Cargando…

Assessing the Acceptability of a Co-Produced Long COVID Intervention in an Underserved Community in the UK

Background: The COVID-19 pandemic has disproportionately affected people from more deprived communities. The experience of Long COVID is similarly distributed but very few investigations have concentrated on the needs of this population. The aim of this project was to co-produce an acceptable interv...

Descripción completa

Detalles Bibliográficos
Autores principales: Fowler-Davis, Sally, Young, Rachel, Maden-Wilkinson, Tom, Hameed, Waqas, Dracas, Elizabeth, Hurrell, Eleanor, Bahl, Romila, Kilcourse, Elisabeth, Robinson, Rebecca, Copeland, Robert
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8701839/
https://www.ncbi.nlm.nih.gov/pubmed/34948798
http://dx.doi.org/10.3390/ijerph182413191
_version_ 1784621099997200384
author Fowler-Davis, Sally
Young, Rachel
Maden-Wilkinson, Tom
Hameed, Waqas
Dracas, Elizabeth
Hurrell, Eleanor
Bahl, Romila
Kilcourse, Elisabeth
Robinson, Rebecca
Copeland, Robert
author_facet Fowler-Davis, Sally
Young, Rachel
Maden-Wilkinson, Tom
Hameed, Waqas
Dracas, Elizabeth
Hurrell, Eleanor
Bahl, Romila
Kilcourse, Elisabeth
Robinson, Rebecca
Copeland, Robert
author_sort Fowler-Davis, Sally
collection PubMed
description Background: The COVID-19 pandemic has disproportionately affected people from more deprived communities. The experience of Long COVID is similarly distributed but very few investigations have concentrated on the needs of this population. The aim of this project was to co-produce an acceptable intervention for people with Long COVID living in communities recognised as more deprived. Methods: The intervention was based on a multi-disciplinary team using approaches from sport and exercise medicine and functional rehabilitation. The co-production process was undertaken with a stakeholder advisory group and patient public involvement representation. This study identified participants by postcode and the indices of multiple deprivation (IMD); recruitment and engagement were supported by an existing health and wellbeing service. A virtual ‘clinic’ was offered with a team of professional practitioners who met participants three times each; to directly consider their needs and offer structured advice. The acceptability of the intervention was based on the individual’s participation and their completion of the intervention. Results: Ten participants were recruited with eight completing the intervention. The partnership with an existing community health and wellbeing service was deemed to be an important way of reaching participants. Two men and six women ages ranging from 38 to 73 were involved and their needs were commonly associated with fatigue, anxiety and depression with overall de-conditioning. None reported serious hardship associated with the pandemic although most were in self-employment/part-time employment or were not working due to retirement or ill-health. Two older participants lived alone, and others were single parents and had considerable challenges associated with managing a household alongside their Long COVID difficulties. Conclusions: This paper presents the needs and perspectives of eight individuals involved in the process and discusses the needs and preferences of the group in relation to their support for self- managed recovery from Long COVID.
format Online
Article
Text
id pubmed-8701839
institution National Center for Biotechnology Information
language English
publishDate 2021
publisher MDPI
record_format MEDLINE/PubMed
spelling pubmed-87018392021-12-24 Assessing the Acceptability of a Co-Produced Long COVID Intervention in an Underserved Community in the UK Fowler-Davis, Sally Young, Rachel Maden-Wilkinson, Tom Hameed, Waqas Dracas, Elizabeth Hurrell, Eleanor Bahl, Romila Kilcourse, Elisabeth Robinson, Rebecca Copeland, Robert Int J Environ Res Public Health Article Background: The COVID-19 pandemic has disproportionately affected people from more deprived communities. The experience of Long COVID is similarly distributed but very few investigations have concentrated on the needs of this population. The aim of this project was to co-produce an acceptable intervention for people with Long COVID living in communities recognised as more deprived. Methods: The intervention was based on a multi-disciplinary team using approaches from sport and exercise medicine and functional rehabilitation. The co-production process was undertaken with a stakeholder advisory group and patient public involvement representation. This study identified participants by postcode and the indices of multiple deprivation (IMD); recruitment and engagement were supported by an existing health and wellbeing service. A virtual ‘clinic’ was offered with a team of professional practitioners who met participants three times each; to directly consider their needs and offer structured advice. The acceptability of the intervention was based on the individual’s participation and their completion of the intervention. Results: Ten participants were recruited with eight completing the intervention. The partnership with an existing community health and wellbeing service was deemed to be an important way of reaching participants. Two men and six women ages ranging from 38 to 73 were involved and their needs were commonly associated with fatigue, anxiety and depression with overall de-conditioning. None reported serious hardship associated with the pandemic although most were in self-employment/part-time employment or were not working due to retirement or ill-health. Two older participants lived alone, and others were single parents and had considerable challenges associated with managing a household alongside their Long COVID difficulties. Conclusions: This paper presents the needs and perspectives of eight individuals involved in the process and discusses the needs and preferences of the group in relation to their support for self- managed recovery from Long COVID. MDPI 2021-12-14 /pmc/articles/PMC8701839/ /pubmed/34948798 http://dx.doi.org/10.3390/ijerph182413191 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Fowler-Davis, Sally
Young, Rachel
Maden-Wilkinson, Tom
Hameed, Waqas
Dracas, Elizabeth
Hurrell, Eleanor
Bahl, Romila
Kilcourse, Elisabeth
Robinson, Rebecca
Copeland, Robert
Assessing the Acceptability of a Co-Produced Long COVID Intervention in an Underserved Community in the UK
title Assessing the Acceptability of a Co-Produced Long COVID Intervention in an Underserved Community in the UK
title_full Assessing the Acceptability of a Co-Produced Long COVID Intervention in an Underserved Community in the UK
title_fullStr Assessing the Acceptability of a Co-Produced Long COVID Intervention in an Underserved Community in the UK
title_full_unstemmed Assessing the Acceptability of a Co-Produced Long COVID Intervention in an Underserved Community in the UK
title_short Assessing the Acceptability of a Co-Produced Long COVID Intervention in an Underserved Community in the UK
title_sort assessing the acceptability of a co-produced long covid intervention in an underserved community in the uk
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8701839/
https://www.ncbi.nlm.nih.gov/pubmed/34948798
http://dx.doi.org/10.3390/ijerph182413191
work_keys_str_mv AT fowlerdavissally assessingtheacceptabilityofacoproducedlongcovidinterventioninanunderservedcommunityintheuk
AT youngrachel assessingtheacceptabilityofacoproducedlongcovidinterventioninanunderservedcommunityintheuk
AT madenwilkinsontom assessingtheacceptabilityofacoproducedlongcovidinterventioninanunderservedcommunityintheuk
AT hameedwaqas assessingtheacceptabilityofacoproducedlongcovidinterventioninanunderservedcommunityintheuk
AT dracaselizabeth assessingtheacceptabilityofacoproducedlongcovidinterventioninanunderservedcommunityintheuk
AT hurrelleleanor assessingtheacceptabilityofacoproducedlongcovidinterventioninanunderservedcommunityintheuk
AT bahlromila assessingtheacceptabilityofacoproducedlongcovidinterventioninanunderservedcommunityintheuk
AT kilcourseelisabeth assessingtheacceptabilityofacoproducedlongcovidinterventioninanunderservedcommunityintheuk
AT robinsonrebecca assessingtheacceptabilityofacoproducedlongcovidinterventioninanunderservedcommunityintheuk
AT copelandrobert assessingtheacceptabilityofacoproducedlongcovidinterventioninanunderservedcommunityintheuk