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Recruiting and Conducting Online Dyadic Semi-Structured Interviews With LGBTQ+ Couples Facing Advanced Cancer

In this study, LGBTQ+ adult couples facing advanced cancer were recruited online. Eligible couples were sent a direct link to electronic consent and surveys in REDCap®. Participants were then invited to complete a 45-minute dyadic semi-structured interview regarding their experience of coping with c...

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Autores principales: Bybee, Sara, Cloyes, Kristin, Ellington, Lee, Baucom, Brian, Supiano, Katherine, Mooney, Kathi
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8681080/
http://dx.doi.org/10.1093/geroni/igab046.2243
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author Bybee, Sara
Cloyes, Kristin
Ellington, Lee
Baucom, Brian
Supiano, Katherine
Mooney, Kathi
author_facet Bybee, Sara
Cloyes, Kristin
Ellington, Lee
Baucom, Brian
Supiano, Katherine
Mooney, Kathi
author_sort Bybee, Sara
collection PubMed
description In this study, LGBTQ+ adult couples facing advanced cancer were recruited online. Eligible couples were sent a direct link to electronic consent and surveys in REDCap®. Participants were then invited to complete a 45-minute dyadic semi-structured interview regarding their experience of coping with cancer as a couple. This study faced difficulties in recruiting LGBTQ+ couples, and also faced the challenge of identifying and managing online responses from individuals misrepresenting themselves, and from automated accounts or “bots”. LGBTQ+ aging scholars must acknowledge how conducting research remotely with LGBTQ+ adults may necessitate changes in study design, such as changes to recruitment and more comprehensive eligibility screening designed to prevent and detect the collection of untrustworthy data. Ultimately, protecting the integrity of participant data in online research supports research accessibility and inclusion for LGBTQ+ older adults, and is the first step in conducting research that promotes health equity.
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spelling pubmed-86810802021-12-17 Recruiting and Conducting Online Dyadic Semi-Structured Interviews With LGBTQ+ Couples Facing Advanced Cancer Bybee, Sara Cloyes, Kristin Ellington, Lee Baucom, Brian Supiano, Katherine Mooney, Kathi Innov Aging Abstracts In this study, LGBTQ+ adult couples facing advanced cancer were recruited online. Eligible couples were sent a direct link to electronic consent and surveys in REDCap®. Participants were then invited to complete a 45-minute dyadic semi-structured interview regarding their experience of coping with cancer as a couple. This study faced difficulties in recruiting LGBTQ+ couples, and also faced the challenge of identifying and managing online responses from individuals misrepresenting themselves, and from automated accounts or “bots”. LGBTQ+ aging scholars must acknowledge how conducting research remotely with LGBTQ+ adults may necessitate changes in study design, such as changes to recruitment and more comprehensive eligibility screening designed to prevent and detect the collection of untrustworthy data. Ultimately, protecting the integrity of participant data in online research supports research accessibility and inclusion for LGBTQ+ older adults, and is the first step in conducting research that promotes health equity. Oxford University Press 2021-12-17 /pmc/articles/PMC8681080/ http://dx.doi.org/10.1093/geroni/igab046.2243 Text en © The Author(s) 2021. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Bybee, Sara
Cloyes, Kristin
Ellington, Lee
Baucom, Brian
Supiano, Katherine
Mooney, Kathi
Recruiting and Conducting Online Dyadic Semi-Structured Interviews With LGBTQ+ Couples Facing Advanced Cancer
title Recruiting and Conducting Online Dyadic Semi-Structured Interviews With LGBTQ+ Couples Facing Advanced Cancer
title_full Recruiting and Conducting Online Dyadic Semi-Structured Interviews With LGBTQ+ Couples Facing Advanced Cancer
title_fullStr Recruiting and Conducting Online Dyadic Semi-Structured Interviews With LGBTQ+ Couples Facing Advanced Cancer
title_full_unstemmed Recruiting and Conducting Online Dyadic Semi-Structured Interviews With LGBTQ+ Couples Facing Advanced Cancer
title_short Recruiting and Conducting Online Dyadic Semi-Structured Interviews With LGBTQ+ Couples Facing Advanced Cancer
title_sort recruiting and conducting online dyadic semi-structured interviews with lgbtq+ couples facing advanced cancer
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8681080/
http://dx.doi.org/10.1093/geroni/igab046.2243
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