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The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study
Older people with dementia are particularly at risk of COVID-19; however, relatively little is known about the indirect impact of the pandemic on the lives of those living with, and/or caring for someone with, dementia. The aim of this study was to investigate the experiences of people with dementia...
Autores principales: | , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8702134/ https://www.ncbi.nlm.nih.gov/pubmed/34946403 http://dx.doi.org/10.3390/healthcare9121677 |
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author | Maćkowiak, Maria Senczyszyn, Adrianna Lion, Katarzyna Trypka, Elżbieta Małecka, Monika Ciułkowicz, Marta Mazurek, Justyna Świderska, Roksana Giebel, Clarissa Gabbay, Mark Rymaszewska, Joanna Szcześniak, Dorota |
author_facet | Maćkowiak, Maria Senczyszyn, Adrianna Lion, Katarzyna Trypka, Elżbieta Małecka, Monika Ciułkowicz, Marta Mazurek, Justyna Świderska, Roksana Giebel, Clarissa Gabbay, Mark Rymaszewska, Joanna Szcześniak, Dorota |
author_sort | Maćkowiak, Maria |
collection | PubMed |
description | Older people with dementia are particularly at risk of COVID-19; however, relatively little is known about the indirect impact of the pandemic on the lives of those living with, and/or caring for someone with, dementia. The aim of this study was to investigate the experiences of people with dementia and informal carers during the closure of available social and medical services in Poland during the COVID-19 pandemic. A qualitative thematic analysis of semi-structured interviews with people with dementia (n = 5) and informal carers (n = 21) was performed between June and August 2020 after the first wave of COVID-19 in Poland. Three overarching themes were identified: (1) care re-organization; (2) psychological responses; (3) emerging needs. The factor underlying all these elements was reliance on other people. Social support and engagement are vital to the ongoing health and well-being of people living with dementia and their informal carers. Services need to be strengthened to provide ongoing provision to those living with dementia to reach pre-pandemic levels, if not better. Within the post-pandemic environment, people with dementia and their informal carers need reassurance that they can rely on external institutional and social support able to meet their needs. |
format | Online Article Text |
id | pubmed-8702134 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-87021342021-12-24 The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study Maćkowiak, Maria Senczyszyn, Adrianna Lion, Katarzyna Trypka, Elżbieta Małecka, Monika Ciułkowicz, Marta Mazurek, Justyna Świderska, Roksana Giebel, Clarissa Gabbay, Mark Rymaszewska, Joanna Szcześniak, Dorota Healthcare (Basel) Article Older people with dementia are particularly at risk of COVID-19; however, relatively little is known about the indirect impact of the pandemic on the lives of those living with, and/or caring for someone with, dementia. The aim of this study was to investigate the experiences of people with dementia and informal carers during the closure of available social and medical services in Poland during the COVID-19 pandemic. A qualitative thematic analysis of semi-structured interviews with people with dementia (n = 5) and informal carers (n = 21) was performed between June and August 2020 after the first wave of COVID-19 in Poland. Three overarching themes were identified: (1) care re-organization; (2) psychological responses; (3) emerging needs. The factor underlying all these elements was reliance on other people. Social support and engagement are vital to the ongoing health and well-being of people living with dementia and their informal carers. Services need to be strengthened to provide ongoing provision to those living with dementia to reach pre-pandemic levels, if not better. Within the post-pandemic environment, people with dementia and their informal carers need reassurance that they can rely on external institutional and social support able to meet their needs. MDPI 2021-12-03 /pmc/articles/PMC8702134/ /pubmed/34946403 http://dx.doi.org/10.3390/healthcare9121677 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Maćkowiak, Maria Senczyszyn, Adrianna Lion, Katarzyna Trypka, Elżbieta Małecka, Monika Ciułkowicz, Marta Mazurek, Justyna Świderska, Roksana Giebel, Clarissa Gabbay, Mark Rymaszewska, Joanna Szcześniak, Dorota The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study |
title | The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study |
title_full | The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study |
title_fullStr | The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study |
title_full_unstemmed | The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study |
title_short | The Experiences of People with Dementia and Informal Carers Related to the Closure of Social and Medical Services in Poland during the COVID-19 Pandemic—A Qualitative Study |
title_sort | experiences of people with dementia and informal carers related to the closure of social and medical services in poland during the covid-19 pandemic—a qualitative study |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8702134/ https://www.ncbi.nlm.nih.gov/pubmed/34946403 http://dx.doi.org/10.3390/healthcare9121677 |
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