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Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment

Cancer survivorship care in Colombia is of increasing importance. International survivorship initiatives and studies show that continuing symptoms, psychological distress, and late effects impact the quality of life for survivors. Priorities for quality survivorship according to Colombian patients a...

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Autores principales: Mendieta, Cindy V., Gómez-Neva, Maria Elizabeth, Rivera-Amézquita, Laura Victoria, de Vries, Esther, Arévalo-Reyez, Martha Lucía, Rodriguez-Ariza, Santiago, Castro E, Carlos J., Faithfull, Sara
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8701263/
https://www.ncbi.nlm.nih.gov/pubmed/34946381
http://dx.doi.org/10.3390/healthcare9121655
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author Mendieta, Cindy V.
Gómez-Neva, Maria Elizabeth
Rivera-Amézquita, Laura Victoria
de Vries, Esther
Arévalo-Reyez, Martha Lucía
Rodriguez-Ariza, Santiago
Castro E, Carlos J.
Faithfull, Sara
author_facet Mendieta, Cindy V.
Gómez-Neva, Maria Elizabeth
Rivera-Amézquita, Laura Victoria
de Vries, Esther
Arévalo-Reyez, Martha Lucía
Rodriguez-Ariza, Santiago
Castro E, Carlos J.
Faithfull, Sara
author_sort Mendieta, Cindy V.
collection PubMed
description Cancer survivorship care in Colombia is of increasing importance. International survivorship initiatives and studies show that continuing symptoms, psychological distress, and late effects impact the quality of life for survivors. Priorities for quality survivorship according to Colombian patients and clinicians are unknown. We undertook a nominal consensus approach with 24 participants using virtual meeting technology to identify the priorities for cancer survivorship. We applied an iterative approach conducted over eight weeks with five workshops and one patient focus group followed by a priority setting survey. The consensus group established six main themes, which were subsequently evaluated by experts: (i) symptoms and secondary effects of cancer; (ii) care coordination to increase patient access and integration of cancer care; (iii) psychosocial support after cancer treatment; (iv) mapping information resources and available support services for long-term cancer care; (v) identifying socioeconomic and regional inequalities in cancer survival to improve care and outcomes; and (vi) health promotion and encouraging lifestyle change. The order of priorities differed between clinicians and patients: patients mentioned psychosocial support as the number one priority, and clinicians prioritized symptoms and surveillance for cancer recurrence. Developing survivorship care needs consideration of both views, including barriers such as access to services and socioeconomic disparities.
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spelling pubmed-87012632021-12-24 Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment Mendieta, Cindy V. Gómez-Neva, Maria Elizabeth Rivera-Amézquita, Laura Victoria de Vries, Esther Arévalo-Reyez, Martha Lucía Rodriguez-Ariza, Santiago Castro E, Carlos J. Faithfull, Sara Healthcare (Basel) Article Cancer survivorship care in Colombia is of increasing importance. International survivorship initiatives and studies show that continuing symptoms, psychological distress, and late effects impact the quality of life for survivors. Priorities for quality survivorship according to Colombian patients and clinicians are unknown. We undertook a nominal consensus approach with 24 participants using virtual meeting technology to identify the priorities for cancer survivorship. We applied an iterative approach conducted over eight weeks with five workshops and one patient focus group followed by a priority setting survey. The consensus group established six main themes, which were subsequently evaluated by experts: (i) symptoms and secondary effects of cancer; (ii) care coordination to increase patient access and integration of cancer care; (iii) psychosocial support after cancer treatment; (iv) mapping information resources and available support services for long-term cancer care; (v) identifying socioeconomic and regional inequalities in cancer survival to improve care and outcomes; and (vi) health promotion and encouraging lifestyle change. The order of priorities differed between clinicians and patients: patients mentioned psychosocial support as the number one priority, and clinicians prioritized symptoms and surveillance for cancer recurrence. Developing survivorship care needs consideration of both views, including barriers such as access to services and socioeconomic disparities. MDPI 2021-11-29 /pmc/articles/PMC8701263/ /pubmed/34946381 http://dx.doi.org/10.3390/healthcare9121655 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Mendieta, Cindy V.
Gómez-Neva, Maria Elizabeth
Rivera-Amézquita, Laura Victoria
de Vries, Esther
Arévalo-Reyez, Martha Lucía
Rodriguez-Ariza, Santiago
Castro E, Carlos J.
Faithfull, Sara
Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment
title Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment
title_full Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment
title_fullStr Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment
title_full_unstemmed Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment
title_short Cancer as a Chronic Illness in Colombia: A Normative Consensus Approach to Improving Healthcare Services for those Living with and beyond Cancer and Its Treatment
title_sort cancer as a chronic illness in colombia: a normative consensus approach to improving healthcare services for those living with and beyond cancer and its treatment
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8701263/
https://www.ncbi.nlm.nih.gov/pubmed/34946381
http://dx.doi.org/10.3390/healthcare9121655
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