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mEDUrare: Supporting Integrated Care for Rare Diseases by Better Connecting Health and Education Through Policy

Rare diseases affect an estimated 6-10% of the Australian population, a prevalence similar to that seen in other regions worldwide. These multi-system conditions are often severely debilitating and affect multiple domains of a person’s life. A salient necessity for effective care provision thus, is...

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Detalles Bibliográficos
Autores principales: Saggu, Harleen, Jones, Caleb, Lewis, Amber, Baynam, Gareth
Formato: Online Artículo Texto
Lenguaje:English
Publicado: YJBM 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8686785/
https://www.ncbi.nlm.nih.gov/pubmed/34970108