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Empowering Patients in the Therapeutic Decision-Making Process: A Glance Into Behçet's Syndrome

Behçet's syndrome (BS) represents a challenging condition, characterized by a variable spectrum of disease profile and associated with a significant limitation of the daily activities as well as a potential negative impact on relationships and psychological status. Considering also the complexi...

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Autores principales: Marinello, Diana, Di Cianni, Federica, Del Bianco, Alessandra, Mattioli, Irene, Sota, Jurgen, Cantarini, Luca, Emmi, Giacomo, Leccese, Pietro, Lopalco, Giuseppe, Mosca, Marta, Padula, Angela, Piga, Matteo, Salvarani, Carlo, Taruscio, Domenica, Talarico, Rosaria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8710680/
https://www.ncbi.nlm.nih.gov/pubmed/34966756
http://dx.doi.org/10.3389/fmed.2021.769870
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author Marinello, Diana
Di Cianni, Federica
Del Bianco, Alessandra
Mattioli, Irene
Sota, Jurgen
Cantarini, Luca
Emmi, Giacomo
Leccese, Pietro
Lopalco, Giuseppe
Mosca, Marta
Padula, Angela
Piga, Matteo
Salvarani, Carlo
Taruscio, Domenica
Talarico, Rosaria
author_facet Marinello, Diana
Di Cianni, Federica
Del Bianco, Alessandra
Mattioli, Irene
Sota, Jurgen
Cantarini, Luca
Emmi, Giacomo
Leccese, Pietro
Lopalco, Giuseppe
Mosca, Marta
Padula, Angela
Piga, Matteo
Salvarani, Carlo
Taruscio, Domenica
Talarico, Rosaria
author_sort Marinello, Diana
collection PubMed
description Behçet's syndrome (BS) represents a challenging condition, characterized by a variable spectrum of disease profile and associated with a significant limitation of the daily activities as well as a potential negative impact on relationships and psychological status. Considering also the complexity of the therapeutic management of BS, that often includes biological off-label treatments, the participation in the therapeutic decision-making process of the BS patients is essential to ensure the integration of the care process into the life of the patient. For this reason, the empowerment of BS patients represents a crucial need and the present work is aimed at fully exploring all the potential variables implicated in the BS patient empowerment, also highlighting major points to consider and concrete actions to be planned in the immediate future in order to implement a pragmatic facilitation of the patients' empowerment.
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spelling pubmed-87106802021-12-28 Empowering Patients in the Therapeutic Decision-Making Process: A Glance Into Behçet's Syndrome Marinello, Diana Di Cianni, Federica Del Bianco, Alessandra Mattioli, Irene Sota, Jurgen Cantarini, Luca Emmi, Giacomo Leccese, Pietro Lopalco, Giuseppe Mosca, Marta Padula, Angela Piga, Matteo Salvarani, Carlo Taruscio, Domenica Talarico, Rosaria Front Med (Lausanne) Medicine Behçet's syndrome (BS) represents a challenging condition, characterized by a variable spectrum of disease profile and associated with a significant limitation of the daily activities as well as a potential negative impact on relationships and psychological status. Considering also the complexity of the therapeutic management of BS, that often includes biological off-label treatments, the participation in the therapeutic decision-making process of the BS patients is essential to ensure the integration of the care process into the life of the patient. For this reason, the empowerment of BS patients represents a crucial need and the present work is aimed at fully exploring all the potential variables implicated in the BS patient empowerment, also highlighting major points to consider and concrete actions to be planned in the immediate future in order to implement a pragmatic facilitation of the patients' empowerment. Frontiers Media S.A. 2021-12-13 /pmc/articles/PMC8710680/ /pubmed/34966756 http://dx.doi.org/10.3389/fmed.2021.769870 Text en Copyright © 2021 Marinello, Di Cianni, Del Bianco, Mattioli, Sota, Cantarini, Emmi, Leccese, Lopalco, Mosca, Padula, Piga, Salvarani, Taruscio and Talarico. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Medicine
Marinello, Diana
Di Cianni, Federica
Del Bianco, Alessandra
Mattioli, Irene
Sota, Jurgen
Cantarini, Luca
Emmi, Giacomo
Leccese, Pietro
Lopalco, Giuseppe
Mosca, Marta
Padula, Angela
Piga, Matteo
Salvarani, Carlo
Taruscio, Domenica
Talarico, Rosaria
Empowering Patients in the Therapeutic Decision-Making Process: A Glance Into Behçet's Syndrome
title Empowering Patients in the Therapeutic Decision-Making Process: A Glance Into Behçet's Syndrome
title_full Empowering Patients in the Therapeutic Decision-Making Process: A Glance Into Behçet's Syndrome
title_fullStr Empowering Patients in the Therapeutic Decision-Making Process: A Glance Into Behçet's Syndrome
title_full_unstemmed Empowering Patients in the Therapeutic Decision-Making Process: A Glance Into Behçet's Syndrome
title_short Empowering Patients in the Therapeutic Decision-Making Process: A Glance Into Behçet's Syndrome
title_sort empowering patients in the therapeutic decision-making process: a glance into behçet's syndrome
topic Medicine
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8710680/
https://www.ncbi.nlm.nih.gov/pubmed/34966756
http://dx.doi.org/10.3389/fmed.2021.769870
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