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The Social Course of Fibromyalgia: Resisting Processes of Marginalisation
This sociological article reports an empirical study into the lived experience of fibromyalgia. It includes 28 participants (26 women, 2 men) with a formal diagnosis of fibromyalgia. Data collection consisted of the completion of an identity box project and subsequent interviews. Data analysis follo...
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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MDPI
2021
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Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8751202/ https://www.ncbi.nlm.nih.gov/pubmed/35010593 http://dx.doi.org/10.3390/ijerph19010333 |
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author | Brown, Nicole |
author_facet | Brown, Nicole |
author_sort | Brown, Nicole |
collection | PubMed |
description | This sociological article reports an empirical study into the lived experience of fibromyalgia. It includes 28 participants (26 women, 2 men) with a formal diagnosis of fibromyalgia. Data collection consisted of the completion of an identity box project and subsequent interviews. Data analysis followed the principles of iterative, inductive, semantic thematic analysis, and led to the identification of four major themes: the role of the social in making sense of the experience, the process of redefining lifegoals, the refusal to accept fibromyalgia as a diagnosis, and the consideration of identifying as a patient. These themes in turn demonstrate four forms of resistance against processes of marginalisation amongst those who have been diagnosed with fibromyalgia: (1) the incorporation of societal expectations and norms into their life-stories; (2) the re-making the lifeworld at a cerebral level through redefining reality and creating a new, socially acceptable reality; (3) the active rejection of the fibromyalgia diagnosis; and (4) the employment of active and pro-active countermeasures to assuming the sick role. |
format | Online Article Text |
id | pubmed-8751202 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-87512022022-01-12 The Social Course of Fibromyalgia: Resisting Processes of Marginalisation Brown, Nicole Int J Environ Res Public Health Article This sociological article reports an empirical study into the lived experience of fibromyalgia. It includes 28 participants (26 women, 2 men) with a formal diagnosis of fibromyalgia. Data collection consisted of the completion of an identity box project and subsequent interviews. Data analysis followed the principles of iterative, inductive, semantic thematic analysis, and led to the identification of four major themes: the role of the social in making sense of the experience, the process of redefining lifegoals, the refusal to accept fibromyalgia as a diagnosis, and the consideration of identifying as a patient. These themes in turn demonstrate four forms of resistance against processes of marginalisation amongst those who have been diagnosed with fibromyalgia: (1) the incorporation of societal expectations and norms into their life-stories; (2) the re-making the lifeworld at a cerebral level through redefining reality and creating a new, socially acceptable reality; (3) the active rejection of the fibromyalgia diagnosis; and (4) the employment of active and pro-active countermeasures to assuming the sick role. MDPI 2021-12-29 /pmc/articles/PMC8751202/ /pubmed/35010593 http://dx.doi.org/10.3390/ijerph19010333 Text en © 2021 by the author. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Brown, Nicole The Social Course of Fibromyalgia: Resisting Processes of Marginalisation |
title | The Social Course of Fibromyalgia: Resisting Processes of Marginalisation |
title_full | The Social Course of Fibromyalgia: Resisting Processes of Marginalisation |
title_fullStr | The Social Course of Fibromyalgia: Resisting Processes of Marginalisation |
title_full_unstemmed | The Social Course of Fibromyalgia: Resisting Processes of Marginalisation |
title_short | The Social Course of Fibromyalgia: Resisting Processes of Marginalisation |
title_sort | social course of fibromyalgia: resisting processes of marginalisation |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8751202/ https://www.ncbi.nlm.nih.gov/pubmed/35010593 http://dx.doi.org/10.3390/ijerph19010333 |
work_keys_str_mv | AT brownnicole thesocialcourseoffibromyalgiaresistingprocessesofmarginalisation AT brownnicole socialcourseoffibromyalgiaresistingprocessesofmarginalisation |