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ParkinSong Online: protocol for a telehealth feasibility study of therapeutic group singing for people with Parkinson’s disease

INTRODUCTION: Parkinson’s disease can be associated with speech deterioration and low communication confidence which in turn compromises social interaction. Therapeutic singing is an engaging method for combatting speech decline; however, face-to-face delivery can limit access to group singing. The...

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Autores principales: Tamplin, Jeanette, Morris, Meg E, Baker, Felicity A, Sousa, Tanara Vieira, Haines, Simon, Dunn, Stephen, Tull, Victoria, Vogel, Adam P
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8689189/
https://www.ncbi.nlm.nih.gov/pubmed/34930750
http://dx.doi.org/10.1136/bmjopen-2021-058953
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author Tamplin, Jeanette
Morris, Meg E
Baker, Felicity A
Sousa, Tanara Vieira
Haines, Simon
Dunn, Stephen
Tull, Victoria
Vogel, Adam P
author_facet Tamplin, Jeanette
Morris, Meg E
Baker, Felicity A
Sousa, Tanara Vieira
Haines, Simon
Dunn, Stephen
Tull, Victoria
Vogel, Adam P
author_sort Tamplin, Jeanette
collection PubMed
description INTRODUCTION: Parkinson’s disease can be associated with speech deterioration and low communication confidence which in turn compromises social interaction. Therapeutic singing is an engaging method for combatting speech decline; however, face-to-face delivery can limit access to group singing. The aim of this study is to test the feasibility and acceptability of an online mode of delivery for a Parkinson’s singing intervention (ParkinSong) as well as remote data collection procedures. METHODS AND ANALYSIS: This ParkinSong Online feasibility trial is a single-arm, pre–post study of online singing delivery and remote data collection for 30 people living with Parkinson’s. The primary outcome measure is feasibility: recruitment, retention, attendance, safety, intervention fidelity, acceptability and associated costs. Secondary outcomes are speech (loudness, intelligibility, quality, communication-related quality of life) and wellbeing (apathy, depression, anxiety, stress, health-related quality of life). This mode of delivery aims to increase the accessibility of singing interventions. ETHICS AND DISSEMINATION: Ethics approval was obtained from The University of Melbourne Human Research Ethics Committee (2021-14465-16053-3) and the trial has been prospectively registered. Results will be presented at national and international conferences, published in a peer-reviewed journal, and disseminated to the Parkinson’s community, researchers and policymakers. TRIAL REGISTRATION NUMBER: ACTRN12621000940875.
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spelling pubmed-86891892022-01-05 ParkinSong Online: protocol for a telehealth feasibility study of therapeutic group singing for people with Parkinson’s disease Tamplin, Jeanette Morris, Meg E Baker, Felicity A Sousa, Tanara Vieira Haines, Simon Dunn, Stephen Tull, Victoria Vogel, Adam P BMJ Open Neurology INTRODUCTION: Parkinson’s disease can be associated with speech deterioration and low communication confidence which in turn compromises social interaction. Therapeutic singing is an engaging method for combatting speech decline; however, face-to-face delivery can limit access to group singing. The aim of this study is to test the feasibility and acceptability of an online mode of delivery for a Parkinson’s singing intervention (ParkinSong) as well as remote data collection procedures. METHODS AND ANALYSIS: This ParkinSong Online feasibility trial is a single-arm, pre–post study of online singing delivery and remote data collection for 30 people living with Parkinson’s. The primary outcome measure is feasibility: recruitment, retention, attendance, safety, intervention fidelity, acceptability and associated costs. Secondary outcomes are speech (loudness, intelligibility, quality, communication-related quality of life) and wellbeing (apathy, depression, anxiety, stress, health-related quality of life). This mode of delivery aims to increase the accessibility of singing interventions. ETHICS AND DISSEMINATION: Ethics approval was obtained from The University of Melbourne Human Research Ethics Committee (2021-14465-16053-3) and the trial has been prospectively registered. Results will be presented at national and international conferences, published in a peer-reviewed journal, and disseminated to the Parkinson’s community, researchers and policymakers. TRIAL REGISTRATION NUMBER: ACTRN12621000940875. BMJ Publishing Group 2021-12-20 /pmc/articles/PMC8689189/ /pubmed/34930750 http://dx.doi.org/10.1136/bmjopen-2021-058953 Text en © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. https://creativecommons.org/licenses/by-nc/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/ (https://creativecommons.org/licenses/by-nc/4.0/) .
spellingShingle Neurology
Tamplin, Jeanette
Morris, Meg E
Baker, Felicity A
Sousa, Tanara Vieira
Haines, Simon
Dunn, Stephen
Tull, Victoria
Vogel, Adam P
ParkinSong Online: protocol for a telehealth feasibility study of therapeutic group singing for people with Parkinson’s disease
title ParkinSong Online: protocol for a telehealth feasibility study of therapeutic group singing for people with Parkinson’s disease
title_full ParkinSong Online: protocol for a telehealth feasibility study of therapeutic group singing for people with Parkinson’s disease
title_fullStr ParkinSong Online: protocol for a telehealth feasibility study of therapeutic group singing for people with Parkinson’s disease
title_full_unstemmed ParkinSong Online: protocol for a telehealth feasibility study of therapeutic group singing for people with Parkinson’s disease
title_short ParkinSong Online: protocol for a telehealth feasibility study of therapeutic group singing for people with Parkinson’s disease
title_sort parkinsong online: protocol for a telehealth feasibility study of therapeutic group singing for people with parkinson’s disease
topic Neurology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8689189/
https://www.ncbi.nlm.nih.gov/pubmed/34930750
http://dx.doi.org/10.1136/bmjopen-2021-058953
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