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Remote activity monitoring for family caregivers of persons living with dementia: a mixed methods, randomized controlled evaluation

BACKGROUND: The goal of the present study was to determine whether a remote activity monitoring (RAM) system benefited caregivers who aided relatives with Alzheimer’s disease or related dementias (ADRD) living at home. We hypothesized that over 18 months, families randomly assigned to receive RAM te...

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Autores principales: Gaugler, Joseph E., Zmora, Rachel, Mitchell, Lauren L., Finlay, Jessica, Rosebush, Christina E., Nkimbeng, Manka, Baker, Zachary G., Albers, Elizabeth A., Peterson, Colleen M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8684277/
https://www.ncbi.nlm.nih.gov/pubmed/34922475
http://dx.doi.org/10.1186/s12877-021-02634-8
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author Gaugler, Joseph E.
Zmora, Rachel
Mitchell, Lauren L.
Finlay, Jessica
Rosebush, Christina E.
Nkimbeng, Manka
Baker, Zachary G.
Albers, Elizabeth A.
Peterson, Colleen M.
author_facet Gaugler, Joseph E.
Zmora, Rachel
Mitchell, Lauren L.
Finlay, Jessica
Rosebush, Christina E.
Nkimbeng, Manka
Baker, Zachary G.
Albers, Elizabeth A.
Peterson, Colleen M.
author_sort Gaugler, Joseph E.
collection PubMed
description BACKGROUND: The goal of the present study was to determine whether a remote activity monitoring (RAM) system benefited caregivers who aided relatives with Alzheimer’s disease or related dementias (ADRD) living at home. We hypothesized that over 18 months, families randomly assigned to receive RAM technology in the home of the person with ADRD would experience statistically significant (p < .05): 1) improvements in caregiver self-efficacy and sense of competence when managing their relative’s dementia; and 2) reductions in caregiver distress (e.g., burden, role captivity, and depression). METHODS: An embedded mixed methods design was utilized, where 179 dementia caregivers were randomly assigned to receive RAM or not. Caregivers were surveyed bi-annually over an 18-month period to collect quantitative and qualitative data on RAM’s effects. Semi-structured interviews with 30 caregivers were completed following the 18-month data collection period to explore more in-depth how and why RAM was perceived as helpful or not. RESULTS: Growth curve models showed no direct or moderation effect of RAM on dementia caregiver outcomes. The qualitative data revealed a complex utilization process of RAM influenced by the care environment/context as well as the temporal progression of ADRD and the caregiving trajectory. CONCLUSIONS: The findings suggest the need for developing more effective mechanisms to match appropriate technologies with the heterogeneous needs and care contexts of people living with ADRD and their caregivers. A triadic approach that incorporates professional care management alongside passive monitoring systems such as RAM may also enhance potential benefits. TRIAL REGISTRATION: ClinicalTrials.govNCT03665909, retrospectively registered on 11 Sept 2018. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12877-021-02634-8.
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spelling pubmed-86842772021-12-20 Remote activity monitoring for family caregivers of persons living with dementia: a mixed methods, randomized controlled evaluation Gaugler, Joseph E. Zmora, Rachel Mitchell, Lauren L. Finlay, Jessica Rosebush, Christina E. Nkimbeng, Manka Baker, Zachary G. Albers, Elizabeth A. Peterson, Colleen M. BMC Geriatr Research BACKGROUND: The goal of the present study was to determine whether a remote activity monitoring (RAM) system benefited caregivers who aided relatives with Alzheimer’s disease or related dementias (ADRD) living at home. We hypothesized that over 18 months, families randomly assigned to receive RAM technology in the home of the person with ADRD would experience statistically significant (p < .05): 1) improvements in caregiver self-efficacy and sense of competence when managing their relative’s dementia; and 2) reductions in caregiver distress (e.g., burden, role captivity, and depression). METHODS: An embedded mixed methods design was utilized, where 179 dementia caregivers were randomly assigned to receive RAM or not. Caregivers were surveyed bi-annually over an 18-month period to collect quantitative and qualitative data on RAM’s effects. Semi-structured interviews with 30 caregivers were completed following the 18-month data collection period to explore more in-depth how and why RAM was perceived as helpful or not. RESULTS: Growth curve models showed no direct or moderation effect of RAM on dementia caregiver outcomes. The qualitative data revealed a complex utilization process of RAM influenced by the care environment/context as well as the temporal progression of ADRD and the caregiving trajectory. CONCLUSIONS: The findings suggest the need for developing more effective mechanisms to match appropriate technologies with the heterogeneous needs and care contexts of people living with ADRD and their caregivers. A triadic approach that incorporates professional care management alongside passive monitoring systems such as RAM may also enhance potential benefits. TRIAL REGISTRATION: ClinicalTrials.govNCT03665909, retrospectively registered on 11 Sept 2018. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12877-021-02634-8. BioMed Central 2021-12-18 /pmc/articles/PMC8684277/ /pubmed/34922475 http://dx.doi.org/10.1186/s12877-021-02634-8 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Gaugler, Joseph E.
Zmora, Rachel
Mitchell, Lauren L.
Finlay, Jessica
Rosebush, Christina E.
Nkimbeng, Manka
Baker, Zachary G.
Albers, Elizabeth A.
Peterson, Colleen M.
Remote activity monitoring for family caregivers of persons living with dementia: a mixed methods, randomized controlled evaluation
title Remote activity monitoring for family caregivers of persons living with dementia: a mixed methods, randomized controlled evaluation
title_full Remote activity monitoring for family caregivers of persons living with dementia: a mixed methods, randomized controlled evaluation
title_fullStr Remote activity monitoring for family caregivers of persons living with dementia: a mixed methods, randomized controlled evaluation
title_full_unstemmed Remote activity monitoring for family caregivers of persons living with dementia: a mixed methods, randomized controlled evaluation
title_short Remote activity monitoring for family caregivers of persons living with dementia: a mixed methods, randomized controlled evaluation
title_sort remote activity monitoring for family caregivers of persons living with dementia: a mixed methods, randomized controlled evaluation
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8684277/
https://www.ncbi.nlm.nih.gov/pubmed/34922475
http://dx.doi.org/10.1186/s12877-021-02634-8
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