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Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial

Recruiting persons living with dementia (PLWD) and their caregivers (dyads) into research is challenging and costly. The purpose of this study was to better understand factors that influence dyads decisions to enroll in a clinical trial. We used Ajzen’s Theory of Planned Behavior (TPB) to develop a...

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Autores principales: Sefcik, Justine, Petrovsky, Darina, Brewster, Glenna, Li, Junxin, Gooneratne, Nalaka, Hodgson, Nancy, McPhillips, Miranda
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8682401/
http://dx.doi.org/10.1093/geroni/igab046.807
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author Sefcik, Justine
Petrovsky, Darina
Brewster, Glenna
Li, Junxin
Gooneratne, Nalaka
Hodgson, Nancy
McPhillips, Miranda
author_facet Sefcik, Justine
Petrovsky, Darina
Brewster, Glenna
Li, Junxin
Gooneratne, Nalaka
Hodgson, Nancy
McPhillips, Miranda
author_sort Sefcik, Justine
collection PubMed
description Recruiting persons living with dementia (PLWD) and their caregivers (dyads) into research is challenging and costly. The purpose of this study was to better understand factors that influence dyads decisions to enroll in a clinical trial. We used Ajzen’s Theory of Planned Behavior (TPB) to develop a qualitative interview guide and analyze the data with a directed content analysis. We conducted semi-structured telephone interviews with 12 PLWD and 9 caregivers who all enrolled in one clinical trial. Aligning with the TPB we found the following positively influenced enrollment: 1) wanting to learn, in-person meetings with knowledgeable staff, and the money always helps (attitudes toward joining); 2) to support another person (perceived norm); and 3) easy to participate (perceived behavioral control). Flexible scheduling and the study taking place in the home was comfortable and convenient for participants. Findings can inform future recruitment efforts and research studies.
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spelling pubmed-86824012021-12-17 Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial Sefcik, Justine Petrovsky, Darina Brewster, Glenna Li, Junxin Gooneratne, Nalaka Hodgson, Nancy McPhillips, Miranda Innov Aging Abstracts Recruiting persons living with dementia (PLWD) and their caregivers (dyads) into research is challenging and costly. The purpose of this study was to better understand factors that influence dyads decisions to enroll in a clinical trial. We used Ajzen’s Theory of Planned Behavior (TPB) to develop a qualitative interview guide and analyze the data with a directed content analysis. We conducted semi-structured telephone interviews with 12 PLWD and 9 caregivers who all enrolled in one clinical trial. Aligning with the TPB we found the following positively influenced enrollment: 1) wanting to learn, in-person meetings with knowledgeable staff, and the money always helps (attitudes toward joining); 2) to support another person (perceived norm); and 3) easy to participate (perceived behavioral control). Flexible scheduling and the study taking place in the home was comfortable and convenient for participants. Findings can inform future recruitment efforts and research studies. Oxford University Press 2021-12-17 /pmc/articles/PMC8682401/ http://dx.doi.org/10.1093/geroni/igab046.807 Text en © The Author(s) 2021. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Abstracts
Sefcik, Justine
Petrovsky, Darina
Brewster, Glenna
Li, Junxin
Gooneratne, Nalaka
Hodgson, Nancy
McPhillips, Miranda
Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial
title Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial
title_full Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial
title_fullStr Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial
title_full_unstemmed Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial
title_short Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial
title_sort dyads' perceptions: recruiting persons living with dementia and caregivers in a clinical trial
topic Abstracts
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8682401/
http://dx.doi.org/10.1093/geroni/igab046.807
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