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An Internet Based Intervention for Adults With Autism Spectrum Disorder—A Qualitative Study of Participants Experiences

Background: Adults with autism spectrum disorder face several barriers to accessing evidence-based care, including difficulties in communicating needs, social anxiety or in traveling to a health care unit. In recent years, several forms of internet-based treatments have shown to be effective for a v...

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Autores principales: Westerberg, Britta, Bäärnhielm, Sofie, Giles, Clover, Hylén, Ulrika, Holländare, Fredrik, Bejerot, Susanne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8729877/
https://www.ncbi.nlm.nih.gov/pubmed/35002808
http://dx.doi.org/10.3389/fpsyt.2021.789663
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author Westerberg, Britta
Bäärnhielm, Sofie
Giles, Clover
Hylén, Ulrika
Holländare, Fredrik
Bejerot, Susanne
author_facet Westerberg, Britta
Bäärnhielm, Sofie
Giles, Clover
Hylén, Ulrika
Holländare, Fredrik
Bejerot, Susanne
author_sort Westerberg, Britta
collection PubMed
description Background: Adults with autism spectrum disorder face several barriers to accessing evidence-based care, including difficulties in communicating needs, social anxiety or in traveling to a health care unit. In recent years, several forms of internet-based treatments have shown to be effective for a variety of psychiatric conditions. Internet-based treatment alternatives allow convenient and flexible formats, and therefore have the potential to increase access to health care for individuals with autism spectrum disorder. However, knowledge about how internet-based treatment features may suit the needs of individuals with autism is limited. The aim of this study was to explore the participant experiences of an internet-based intervention for adults with autism spectrum disorder. The primary focus of the investigation was on autism-specific needs in relation to the features unique to the online format. Methods: In this qualitative study, semi-structured telephone interviews were conducted with 14 participants who had completed a text-based internet-based intervention for adults with autism spectrum disorder. We used an inductive approach and analyzed the data using qualitative content analysis. Results: Five main categories were identified: (1) implications of the online format, (2) the fixed non-individualized model, (3) therapist interaction, (4) interacting with other participants, and (5) making use of the treatment content. Overall, participants appreciated the availability and that they could work on their treatment independent of time or location. Among those participating in group-based chat-sessions with the other participants, it was considered a generally positive experience. Furthermore, most participants felt safe and relaxed in relation to the therapist and appreciated the text-based format. However, several participants felt that the format and content of the treatment was not sufficiently adapted to their individual life situation. Conclusion: In conclusion, this internet-based treatment constitutes an accessible and energy-saving treatment alternative for adults with autism. Further, integrating group-based components seems feasible in an otherwise individual internet-based treatment for individuals with autism. However, group-based components do require a clear purpose and rationale. Future studies should develop and evaluate treatment adaptations tailored to individual needs.
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spelling pubmed-87298772022-01-06 An Internet Based Intervention for Adults With Autism Spectrum Disorder—A Qualitative Study of Participants Experiences Westerberg, Britta Bäärnhielm, Sofie Giles, Clover Hylén, Ulrika Holländare, Fredrik Bejerot, Susanne Front Psychiatry Psychiatry Background: Adults with autism spectrum disorder face several barriers to accessing evidence-based care, including difficulties in communicating needs, social anxiety or in traveling to a health care unit. In recent years, several forms of internet-based treatments have shown to be effective for a variety of psychiatric conditions. Internet-based treatment alternatives allow convenient and flexible formats, and therefore have the potential to increase access to health care for individuals with autism spectrum disorder. However, knowledge about how internet-based treatment features may suit the needs of individuals with autism is limited. The aim of this study was to explore the participant experiences of an internet-based intervention for adults with autism spectrum disorder. The primary focus of the investigation was on autism-specific needs in relation to the features unique to the online format. Methods: In this qualitative study, semi-structured telephone interviews were conducted with 14 participants who had completed a text-based internet-based intervention for adults with autism spectrum disorder. We used an inductive approach and analyzed the data using qualitative content analysis. Results: Five main categories were identified: (1) implications of the online format, (2) the fixed non-individualized model, (3) therapist interaction, (4) interacting with other participants, and (5) making use of the treatment content. Overall, participants appreciated the availability and that they could work on their treatment independent of time or location. Among those participating in group-based chat-sessions with the other participants, it was considered a generally positive experience. Furthermore, most participants felt safe and relaxed in relation to the therapist and appreciated the text-based format. However, several participants felt that the format and content of the treatment was not sufficiently adapted to their individual life situation. Conclusion: In conclusion, this internet-based treatment constitutes an accessible and energy-saving treatment alternative for adults with autism. Further, integrating group-based components seems feasible in an otherwise individual internet-based treatment for individuals with autism. However, group-based components do require a clear purpose and rationale. Future studies should develop and evaluate treatment adaptations tailored to individual needs. Frontiers Media S.A. 2021-12-22 /pmc/articles/PMC8729877/ /pubmed/35002808 http://dx.doi.org/10.3389/fpsyt.2021.789663 Text en Copyright © 2021 Westerberg, Bäärnhielm, Giles, Hylén, Holländare and Bejerot. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Psychiatry
Westerberg, Britta
Bäärnhielm, Sofie
Giles, Clover
Hylén, Ulrika
Holländare, Fredrik
Bejerot, Susanne
An Internet Based Intervention for Adults With Autism Spectrum Disorder—A Qualitative Study of Participants Experiences
title An Internet Based Intervention for Adults With Autism Spectrum Disorder—A Qualitative Study of Participants Experiences
title_full An Internet Based Intervention for Adults With Autism Spectrum Disorder—A Qualitative Study of Participants Experiences
title_fullStr An Internet Based Intervention for Adults With Autism Spectrum Disorder—A Qualitative Study of Participants Experiences
title_full_unstemmed An Internet Based Intervention for Adults With Autism Spectrum Disorder—A Qualitative Study of Participants Experiences
title_short An Internet Based Intervention for Adults With Autism Spectrum Disorder—A Qualitative Study of Participants Experiences
title_sort internet based intervention for adults with autism spectrum disorder—a qualitative study of participants experiences
topic Psychiatry
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8729877/
https://www.ncbi.nlm.nih.gov/pubmed/35002808
http://dx.doi.org/10.3389/fpsyt.2021.789663
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