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Defining the Critical Components of Informed Consent for Genetic Testing
Purpose: Informed consent for genetic testing has historically been acquired during pretest genetic counseling, without specific guidance defining which core concepts are required. Methods: The Clinical Genome Resource (ClinGen) Consent and Disclosure Recommendations Workgroup (CADRe) used an expert...
Autores principales: | Ormond, Kelly E., Borensztein, Maia J., Hallquist, Miranda L. G., Buchanan, Adam H., Faucett, William Andrew, Peay, Holly L., Smith, Maureen E., Tricou, Eric P., Uhlmann, Wendy R., Wain, Karen E., Coughlin, Curtis R. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8706495/ https://www.ncbi.nlm.nih.gov/pubmed/34945775 http://dx.doi.org/10.3390/jpm11121304 |
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