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Standards of Nutritional Care for Patients with Cystic Fibrosis: A Methodological Primer and AGREE II Analysis of Guidelines
Although many Clinical Practice Guidelines (CPGs) have been published for the care of patients with Cystic Fibrosis (CF), including a variety of nutrition recommendations, the quality of these CPGs has never been evaluated. The aim of this study was to compare, review, and critically appraise CPGs f...
Autores principales: | , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8699992/ https://www.ncbi.nlm.nih.gov/pubmed/34943375 http://dx.doi.org/10.3390/children8121180 |
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author | Grammatikopoulou, Maria G. Vassilakou, Tonia Goulis, Dimitrios G. Theodoridis, Xenophon Nigdelis, Meletios P. Petalidou, Arianna Gkiouras, Konstantinos Poulimeneas, Dimitrios Alexatou, Olga Tsiroukidou, Kyriaki Marakis, Georgios Daniil, Zoe Bogdanos, Dimitrios P. |
author_facet | Grammatikopoulou, Maria G. Vassilakou, Tonia Goulis, Dimitrios G. Theodoridis, Xenophon Nigdelis, Meletios P. Petalidou, Arianna Gkiouras, Konstantinos Poulimeneas, Dimitrios Alexatou, Olga Tsiroukidou, Kyriaki Marakis, Georgios Daniil, Zoe Bogdanos, Dimitrios P. |
author_sort | Grammatikopoulou, Maria G. |
collection | PubMed |
description | Although many Clinical Practice Guidelines (CPGs) have been published for the care of patients with Cystic Fibrosis (CF), including a variety of nutrition recommendations, the quality of these CPGs has never been evaluated. The aim of this study was to compare, review, and critically appraise CPGs for the nutritional management of CF, throughout the lifespan. We searched PubMed, Guidelines International Network (GIN), ECRI Institute, and Guidelines Central for CPGs, with information on the nutritional management of CF. Retrieved CPGs were appraised by three independent reviewers, using the Appraisal of Guidelines, Research and Evaluation II (AGREE II) instrument and checklist. A total of 22 CPGs (seven solely nutrition oriented), by 14 different publishers, were retrieved. The Thoracic Society of Australia and New Zealand CPGs scored the highest overall quality (94.4%), while the Paediatric Gastroenterology Society/Dietitians Association of Australia CPGs had the lowest score (27.8%). Great variation in AGREE II domain-specific scores was observed in all CPGs, suggesting the existence of different strengths and weaknesses. Despite the availability of several CPGs, many appear outdated, lacking rigor, transparency, applicability, and efficiency, while incorporating bias. Considering that CPGs adherence is associated with better outcomes and the need for improving life expectancy in patients with CF, the development of CPGs of better quality is deemed necessary. |
format | Online Article Text |
id | pubmed-8699992 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-86999922021-12-24 Standards of Nutritional Care for Patients with Cystic Fibrosis: A Methodological Primer and AGREE II Analysis of Guidelines Grammatikopoulou, Maria G. Vassilakou, Tonia Goulis, Dimitrios G. Theodoridis, Xenophon Nigdelis, Meletios P. Petalidou, Arianna Gkiouras, Konstantinos Poulimeneas, Dimitrios Alexatou, Olga Tsiroukidou, Kyriaki Marakis, Georgios Daniil, Zoe Bogdanos, Dimitrios P. Children (Basel) Article Although many Clinical Practice Guidelines (CPGs) have been published for the care of patients with Cystic Fibrosis (CF), including a variety of nutrition recommendations, the quality of these CPGs has never been evaluated. The aim of this study was to compare, review, and critically appraise CPGs for the nutritional management of CF, throughout the lifespan. We searched PubMed, Guidelines International Network (GIN), ECRI Institute, and Guidelines Central for CPGs, with information on the nutritional management of CF. Retrieved CPGs were appraised by three independent reviewers, using the Appraisal of Guidelines, Research and Evaluation II (AGREE II) instrument and checklist. A total of 22 CPGs (seven solely nutrition oriented), by 14 different publishers, were retrieved. The Thoracic Society of Australia and New Zealand CPGs scored the highest overall quality (94.4%), while the Paediatric Gastroenterology Society/Dietitians Association of Australia CPGs had the lowest score (27.8%). Great variation in AGREE II domain-specific scores was observed in all CPGs, suggesting the existence of different strengths and weaknesses. Despite the availability of several CPGs, many appear outdated, lacking rigor, transparency, applicability, and efficiency, while incorporating bias. Considering that CPGs adherence is associated with better outcomes and the need for improving life expectancy in patients with CF, the development of CPGs of better quality is deemed necessary. MDPI 2021-12-14 /pmc/articles/PMC8699992/ /pubmed/34943375 http://dx.doi.org/10.3390/children8121180 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Grammatikopoulou, Maria G. Vassilakou, Tonia Goulis, Dimitrios G. Theodoridis, Xenophon Nigdelis, Meletios P. Petalidou, Arianna Gkiouras, Konstantinos Poulimeneas, Dimitrios Alexatou, Olga Tsiroukidou, Kyriaki Marakis, Georgios Daniil, Zoe Bogdanos, Dimitrios P. Standards of Nutritional Care for Patients with Cystic Fibrosis: A Methodological Primer and AGREE II Analysis of Guidelines |
title | Standards of Nutritional Care for Patients with Cystic Fibrosis: A Methodological Primer and AGREE II Analysis of Guidelines |
title_full | Standards of Nutritional Care for Patients with Cystic Fibrosis: A Methodological Primer and AGREE II Analysis of Guidelines |
title_fullStr | Standards of Nutritional Care for Patients with Cystic Fibrosis: A Methodological Primer and AGREE II Analysis of Guidelines |
title_full_unstemmed | Standards of Nutritional Care for Patients with Cystic Fibrosis: A Methodological Primer and AGREE II Analysis of Guidelines |
title_short | Standards of Nutritional Care for Patients with Cystic Fibrosis: A Methodological Primer and AGREE II Analysis of Guidelines |
title_sort | standards of nutritional care for patients with cystic fibrosis: a methodological primer and agree ii analysis of guidelines |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8699992/ https://www.ncbi.nlm.nih.gov/pubmed/34943375 http://dx.doi.org/10.3390/children8121180 |
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