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Assessing the quality of life in the families of patients with epidermolysis bullosa: The mothers as main caregivers

BACKGROUND: Epidermolysis bullosa (EB) is an uncommon group of inherited disorders characterized by skin blistering after friction or mechanical trauma. EB affects patients and their families physically, socially, and emotionally. OBJECTIVE: This study aimed to assess the family quality of life of t...

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Detalles Bibliográficos
Autores principales: Chogani, Fatemeh, Parvizi, Mohammad Mahdi, Murrell, Dedee F., Handjani, Farhad
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8714583/
https://www.ncbi.nlm.nih.gov/pubmed/35028371
http://dx.doi.org/10.1016/j.ijwd.2021.08.007