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Why Rotationplasty? A Qualitative Study of Decision-Making by Families of Patients With Primary Bone Sarcoma

Rotationplasty is an established technique that is indicated as part of the surgical reconstruction for certain patients with primary bone tumors around the knee who undergo tumor resection. There is considerable variation in the application of rotationplasty by surgeons as well as acceptance of the...

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Autores principales: Chan, Chung M, Lindsay, Adam D., Spiguel, Andre R V, Parker Gibbs, C., Scarborough, Mark T
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8733356/
https://www.ncbi.nlm.nih.gov/pubmed/35005220
http://dx.doi.org/10.1177/23743735211069818
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author Chan, Chung M
Lindsay, Adam D.
Spiguel, Andre R V
Parker Gibbs, C.
Scarborough, Mark T
author_facet Chan, Chung M
Lindsay, Adam D.
Spiguel, Andre R V
Parker Gibbs, C.
Scarborough, Mark T
author_sort Chan, Chung M
collection PubMed
description Rotationplasty is an established technique that is indicated as part of the surgical reconstruction for certain patients with primary bone tumors around the knee who undergo tumor resection. There is considerable variation in the application of rotationplasty by surgeons as well as acceptance of the procedure by patients who may be candidates for this procedure. We qualitatively studied the decision-making process of families of patients who had undergone rotationplasty by interviewing 4 patients and their families using semi-structured interviews. Thematic analysis identified the following themes that were important in the decision-making process: (1) the desire for good information sources, (2) finding value in meeting with other patients who had been faced with a similar decision, (3) prioritizing function over cosmesis, (4) a desire to limit the need for revision surgeries, and (5) accepting that a return to normalcy is not an option with a surgery. Physicians and patients faced with a similar decision can benefit from a better understanding of the process, and by the normalization of anxieties and concerns that they may experience.
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spelling pubmed-87333562022-01-07 Why Rotationplasty? A Qualitative Study of Decision-Making by Families of Patients With Primary Bone Sarcoma Chan, Chung M Lindsay, Adam D. Spiguel, Andre R V Parker Gibbs, C. Scarborough, Mark T J Patient Exp Research Article Rotationplasty is an established technique that is indicated as part of the surgical reconstruction for certain patients with primary bone tumors around the knee who undergo tumor resection. There is considerable variation in the application of rotationplasty by surgeons as well as acceptance of the procedure by patients who may be candidates for this procedure. We qualitatively studied the decision-making process of families of patients who had undergone rotationplasty by interviewing 4 patients and their families using semi-structured interviews. Thematic analysis identified the following themes that were important in the decision-making process: (1) the desire for good information sources, (2) finding value in meeting with other patients who had been faced with a similar decision, (3) prioritizing function over cosmesis, (4) a desire to limit the need for revision surgeries, and (5) accepting that a return to normalcy is not an option with a surgery. Physicians and patients faced with a similar decision can benefit from a better understanding of the process, and by the normalization of anxieties and concerns that they may experience. SAGE Publications 2022-01-04 /pmc/articles/PMC8733356/ /pubmed/35005220 http://dx.doi.org/10.1177/23743735211069818 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Research Article
Chan, Chung M
Lindsay, Adam D.
Spiguel, Andre R V
Parker Gibbs, C.
Scarborough, Mark T
Why Rotationplasty? A Qualitative Study of Decision-Making by Families of Patients With Primary Bone Sarcoma
title Why Rotationplasty? A Qualitative Study of Decision-Making by Families of Patients With Primary Bone Sarcoma
title_full Why Rotationplasty? A Qualitative Study of Decision-Making by Families of Patients With Primary Bone Sarcoma
title_fullStr Why Rotationplasty? A Qualitative Study of Decision-Making by Families of Patients With Primary Bone Sarcoma
title_full_unstemmed Why Rotationplasty? A Qualitative Study of Decision-Making by Families of Patients With Primary Bone Sarcoma
title_short Why Rotationplasty? A Qualitative Study of Decision-Making by Families of Patients With Primary Bone Sarcoma
title_sort why rotationplasty? a qualitative study of decision-making by families of patients with primary bone sarcoma
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8733356/
https://www.ncbi.nlm.nih.gov/pubmed/35005220
http://dx.doi.org/10.1177/23743735211069818
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