to the convenience of receiving help from home and the perception that help from a virtual program would be timelier than traditional service modalities. Given caregivers’ limited time, they suggested dividing the STAR-VTF content into chunks to review as time permitted. Caregivers reported a preference for having the same coach for the program duration. Oxford University Press 2021-12-17 /pmc/articles/PMC8679549/ http://dx.doi.org/10.1093/geroni/igab046.007 Text en © The Author(s) 2021. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Ramirez, Maggie
Duran, Miriana
Pabiniak, Chester
Hansen, Kelly
Ralston, James
McCurry, Susan
Teri, Linda
Penfold, Robert
Family Caregiver Needs and Preferences for Virtual Training to Manage Behavioral Symptoms of Dementia
title Family Caregiver Needs and Preferences for Virtual Training to Manage Behavioral Symptoms of Dementia
title_full Family Caregiver Needs and Preferences for Virtual Training to Manage Behavioral Symptoms of Dementia
title_fullStr Family Caregiver Needs and Preferences for Virtual Training to Manage Behavioral Symptoms of Dementia
title_full_unstemmed Family Caregiver Needs and Preferences for Virtual Training to Manage Behavioral Symptoms of Dementia
title_short Family Caregiver Needs and Preferences for Virtual Training to Manage Behavioral Symptoms of Dementia
title_sort family caregiver needs and preferences for virtual training to manage behavioral symptoms of dementia
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8679549/
http://dx.doi.org/10.1093/geroni/igab046.007
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