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Adapting the ADS Plus Program and Study for a Spanish Speaking Population

While Hispanic/Latinos are at increased risk for Alzheimer’s Disease, they are often cited as a “difficult-to-reach population” to engage in community-based research or clinical trials. One reason may be that many community-based supportive interventions for dementia caregivers are not adapted for S...

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Autores principales: Johnson, Elma, Marx, Katherine, Nkimbeng, Manka, Gaugler, Joseph, Gitlin, Laura, Parker, Lauren
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8680126/
http://dx.doi.org/10.1093/geroni/igab046.1870
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author Johnson, Elma
Marx, Katherine
Nkimbeng, Manka
Gaugler, Joseph
Gitlin, Laura
Parker, Lauren
author_facet Johnson, Elma
Marx, Katherine
Nkimbeng, Manka
Gaugler, Joseph
Gitlin, Laura
Parker, Lauren
author_sort Johnson, Elma
collection PubMed
description While Hispanic/Latinos are at increased risk for Alzheimer’s Disease, they are often cited as a “difficult-to-reach population” to engage in community-based research or clinical trials. One reason may be that many community-based supportive interventions for dementia caregivers are not adapted for Spanish-speaking populations. The purpose of this presentation is to describe the process of adapting the Adult Day Services Plus (ADS Plus) program for this population. In addition to translating ADS Plus into Spanish, staff, familiar with the program from four sites, which serve a predominantly Hispanic population, participated in a set of three focus groups that reviewed recruitment and intervention materials. Emerging themes included, Hispanic caregivers do not refer to themselves as caregivers but as the familial relationship (e.g. daughter, son, wife), and Hispanics often view research as a waste of resources. Future studies should consider these cultural elements towards caregiving in developing programs for Spanish-speaking dementia caregivers.
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spelling pubmed-86801262021-12-17 Adapting the ADS Plus Program and Study for a Spanish Speaking Population Johnson, Elma Marx, Katherine Nkimbeng, Manka Gaugler, Joseph Gitlin, Laura Parker, Lauren Innov Aging Abstracts While Hispanic/Latinos are at increased risk for Alzheimer’s Disease, they are often cited as a “difficult-to-reach population” to engage in community-based research or clinical trials. One reason may be that many community-based supportive interventions for dementia caregivers are not adapted for Spanish-speaking populations. The purpose of this presentation is to describe the process of adapting the Adult Day Services Plus (ADS Plus) program for this population. In addition to translating ADS Plus into Spanish, staff, familiar with the program from four sites, which serve a predominantly Hispanic population, participated in a set of three focus groups that reviewed recruitment and intervention materials. Emerging themes included, Hispanic caregivers do not refer to themselves as caregivers but as the familial relationship (e.g. daughter, son, wife), and Hispanics often view research as a waste of resources. Future studies should consider these cultural elements towards caregiving in developing programs for Spanish-speaking dementia caregivers. Oxford University Press 2021-12-17 /pmc/articles/PMC8680126/ http://dx.doi.org/10.1093/geroni/igab046.1870 Text en © The Author(s) 2021. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Johnson, Elma
Marx, Katherine
Nkimbeng, Manka
Gaugler, Joseph
Gitlin, Laura
Parker, Lauren
Adapting the ADS Plus Program and Study for a Spanish Speaking Population
title Adapting the ADS Plus Program and Study for a Spanish Speaking Population
title_full Adapting the ADS Plus Program and Study for a Spanish Speaking Population
title_fullStr Adapting the ADS Plus Program and Study for a Spanish Speaking Population
title_full_unstemmed Adapting the ADS Plus Program and Study for a Spanish Speaking Population
title_short Adapting the ADS Plus Program and Study for a Spanish Speaking Population
title_sort adapting the ads plus program and study for a spanish speaking population
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8680126/
http://dx.doi.org/10.1093/geroni/igab046.1870
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