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Exploring the experiences of stroke survivors, informal caregivers and healthcare providers in Sierra Leone: a qualitative study protocol

INTRODUCTION: Stroke is now the second leading cause of adult death in Sub-Saharan Africa. Developed in dialogue with stroke survivors and caregivers in Sierra Leone, this will be the first study to explore the experience of stroke as well as the perceptions of the barriers and facilitators to acces...

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Autores principales: O'Hara, Jessica, Thompson, Melvina, Deen, Gibrilla, Leather, Andrew J M, Youkee, Daniel, Wall, Jurate, Sackley, Catherine, Parmar, Divya, McKevitt, Christopher
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8719247/
http://dx.doi.org/10.1136/bmjopen-2021-051276
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author O'Hara, Jessica
Thompson, Melvina
Deen, Gibrilla
Leather, Andrew J M
Youkee, Daniel
Wall, Jurate
Sackley, Catherine
Parmar, Divya
McKevitt, Christopher
author_facet O'Hara, Jessica
Thompson, Melvina
Deen, Gibrilla
Leather, Andrew J M
Youkee, Daniel
Wall, Jurate
Sackley, Catherine
Parmar, Divya
McKevitt, Christopher
author_sort O'Hara, Jessica
collection PubMed
description INTRODUCTION: Stroke is now the second leading cause of adult death in Sub-Saharan Africa. Developed in dialogue with stroke survivors and caregivers in Sierra Leone, this will be the first study to explore the experience of stroke as well as the perceptions of the barriers and facilitators to accessing stroke care among stroke survivors, informal caregivers and healthcare providers. Findings will inform future stroke research and care in Sierra Leone. METHODS AND ANALYSIS: A cross-sectional qualitative study employing semistructured interviews that will be audiorecorded, translated, transcribed and coded. SETTING: Freetown, Sierra Leone. PARTICIPANTS: Interviews with a purposive sample of stroke survivors, informal caregivers and healthcare providers. ANALYSIS: Interviews will be coded by two authors and inductively analysed using thematic analysis. ETHICS AND DISSEMINATION: This study has received ethical approval from the Sierra Leone Ethics and Scientific Review Committee (8 December 2020) and the KCL Biomedical & Health Sciences, Dentistry, Medicine and Natural & Mathematical Sciences Research Ethics Subcommittee (reference: HR-20/21-21050). The findings of the study and learning in terms of the process of coproduction and involvement of stroke survivors will be disseminated via peer-reviewed publications, conferences, media and lay reports.
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spelling pubmed-87192472022-01-12 Exploring the experiences of stroke survivors, informal caregivers and healthcare providers in Sierra Leone: a qualitative study protocol O'Hara, Jessica Thompson, Melvina Deen, Gibrilla Leather, Andrew J M Youkee, Daniel Wall, Jurate Sackley, Catherine Parmar, Divya McKevitt, Christopher BMJ Open Qualitative Research INTRODUCTION: Stroke is now the second leading cause of adult death in Sub-Saharan Africa. Developed in dialogue with stroke survivors and caregivers in Sierra Leone, this will be the first study to explore the experience of stroke as well as the perceptions of the barriers and facilitators to accessing stroke care among stroke survivors, informal caregivers and healthcare providers. Findings will inform future stroke research and care in Sierra Leone. METHODS AND ANALYSIS: A cross-sectional qualitative study employing semistructured interviews that will be audiorecorded, translated, transcribed and coded. SETTING: Freetown, Sierra Leone. PARTICIPANTS: Interviews with a purposive sample of stroke survivors, informal caregivers and healthcare providers. ANALYSIS: Interviews will be coded by two authors and inductively analysed using thematic analysis. ETHICS AND DISSEMINATION: This study has received ethical approval from the Sierra Leone Ethics and Scientific Review Committee (8 December 2020) and the KCL Biomedical & Health Sciences, Dentistry, Medicine and Natural & Mathematical Sciences Research Ethics Subcommittee (reference: HR-20/21-21050). The findings of the study and learning in terms of the process of coproduction and involvement of stroke survivors will be disseminated via peer-reviewed publications, conferences, media and lay reports. BMJ Publishing Group 2021-12-28 /pmc/articles/PMC8719247/ http://dx.doi.org/10.1136/bmjopen-2021-051276 Text en © Author(s) (or their employer(s)) 2021. Re-use permitted under CC BY. Published by BMJ. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
spellingShingle Qualitative Research
O'Hara, Jessica
Thompson, Melvina
Deen, Gibrilla
Leather, Andrew J M
Youkee, Daniel
Wall, Jurate
Sackley, Catherine
Parmar, Divya
McKevitt, Christopher
Exploring the experiences of stroke survivors, informal caregivers and healthcare providers in Sierra Leone: a qualitative study protocol
title Exploring the experiences of stroke survivors, informal caregivers and healthcare providers in Sierra Leone: a qualitative study protocol
title_full Exploring the experiences of stroke survivors, informal caregivers and healthcare providers in Sierra Leone: a qualitative study protocol
title_fullStr Exploring the experiences of stroke survivors, informal caregivers and healthcare providers in Sierra Leone: a qualitative study protocol
title_full_unstemmed Exploring the experiences of stroke survivors, informal caregivers and healthcare providers in Sierra Leone: a qualitative study protocol
title_short Exploring the experiences of stroke survivors, informal caregivers and healthcare providers in Sierra Leone: a qualitative study protocol
title_sort exploring the experiences of stroke survivors, informal caregivers and healthcare providers in sierra leone: a qualitative study protocol
topic Qualitative Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8719247/
http://dx.doi.org/10.1136/bmjopen-2021-051276
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