National Rare Diseases Registry System (NRDRS): China’s first nation-wide rare diseases demographic analyses

BACKGROUND: China has made tremendous progresses in serving the needs of its people living with rare diseases in the past decade, especially over the last 5 years. The Chinese government’s systematic approach included a series of coordinated initiatives, amongst these are: forming the Rare Disease E...

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Detalles Bibliográficos
Autores principales: Guo, Jian, Liu, Peng, Chen, Limeng, Lv, Haohan, Li, Jie, Yu, Weichao, Xu, Kaifeng, Zhu, Yicheng, Wu, Zhihong, Tian, Zhuang, Jin, Ye, Yang, Rachel, Gu, Weihong, Zhang, Shuyang
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8684272/
https://www.ncbi.nlm.nih.gov/pubmed/34922584
http://dx.doi.org/10.1186/s13023-021-02130-7

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