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mEDUrare: Supporting Integrated Care for Rare Diseases by Better Connecting Health and Education Through Policy
Rare diseases affect an estimated 6-10% of the Australian population, a prevalence similar to that seen in other regions worldwide. These multi-system conditions are often severely debilitating and affect multiple domains of a person’s life. A salient necessity for effective care provision thus, is...
Autores principales: | Saggu, Harleen, Jones, Caleb, Lewis, Amber, Baynam, Gareth |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
YJBM
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8686785/ https://www.ncbi.nlm.nih.gov/pubmed/34970108 |
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