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Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study

Caregivers of individuals with cancer in the COVID-19 pandemic are faced with the demands of cancer and the health needs produced by it, along with their own health and self-care needs, and the uncertainties of expectations and risks. A qualitative analytical phenomenological study with caregivers o...

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Autores principales: Salha, Leila Abou, Silva, Julio Cesar Souza, Martins, Cleusa Alves, Araújo, Cristiane Soares da Costa, da Silva, Edinamar Aparecida Santos, Alves, Angela Gilda, de Paula, Cácia Régia, de Lima, Flavio Henrique Alves, de Moura, Veidma Siqueira, de Menezes, José Elmo, Brasil, Virginia Visconde, Barbosa, Maria Alves
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8751169/
https://www.ncbi.nlm.nih.gov/pubmed/35010444
http://dx.doi.org/10.3390/ijerph19010185
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author Salha, Leila Abou
Silva, Julio Cesar Souza
Martins, Cleusa Alves
Araújo, Cristiane Soares da Costa
da Silva, Edinamar Aparecida Santos
Alves, Angela Gilda
de Paula, Cácia Régia
de Lima, Flavio Henrique Alves
de Moura, Veidma Siqueira
de Menezes, José Elmo
Brasil, Virginia Visconde
Barbosa, Maria Alves
author_facet Salha, Leila Abou
Silva, Julio Cesar Souza
Martins, Cleusa Alves
Araújo, Cristiane Soares da Costa
da Silva, Edinamar Aparecida Santos
Alves, Angela Gilda
de Paula, Cácia Régia
de Lima, Flavio Henrique Alves
de Moura, Veidma Siqueira
de Menezes, José Elmo
Brasil, Virginia Visconde
Barbosa, Maria Alves
author_sort Salha, Leila Abou
collection PubMed
description Caregivers of individuals with cancer in the COVID-19 pandemic are faced with the demands of cancer and the health needs produced by it, along with their own health and self-care needs, and the uncertainties of expectations and risks. A qualitative analytical phenomenological study with caregivers of individuals with cancer registered at the state referral hospital supplying medications, who answered the sociodemographic assessment questionnaires and semi-structured questions about their feelings and perceptions in the COVID-19 pandemic. Bardin’s content analysis was used, with methodological quality assessed using SRQR Standards for Reporting Qualitative Research and the MAXQDA software. Most of the caregivers are women, married, Catholic, of low income and education, aged between 30 and 60 years, optimistic, comply with health guidelines regarding social distancing, use of masks, and routine hand hygiene, do not practice regular physical activities, mention concern for their own physical and financial survival, and that of their family. The main need identified in the affective sphere was to reframe contact with family members, seeking to strengthen the bonds of affection. The feeling of emotional vulnerability shows the importance of building effective public policies for social support consistent with the improvement of health care for this population.
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spelling pubmed-87511692022-01-12 Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study Salha, Leila Abou Silva, Julio Cesar Souza Martins, Cleusa Alves Araújo, Cristiane Soares da Costa da Silva, Edinamar Aparecida Santos Alves, Angela Gilda de Paula, Cácia Régia de Lima, Flavio Henrique Alves de Moura, Veidma Siqueira de Menezes, José Elmo Brasil, Virginia Visconde Barbosa, Maria Alves Int J Environ Res Public Health Article Caregivers of individuals with cancer in the COVID-19 pandemic are faced with the demands of cancer and the health needs produced by it, along with their own health and self-care needs, and the uncertainties of expectations and risks. A qualitative analytical phenomenological study with caregivers of individuals with cancer registered at the state referral hospital supplying medications, who answered the sociodemographic assessment questionnaires and semi-structured questions about their feelings and perceptions in the COVID-19 pandemic. Bardin’s content analysis was used, with methodological quality assessed using SRQR Standards for Reporting Qualitative Research and the MAXQDA software. Most of the caregivers are women, married, Catholic, of low income and education, aged between 30 and 60 years, optimistic, comply with health guidelines regarding social distancing, use of masks, and routine hand hygiene, do not practice regular physical activities, mention concern for their own physical and financial survival, and that of their family. The main need identified in the affective sphere was to reframe contact with family members, seeking to strengthen the bonds of affection. The feeling of emotional vulnerability shows the importance of building effective public policies for social support consistent with the improvement of health care for this population. MDPI 2021-12-24 /pmc/articles/PMC8751169/ /pubmed/35010444 http://dx.doi.org/10.3390/ijerph19010185 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Salha, Leila Abou
Silva, Julio Cesar Souza
Martins, Cleusa Alves
Araújo, Cristiane Soares da Costa
da Silva, Edinamar Aparecida Santos
Alves, Angela Gilda
de Paula, Cácia Régia
de Lima, Flavio Henrique Alves
de Moura, Veidma Siqueira
de Menezes, José Elmo
Brasil, Virginia Visconde
Barbosa, Maria Alves
Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study
title Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study
title_full Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study
title_fullStr Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study
title_full_unstemmed Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study
title_short Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study
title_sort caregivers of individuals with cancer in the covid-19 pandemic: a phenomenological study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8751169/
https://www.ncbi.nlm.nih.gov/pubmed/35010444
http://dx.doi.org/10.3390/ijerph19010185
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