Cargando…

A Relationship-Oriented Model of Research Participation: The Brain Health Community Registry

Historically excluded and minoritized populations are significantly under-included in health studies of Alzheimer’s disease and related dementias (ADRD) despite bearing a disproportionate burden of disease—evidenced by higher incidence, prevalence, and poorer health outcomes. Meaningful progress tow...

Descripción completa

Detalles Bibliográficos
Autores principales:	Bykovskyi, Andrea Gilmore, Fuhr, Haley, Mullen, Shannon, Block, Laura, Benson, Clark, Harris, Danielle, Cotton, Quinton, Kendall, Jessica
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Oxford University Press 2021
Materias:	Abstracts
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8681572/ http://dx.doi.org/10.1093/geroni/igab046.2376

Ejemplares similares

ENGAGING A COMMUNITY ADVISORY BOARD TO VALIDATE A CULTURALLY TAILORED INTERVENTION MODEL
por: Cotton, Quinton, et al.
Publicado: (2022)

Examining How African American Family Dementia Caregivers Conceptualize and Manage Crisis Events
por: Cotton, Quinton, et al.
Publicado: (2020)

Diverse perspectives on hospitalisation events among people with dementia: protocol for a multisite qualitative study
por: Gilmore-Bykovskyi, Andrea, et al.
Publicado: (2021)

METHODOLOGICAL STRATEGIES AND CHALLENGES FOR EVALUATING PARTICIPANT VIEWS ON DEMENTIA RESEARCH RECRUITMENT
por: Block, Laura, et al.
Publicado: (2019)

Ethical and Methodological Considerations Interviewing Dementia Caregivers
por: Cotton, Quinton, et al.
Publicado: (2021)

Initial Derivation of Positive Dementia-Related Observational Measures: A Descriptive Ethnography
por: Staehler, Maya, et al.
Publicado: (2020)

Design and Preliminary Evaluation of a Community-Based Brain Health Promotion and Wellness Program
por: Block, Laura, et al.
Publicado: (2020)

Characterizing Episodes of Lucidity in Dementia: Observational and Applied Computational Linguistics Approaches
por: Bykovskyi, Andrea Gilmore, et al.
Publicado: (2021)

Engaging Dementia Caregivers in Under-Resourced Areas to Examine Disparities in Post-Acute Care Quality and Access
por: Gilmore-Bykovskyi, Andrea, et al.
Publicado: (2020)

Engaging Underrepresented Caregiving Communities in Dementia Research
por: Gilmore-Bykovskyi, Andrea, et al.
Publicado: (2020)

“There’s not much we can do…” researcher-level barriers to the inclusion of underrepresented participants in translational research
por: Passmore, Susan Racine, et al.
Publicado: (2021)

THE ROLE OF SUPPORT IN THE LIVED EXPERIENCE OF DEMENTIA CAREGIVERS: A SYSTEMATIC REVIEW AND THEMATIC SYNTHESIS
por: Seyyedmirza, Paria, et al.
Publicado: (2022)

Gender Differences in 30-Day Re-Hospitalization Among Medicare Beneficiaries With Alzheimer’s and Dementia
por: Gilmore-Bykovskyi, Andrea
Publicado: (2020)

Terrie Fox Wetle Award (2021): Advancing multidisciplinary health services science: Developments in a Dementia-Focused Program of Research
por: Bykovskyi, Andrea Gilmore
Publicado: (2021)

ENGAGED RESEARCH: HUMILITY, LISTENING, BETTER QUESTIONS, BETTER ANSWERS
por: Gilmore-Bykovskyi, Andrea
Publicado: (2022)

LUCIDITY IN DEMENTIA: EMERGING CONCEPTS AND DATA
por: Gilmore-Bykovskyi, Andrea, et al.
Publicado: (2022)

Private provider participation in statewide immunization registries
por: Clark, Sarah J, et al.
Publicado: (2006)

The Urgency of Justice in Research: Beyond COVID-19
por: Gilmore-Bykovskyi, Andrea, et al.
Publicado: (2021)

Relationship of Weight-Related Eating Behaviors and Weight Loss of Participants Enrolled in a Proprietary Weight Loss Program
por: Block, Megan, et al.
Publicado: (2020)

Interactive and Participatory Audit and Feedback (IPAF): theory-based development and multi-site implementation outcomes with specialty clinic staff
por: Ramly, Edmond, et al.
Publicado: (2021)

APPROACHES TO INVESTIGATING LUCIDITY IN ADRD: A PRELIMINARY RESEARCH FRAMEWORK TO GUIDE OPERATIONAL HARMONIZATION
por: Gilmore-Bykovskyi, Andrea, et al.
Publicado: (2022)

Orientation relationships, orientational variants and the embedding approach
por: Arnold, Richard, et al.
Publicado: (2023)

Dementia in People with a Turkish Migration Background: Experiences and Utilization of Healthcare Services
por: Monsees, Jessica, et al.
Publicado: (2020)

Recruitment and retention of underrepresented populations in Alzheimer's disease research: A systematic review
por: Gilmore-Bykovskyi, Andrea L., et al.
Publicado: (2019)

State relationship orientation and helping behaviors: the influence of hunger and trait relationship orientations
por: Li, Tianyuan, et al.
Publicado: (2022)

Cross-sectional survey of parental barriers to participation in pediatric participant research registries
por: Slotkowski, Rebecca A., et al.
Publicado: (2022)

Toward harmonization of strategies for investigating lucidity in AD/ADRD: A preliminary research framework
por: Gilmore‐Bykovskyi, Andrea, et al.
Publicado: (2022)

Participation by conflict-affected and forcibly displaced communities in humanitarian healthcare responses: A systematic review
por: Rass, Ella, et al.
Publicado: (2020)

Hospital discharge documentation of a designated clinician for follow-up care and 30-day outcomes in hip fracture and stroke patients discharged to sub-acute care
por: Gilmore-Bykovskyi, Andrea L., et al.
Publicado: (2018)

Human pluripotent stem cell registry: Operations, role and current directions
por: Kurtz, Andreas, et al.
Publicado: (2022)

A Link Between Maternal Thyroid Hormone and Sexual Orientation?
por: Mullen, Jeffrey
Publicado: (2016)

Human ASPM participates in spindle organisation, spindle orientation and cytokinesis
por: Higgins, Julie, et al.
Publicado: (2010)

Orientation tuning in human colour vision at detection threshold
por: Gheiratmand, Mina, et al.
Publicado: (2014)

Community Oriented Primary Care
por: Govender, Srini
Publicado: (2016)

Diagnostic Validation for Participants in the Washington State Parkinson Disease Registry
por: Kim, Hojoong M., et al.
Publicado: (2018)

Sex Differences Among Participants in the Latin American Stroke Registry
por: Arauz, Antonio, et al.
Publicado: (2020)

Abstract: The Patient Registry and Outcomes for Breast Implants and Anaplastic Large Cell Lymphoma Etiology and Epidemiology (PROFILE) Registry: Results from a National Registry
por: McCarthy, Colleen M., et al.
Publicado: (2017)

The relationship between physical fitness and community participation in people with spinal cord injury
por: van der Westhuizen, Linda, et al.
Publicado: (2017)

Care Partner Inclusion of People Hospitalized With Alzheimer Disease and Related Dementias: Protocol for a Mixed Methods Systems Engineering Approach to Designing a Health Care System Toolkit
por: Fields, Beth, et al.
Publicado: (2023)

Do people with a different goal-orientation or specific focus make different decisions about colorectal cancer-screening participation?
por: Douma, Linda N., et al.
Publicado: (2019)

Cannot write session to /tmp/vufind_sessions/sess_43u95p80lun3e5n9foj6nk7tuq