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The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study

Older people with dementia are particularly at risk of COVID-19; however, relatively little is known about the indirect impact of the pandemic on the lives of those living with, and/or caring for someone with, dementia. The aim of this study was to investigate the experiences of people with dementia...

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Autores principales: Maćkowiak, Maria, Senczyszyn, Adrianna, Lion, Katarzyna, Trypka, Elżbieta, Małecka, Monika, Ciułkowicz, Marta, Mazurek, Justyna, Świderska, Roksana, Giebel, Clarissa, Gabbay, Mark, Rymaszewska, Joanna, Szcześniak, Dorota
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8702134/
https://www.ncbi.nlm.nih.gov/pubmed/34946403
http://dx.doi.org/10.3390/healthcare9121677
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author Maćkowiak, Maria
Senczyszyn, Adrianna
Lion, Katarzyna
Trypka, Elżbieta
Małecka, Monika
Ciułkowicz, Marta
Mazurek, Justyna
Świderska, Roksana
Giebel, Clarissa
Gabbay, Mark
Rymaszewska, Joanna
Szcześniak, Dorota
author_facet Maćkowiak, Maria
Senczyszyn, Adrianna
Lion, Katarzyna
Trypka, Elżbieta
Małecka, Monika
Ciułkowicz, Marta
Mazurek, Justyna
Świderska, Roksana
Giebel, Clarissa
Gabbay, Mark
Rymaszewska, Joanna
Szcześniak, Dorota
author_sort Maćkowiak, Maria
collection PubMed
description Older people with dementia are particularly at risk of COVID-19; however, relatively little is known about the indirect impact of the pandemic on the lives of those living with, and/or caring for someone with, dementia. The aim of this study was to investigate the experiences of people with dementia and informal carers during the closure of available social and medical services in Poland during the COVID-19 pandemic. A qualitative thematic analysis of semi-structured interviews with people with dementia (n = 5) and informal carers (n = 21) was performed between June and August 2020 after the first wave of COVID-19 in Poland. Three overarching themes were identified: (1) care re-organization; (2) psychological responses; (3) emerging needs. The factor underlying all these elements was reliance on other people. Social support and engagement are vital to the ongoing health and well-being of people living with dementia and their informal carers. Services need to be strengthened to provide ongoing provision to those living with dementia to reach pre-pandemic levels, if not better. Within the post-pandemic environment, people with dementia and their informal carers need reassurance that they can rely on external institutional and social support able to meet their needs.
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spelling pubmed-87021342021-12-24 The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study Maćkowiak, Maria Senczyszyn, Adrianna Lion, Katarzyna Trypka, Elżbieta Małecka, Monika Ciułkowicz, Marta Mazurek, Justyna Świderska, Roksana Giebel, Clarissa Gabbay, Mark Rymaszewska, Joanna Szcześniak, Dorota Healthcare (Basel) Article Older people with dementia are particularly at risk of COVID-19; however, relatively little is known about the indirect impact of the pandemic on the lives of those living with, and/or caring for someone with, dementia. The aim of this study was to investigate the experiences of people with dementia and informal carers during the closure of available social and medical services in Poland during the COVID-19 pandemic. A qualitative thematic analysis of semi-structured interviews with people with dementia (n = 5) and informal carers (n = 21) was performed between June and August 2020 after the first wave of COVID-19 in Poland. Three overarching themes were identified: (1) care re-organization; (2) psychological responses; (3) emerging needs. The factor underlying all these elements was reliance on other people. Social support and engagement are vital to the ongoing health and well-being of people living with dementia and their informal carers. Services need to be strengthened to provide ongoing provision to those living with dementia to reach pre-pandemic levels, if not better. Within the post-pandemic environment, people with dementia and their informal carers need reassurance that they can rely on external institutional and social support able to meet their needs. MDPI 2021-12-03 /pmc/articles/PMC8702134/ /pubmed/34946403 http://dx.doi.org/10.3390/healthcare9121677 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Maćkowiak, Maria
Senczyszyn, Adrianna
Lion, Katarzyna
Trypka, Elżbieta
Małecka, Monika
Ciułkowicz, Marta
Mazurek, Justyna
Świderska, Roksana
Giebel, Clarissa
Gabbay, Mark
Rymaszewska, Joanna
Szcześniak, Dorota
The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study
title The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study
title_full The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study
title_fullStr The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study
title_full_unstemmed The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study
title_short The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study
title_sort experiences of people with dementia and informal carers related to the closure of social and medical services in poland during the covid-19 pandemic—a qualitative study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8702134/
https://www.ncbi.nlm.nih.gov/pubmed/34946403
http://dx.doi.org/10.3390/healthcare9121677
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