Recruitment of Patients With Amyotrophic Lateral Sclerosis for Clinical Trials and Epidemiological Studies: Descriptive Study of the National ALS Registry’s Research Notification Mechanism

BACKGROUND: Researchers face challenges in patient recruitment, especially for rare, fatal diseases such as amyotrophic lateral sclerosis (ALS). These challenges include obtaining sufficient statistical power as well as meeting eligibility requirements such as age, sex, and study proximity. Similarl...

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Detalles Bibliográficos
Autores principales: Mehta, Paul, Raymond, Jaime, Han, Moon Kwon, Larson, Theodore, Berry, James D, Paganoni, Sabrina, Mitsumoto, Hiroshi, Bedlack, Richard Stanley, Horton, D Kevin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Original Paper
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8693186/
https://www.ncbi.nlm.nih.gov/pubmed/34878988
http://dx.doi.org/10.2196/28021

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