Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study

The ENCALS survival prediction model offers patients with amyotrophic lateral sclerosis (ALS) the opportunity to receive a personalized prognosis of survival at the time of diagnosis. We explored experiences of patients with ALS, caregivers, and physicians with discussing personalized prognosis thro...

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Detalles Bibliográficos
Autores principales: van Eenennaam, Remko M., Koppenol, Loulou S., Kruithof, Willeke J., Kruitwagen-van Reenen, Esther T., Pieters, Sotice, van Es, Michael A., van den Berg, Leonard H., Visser-Meily, Johanna M. A., Beelen, Anita
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8699408/
https://www.ncbi.nlm.nih.gov/pubmed/34942899
http://dx.doi.org/10.3390/brainsci11121597

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8699408/
https://www.ncbi.nlm.nih.gov/pubmed/34942899
http://dx.doi.org/10.3390/brainsci11121597

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