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What constitutes ‘good’ home care for people with dementia? An investigation of the views of home care service recipients and providers
BACKGROUND: Our objective was to explore what people receiving and providing care consider to be ‘good’ in-home care for people living with dementia. METHODS: We conducted 36 in-depth interviews and two focus groups with key stakeholders in Australia in the first quarter of 2018. Participants includ...
Autores principales: | , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8751242/ https://www.ncbi.nlm.nih.gov/pubmed/35016640 http://dx.doi.org/10.1186/s12877-021-02727-4 |
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author | Goh, Anita M. Y. Polacsek, Meg Malta, Sue Doyle, Colleen Hallam, Brendan Gahan, Luke Low, Lee Fay Cooper, Claudia Livingston, Gill Panayiotou, Anita Loi, Samantha M. Omori, Maho Savvas, Steven Burton, Jason Ames, David Scherer, Samuel C. Chau, Nadia Roberts, Stefanie Winbolt, Margaret Batchelor, Frances Dow, Briony |
author_facet | Goh, Anita M. Y. Polacsek, Meg Malta, Sue Doyle, Colleen Hallam, Brendan Gahan, Luke Low, Lee Fay Cooper, Claudia Livingston, Gill Panayiotou, Anita Loi, Samantha M. Omori, Maho Savvas, Steven Burton, Jason Ames, David Scherer, Samuel C. Chau, Nadia Roberts, Stefanie Winbolt, Margaret Batchelor, Frances Dow, Briony |
author_sort | Goh, Anita M. Y. |
collection | PubMed |
description | BACKGROUND: Our objective was to explore what people receiving and providing care consider to be ‘good’ in-home care for people living with dementia. METHODS: We conducted 36 in-depth interviews and two focus groups with key stakeholders in Australia in the first quarter of 2018. Participants included those receiving care (4 people living with dementia, 15 family carers) or providing care (9 case managers, 5 service managers, 10 home care workers). Qualitative thematic analysis was guided by Braun and Clarke’s six-step approach. RESULTS: Consensus was reached across all groups on five themes considered as important for good in-home dementia care: 1) Home care workers’ understanding of dementia and its impact; 2) Home care workers’ demonstrating person-centred care and empathy in their care relationship with their client; 3) Good relationships and communication between care worker, person with dementia and family carers; 4) Home care workers’ knowing positive practical strategies for changed behaviours; 5) Effective workplace policies and workforce culture. The results contributed to the co-design of a dementia specific training program for home care workers. CONCLUSIONS: It is crucial to consider the views and opinions of each stakeholder group involved in providing/receiving dementia care from home care workers, to inform workforce training, education program design and service design. Results can be used to inform and empower home care providers, policy, and related decision makers to guide the delivery of improved home care services. TRIAL REGISTRATION: ACTRN 12619000251123. |
format | Online Article Text |
id | pubmed-8751242 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-87512422022-01-11 What constitutes ‘good’ home care for people with dementia? An investigation of the views of home care service recipients and providers Goh, Anita M. Y. Polacsek, Meg Malta, Sue Doyle, Colleen Hallam, Brendan Gahan, Luke Low, Lee Fay Cooper, Claudia Livingston, Gill Panayiotou, Anita Loi, Samantha M. Omori, Maho Savvas, Steven Burton, Jason Ames, David Scherer, Samuel C. Chau, Nadia Roberts, Stefanie Winbolt, Margaret Batchelor, Frances Dow, Briony BMC Geriatr Research BACKGROUND: Our objective was to explore what people receiving and providing care consider to be ‘good’ in-home care for people living with dementia. METHODS: We conducted 36 in-depth interviews and two focus groups with key stakeholders in Australia in the first quarter of 2018. Participants included those receiving care (4 people living with dementia, 15 family carers) or providing care (9 case managers, 5 service managers, 10 home care workers). Qualitative thematic analysis was guided by Braun and Clarke’s six-step approach. RESULTS: Consensus was reached across all groups on five themes considered as important for good in-home dementia care: 1) Home care workers’ understanding of dementia and its impact; 2) Home care workers’ demonstrating person-centred care and empathy in their care relationship with their client; 3) Good relationships and communication between care worker, person with dementia and family carers; 4) Home care workers’ knowing positive practical strategies for changed behaviours; 5) Effective workplace policies and workforce culture. The results contributed to the co-design of a dementia specific training program for home care workers. CONCLUSIONS: It is crucial to consider the views and opinions of each stakeholder group involved in providing/receiving dementia care from home care workers, to inform workforce training, education program design and service design. Results can be used to inform and empower home care providers, policy, and related decision makers to guide the delivery of improved home care services. TRIAL REGISTRATION: ACTRN 12619000251123. BioMed Central 2022-01-11 /pmc/articles/PMC8751242/ /pubmed/35016640 http://dx.doi.org/10.1186/s12877-021-02727-4 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Goh, Anita M. Y. Polacsek, Meg Malta, Sue Doyle, Colleen Hallam, Brendan Gahan, Luke Low, Lee Fay Cooper, Claudia Livingston, Gill Panayiotou, Anita Loi, Samantha M. Omori, Maho Savvas, Steven Burton, Jason Ames, David Scherer, Samuel C. Chau, Nadia Roberts, Stefanie Winbolt, Margaret Batchelor, Frances Dow, Briony What constitutes ‘good’ home care for people with dementia? An investigation of the views of home care service recipients and providers |
title | What constitutes ‘good’ home care for people with dementia? An investigation of the views of home care service recipients and providers |
title_full | What constitutes ‘good’ home care for people with dementia? An investigation of the views of home care service recipients and providers |
title_fullStr | What constitutes ‘good’ home care for people with dementia? An investigation of the views of home care service recipients and providers |
title_full_unstemmed | What constitutes ‘good’ home care for people with dementia? An investigation of the views of home care service recipients and providers |
title_short | What constitutes ‘good’ home care for people with dementia? An investigation of the views of home care service recipients and providers |
title_sort | what constitutes ‘good’ home care for people with dementia? an investigation of the views of home care service recipients and providers |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8751242/ https://www.ncbi.nlm.nih.gov/pubmed/35016640 http://dx.doi.org/10.1186/s12877-021-02727-4 |
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