Cargando…
Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study
Caregivers of individuals with cancer in the COVID-19 pandemic are faced with the demands of cancer and the health needs produced by it, along with their own health and self-care needs, and the uncertainties of expectations and risks. A qualitative analytical phenomenological study with caregivers o...
Autores principales: | , , , , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2021
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8751169/ https://www.ncbi.nlm.nih.gov/pubmed/35010444 http://dx.doi.org/10.3390/ijerph19010185 |
_version_ | 1784631627866963968 |
---|---|
author | Salha, Leila Abou Silva, Julio Cesar Souza Martins, Cleusa Alves Araújo, Cristiane Soares da Costa da Silva, Edinamar Aparecida Santos Alves, Angela Gilda de Paula, Cácia Régia de Lima, Flavio Henrique Alves de Moura, Veidma Siqueira de Menezes, José Elmo Brasil, Virginia Visconde Barbosa, Maria Alves |
author_facet | Salha, Leila Abou Silva, Julio Cesar Souza Martins, Cleusa Alves Araújo, Cristiane Soares da Costa da Silva, Edinamar Aparecida Santos Alves, Angela Gilda de Paula, Cácia Régia de Lima, Flavio Henrique Alves de Moura, Veidma Siqueira de Menezes, José Elmo Brasil, Virginia Visconde Barbosa, Maria Alves |
author_sort | Salha, Leila Abou |
collection | PubMed |
description | Caregivers of individuals with cancer in the COVID-19 pandemic are faced with the demands of cancer and the health needs produced by it, along with their own health and self-care needs, and the uncertainties of expectations and risks. A qualitative analytical phenomenological study with caregivers of individuals with cancer registered at the state referral hospital supplying medications, who answered the sociodemographic assessment questionnaires and semi-structured questions about their feelings and perceptions in the COVID-19 pandemic. Bardin’s content analysis was used, with methodological quality assessed using SRQR Standards for Reporting Qualitative Research and the MAXQDA software. Most of the caregivers are women, married, Catholic, of low income and education, aged between 30 and 60 years, optimistic, comply with health guidelines regarding social distancing, use of masks, and routine hand hygiene, do not practice regular physical activities, mention concern for their own physical and financial survival, and that of their family. The main need identified in the affective sphere was to reframe contact with family members, seeking to strengthen the bonds of affection. The feeling of emotional vulnerability shows the importance of building effective public policies for social support consistent with the improvement of health care for this population. |
format | Online Article Text |
id | pubmed-8751169 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-87511692022-01-12 Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study Salha, Leila Abou Silva, Julio Cesar Souza Martins, Cleusa Alves Araújo, Cristiane Soares da Costa da Silva, Edinamar Aparecida Santos Alves, Angela Gilda de Paula, Cácia Régia de Lima, Flavio Henrique Alves de Moura, Veidma Siqueira de Menezes, José Elmo Brasil, Virginia Visconde Barbosa, Maria Alves Int J Environ Res Public Health Article Caregivers of individuals with cancer in the COVID-19 pandemic are faced with the demands of cancer and the health needs produced by it, along with their own health and self-care needs, and the uncertainties of expectations and risks. A qualitative analytical phenomenological study with caregivers of individuals with cancer registered at the state referral hospital supplying medications, who answered the sociodemographic assessment questionnaires and semi-structured questions about their feelings and perceptions in the COVID-19 pandemic. Bardin’s content analysis was used, with methodological quality assessed using SRQR Standards for Reporting Qualitative Research and the MAXQDA software. Most of the caregivers are women, married, Catholic, of low income and education, aged between 30 and 60 years, optimistic, comply with health guidelines regarding social distancing, use of masks, and routine hand hygiene, do not practice regular physical activities, mention concern for their own physical and financial survival, and that of their family. The main need identified in the affective sphere was to reframe contact with family members, seeking to strengthen the bonds of affection. The feeling of emotional vulnerability shows the importance of building effective public policies for social support consistent with the improvement of health care for this population. MDPI 2021-12-24 /pmc/articles/PMC8751169/ /pubmed/35010444 http://dx.doi.org/10.3390/ijerph19010185 Text en © 2021 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Salha, Leila Abou Silva, Julio Cesar Souza Martins, Cleusa Alves Araújo, Cristiane Soares da Costa da Silva, Edinamar Aparecida Santos Alves, Angela Gilda de Paula, Cácia Régia de Lima, Flavio Henrique Alves de Moura, Veidma Siqueira de Menezes, José Elmo Brasil, Virginia Visconde Barbosa, Maria Alves Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study |
title | Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study |
title_full | Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study |
title_fullStr | Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study |
title_full_unstemmed | Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study |
title_short | Caregivers of Individuals with Cancer in the COVID-19 Pandemic: A Phenomenological Study |
title_sort | caregivers of individuals with cancer in the covid-19 pandemic: a phenomenological study |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8751169/ https://www.ncbi.nlm.nih.gov/pubmed/35010444 http://dx.doi.org/10.3390/ijerph19010185 |
work_keys_str_mv | AT salhaleilaabou caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy AT silvajuliocesarsouza caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy AT martinscleusaalves caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy AT araujocristianesoaresdacosta caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy AT dasilvaedinamaraparecidasantos caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy AT alvesangelagilda caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy AT depaulacaciaregia caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy AT delimaflaviohenriquealves caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy AT demouraveidmasiqueira caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy AT demenezesjoseelmo caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy AT brasilvirginiavisconde caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy AT barbosamariaalves caregiversofindividualswithcancerinthecovid19pandemicaphenomenologicalstudy |