Cargando…
Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment
Cancer survivorship care in Colombia is of increasing importance. International survivorship initiatives and studies show that continuing symptoms, psychological distress, and late effects impact the quality of life for survivors. Priorities for quality survivorship according to Colombian patients a...
Autores principales: | , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2021
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8701263/ https://www.ncbi.nlm.nih.gov/pubmed/34946381 http://dx.doi.org/10.3390/healthcare9121655 |
_version_ | 1784620957875306496 |
---|---|
author | Mendieta, Cindy V. Gómez-Neva, Maria Elizabeth Rivera-Amézquita, Laura Victoria de Vries, Esther Arévalo-Reyez, Martha Lucía Rodriguez-Ariza, Santiago Castro E, Carlos J. Faithfull, Sara |
author_facet | Mendieta, Cindy V. Gómez-Neva, Maria Elizabeth Rivera-Amézquita, Laura Victoria de Vries, Esther Arévalo-Reyez, Martha Lucía Rodriguez-Ariza, Santiago Castro E, Carlos J. Faithfull, Sara |
author_sort | Mendieta, Cindy V. |
collection | PubMed |
description | Cancer survivorship care in Colombia is of increasing importance. International survivorship initiatives and studies show that continuing symptoms, psychological distress, and late effects impact the quality of life for survivors. Priorities for quality survivorship according to Colombian patients and clinicians are unknown. We undertook a nominal consensus approach with 24 participants using virtual meeting technology to identify the priorities for cancer survivorship. We applied an iterative approach conducted over eight weeks with five workshops and one patient focus group followed by a priority setting survey. The consensus group established six main themes, which were subsequently evaluated by experts: (i) symptoms and secondary effects of cancer; (ii) care coordination to increase patient access and integration of cancer care; (iii) psychosocial support after cancer treatment; (iv) mapping information resources and available support services for long-term cancer care; (v) identifying socioeconomic and regional inequalities in cancer survival to improve care and outcomes; and (vi) health promotion and encouraging lifestyle change. The order of priorities differed between clinicians and patients: patients mentioned psychosocial support as the number one priority, and clinicians prioritized symptoms and surveillance for cancer recurrence. Developing survivorship care needs consideration of both views, including barriers such as access to services and socioeconomic disparities. |
format | Online Article Text |
id | pubmed-8701263 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-87012632021-12-24 Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment Mendieta, Cindy V. Gómez-Neva, Maria Elizabeth Rivera-Amézquita, Laura Victoria de Vries, Esther Arévalo-Reyez, Martha Lucía Rodriguez-Ariza, Santiago Castro E, Carlos J. Faithfull, Sara Healthcare (Basel) Article Cancer survivorship care in Colombia is of increasing importance. International survivorship initiatives and studies show that continuing symptoms, psychological distress, and late effects impact the quality of life for survivors. Priorities for quality survivorship according to Colombian patients and clinicians are unknown. We undertook a nominal consensus approach with 24 participants using virtual meeting technology to identify the priorities for cancer survivorship. We applied an iterative approach conducted over eight weeks with five workshops and one patient focus group followed by a priority setting survey. The consensus group established six main themes, which were subsequently evaluated by experts: (i) symptoms and secondary effects of cancer; (ii) care coordination to increase patient access and integration of cancer care; (iii) psychosocial support after cancer treatment; (iv) mapping information resources and available support services for long-term cancer care; (v) identifying socioeconomic and regional inequalities in cancer survival to improve care and outcomes; and (vi) health promotion and encouraging lifestyle change. The order of priorities differed between clinicians and patients: patients mentioned psychosocial support as the number one priority, and clinicians prioritized symptoms and surveillance for cancer recurrence. Developing survivorship care needs consideration of both views, including barriers such as access to services and socioeconomic disparities. MDPI 2021-11-29 /pmc/articles/PMC8701263/ /pubmed/34946381 http://dx.doi.org/10.3390/healthcare9121655 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Mendieta, Cindy V. Gómez-Neva, Maria Elizabeth Rivera-Amézquita, Laura Victoria de Vries, Esther Arévalo-Reyez, Martha Lucía Rodriguez-Ariza, Santiago Castro E, Carlos J. Faithfull, Sara Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment |
title | Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment |
title_full | Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment |
title_fullStr | Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment |
title_full_unstemmed | Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment |
title_short | Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment |
title_sort | cancer as a chronic illness in colombia: a normative consensus approach to improving healthcare services for those living with and beyond cancer and its treatment |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8701263/ https://www.ncbi.nlm.nih.gov/pubmed/34946381 http://dx.doi.org/10.3390/healthcare9121655 |
work_keys_str_mv | AT mendietacindyv cancerasachronicillnessincolombiaanormativeconsensusapproachtoimprovinghealthcareservicesforthoselivingwithandbeyondcanceranditstreatment AT gomeznevamariaelizabeth cancerasachronicillnessincolombiaanormativeconsensusapproachtoimprovinghealthcareservicesforthoselivingwithandbeyondcanceranditstreatment AT riveraamezquitalauravictoria cancerasachronicillnessincolombiaanormativeconsensusapproachtoimprovinghealthcareservicesforthoselivingwithandbeyondcanceranditstreatment AT devriesesther cancerasachronicillnessincolombiaanormativeconsensusapproachtoimprovinghealthcareservicesforthoselivingwithandbeyondcanceranditstreatment AT arevaloreyezmarthalucia cancerasachronicillnessincolombiaanormativeconsensusapproachtoimprovinghealthcareservicesforthoselivingwithandbeyondcanceranditstreatment AT rodriguezarizasantiago cancerasachronicillnessincolombiaanormativeconsensusapproachtoimprovinghealthcareservicesforthoselivingwithandbeyondcanceranditstreatment AT castroecarlosj cancerasachronicillnessincolombiaanormativeconsensusapproachtoimprovinghealthcareservicesforthoselivingwithandbeyondcanceranditstreatment AT faithfullsara cancerasachronicillnessincolombiaanormativeconsensusapproachtoimprovinghealthcareservicesforthoselivingwithandbeyondcanceranditstreatment |