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Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial
Recruiting persons living with dementia (PLWD) and their caregivers (dyads) into research is challenging and costly. The purpose of this study was to better understand factors that influence dyads decisions to enroll in a clinical trial. We used Ajzen’s Theory of Planned Behavior (TPB) to develop a...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8682401/ http://dx.doi.org/10.1093/geroni/igab046.807 |
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author | Sefcik, Justine Petrovsky, Darina Brewster, Glenna Li, Junxin Gooneratne, Nalaka Hodgson, Nancy McPhillips, Miranda |
author_facet | Sefcik, Justine Petrovsky, Darina Brewster, Glenna Li, Junxin Gooneratne, Nalaka Hodgson, Nancy McPhillips, Miranda |
author_sort | Sefcik, Justine |
collection | PubMed |
description | Recruiting persons living with dementia (PLWD) and their caregivers (dyads) into research is challenging and costly. The purpose of this study was to better understand factors that influence dyads decisions to enroll in a clinical trial. We used Ajzen’s Theory of Planned Behavior (TPB) to develop a qualitative interview guide and analyze the data with a directed content analysis. We conducted semi-structured telephone interviews with 12 PLWD and 9 caregivers who all enrolled in one clinical trial. Aligning with the TPB we found the following positively influenced enrollment: 1) wanting to learn, in-person meetings with knowledgeable staff, and the money always helps (attitudes toward joining); 2) to support another person (perceived norm); and 3) easy to participate (perceived behavioral control). Flexible scheduling and the study taking place in the home was comfortable and convenient for participants. Findings can inform future recruitment efforts and research studies. |
format | Online Article Text |
id | pubmed-8682401 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | Oxford University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-86824012021-12-17 Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial Sefcik, Justine Petrovsky, Darina Brewster, Glenna Li, Junxin Gooneratne, Nalaka Hodgson, Nancy McPhillips, Miranda Innov Aging Abstracts Recruiting persons living with dementia (PLWD) and their caregivers (dyads) into research is challenging and costly. The purpose of this study was to better understand factors that influence dyads decisions to enroll in a clinical trial. We used Ajzen’s Theory of Planned Behavior (TPB) to develop a qualitative interview guide and analyze the data with a directed content analysis. We conducted semi-structured telephone interviews with 12 PLWD and 9 caregivers who all enrolled in one clinical trial. Aligning with the TPB we found the following positively influenced enrollment: 1) wanting to learn, in-person meetings with knowledgeable staff, and the money always helps (attitudes toward joining); 2) to support another person (perceived norm); and 3) easy to participate (perceived behavioral control). Flexible scheduling and the study taking place in the home was comfortable and convenient for participants. Findings can inform future recruitment efforts and research studies. Oxford University Press 2021-12-17 /pmc/articles/PMC8682401/ http://dx.doi.org/10.1093/geroni/igab046.807 Text en © The Author(s) 2021. Published by Oxford University Press on behalf of The Gerontological Society of America. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Abstracts Sefcik, Justine Petrovsky, Darina Brewster, Glenna Li, Junxin Gooneratne, Nalaka Hodgson, Nancy McPhillips, Miranda Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial |
title | Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial |
title_full | Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial |
title_fullStr | Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial |
title_full_unstemmed | Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial |
title_short | Dyads' Perceptions: Recruiting Persons Living With Dementia and Caregivers in a Clinical Trial |
title_sort | dyads' perceptions: recruiting persons living with dementia and caregivers in a clinical trial |
topic | Abstracts |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8682401/ http://dx.doi.org/10.1093/geroni/igab046.807 |
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