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Investigation on Quality of Life and Economic Burden of Children with Cerebral Palsy in Changzhou

Based on the data of children with cerebral palsy (CP) in Changzhou obtained by the Disabled Persons' Federation, this study sampled some children with CP and investigated their survival status, treatment cost, and family burden so as to provide scientific decision-making basis and policy sugge...

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Autores principales: Bian, Chaorong, Peng, Feng, Guo, Haibin, Chen, Kejin
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Hindawi 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8752206/
https://www.ncbi.nlm.nih.gov/pubmed/35028115
http://dx.doi.org/10.1155/2022/1519689
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author Bian, Chaorong
Peng, Feng
Guo, Haibin
Chen, Kejin
author_facet Bian, Chaorong
Peng, Feng
Guo, Haibin
Chen, Kejin
author_sort Bian, Chaorong
collection PubMed
description Based on the data of children with cerebral palsy (CP) in Changzhou obtained by the Disabled Persons' Federation, this study sampled some children with CP and investigated their survival status, treatment cost, and family burden so as to provide scientific decision-making basis and policy suggestions for coping with disease hazards and improving children's quality of life. In this study, a simple random sampling method was used to conduct household surveys of the selected children with CP. The economic burden of CP is measured by direct and indirect methods, and the quality of life of patients of children with CP and their families is analyzed qualitatively and quantitatively by the EuroQol Five Dimensions (EQ-5D) Questionnaire. The average family economic burden of each case of CP in Changzhou was about 4,188,500 yuan, of which the direct medical burden was 205,800 yuan and the indirect economic burden was 3,982,700 yuan. The socioeconomic burden of CP in Changzhou is as high as about 2.244 billion yuan. From the EQ-5D measurement results of 55 children with CP, the average index score was 0.423, which was lower than the national general population level. The proportions of patients with CP who have problems in the five aspects of action, self-care, daily activities, pain/discomfort, and anxiety/depression are 72.73%, 81.82%, 81.82%, 83.64%, and 92.73%, respectively, which are significantly higher than those of the national general population. The average score of the Visual Analogue Scale (VAS) is 58.09, which is significantly lower than the national general population level. The only major factor affecting the quality of life of patients with CP and their families is the health status represented by the EQ-5D score. To liberate and develop the labor ability of patients and their direct caregivers through clinical treatment, rehabilitation, and special education is the most effective way to reduce the socioeconomic burden of CP. Relevant government departments should perform their duties, integrate social assistance resources, implement early intervention, and launch targeted support and assistance policy.
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spelling pubmed-87522062022-01-12 Investigation on Quality of Life and Economic Burden of Children with Cerebral Palsy in Changzhou Bian, Chaorong Peng, Feng Guo, Haibin Chen, Kejin J Healthc Eng Research Article Based on the data of children with cerebral palsy (CP) in Changzhou obtained by the Disabled Persons' Federation, this study sampled some children with CP and investigated their survival status, treatment cost, and family burden so as to provide scientific decision-making basis and policy suggestions for coping with disease hazards and improving children's quality of life. In this study, a simple random sampling method was used to conduct household surveys of the selected children with CP. The economic burden of CP is measured by direct and indirect methods, and the quality of life of patients of children with CP and their families is analyzed qualitatively and quantitatively by the EuroQol Five Dimensions (EQ-5D) Questionnaire. The average family economic burden of each case of CP in Changzhou was about 4,188,500 yuan, of which the direct medical burden was 205,800 yuan and the indirect economic burden was 3,982,700 yuan. The socioeconomic burden of CP in Changzhou is as high as about 2.244 billion yuan. From the EQ-5D measurement results of 55 children with CP, the average index score was 0.423, which was lower than the national general population level. The proportions of patients with CP who have problems in the five aspects of action, self-care, daily activities, pain/discomfort, and anxiety/depression are 72.73%, 81.82%, 81.82%, 83.64%, and 92.73%, respectively, which are significantly higher than those of the national general population. The average score of the Visual Analogue Scale (VAS) is 58.09, which is significantly lower than the national general population level. The only major factor affecting the quality of life of patients with CP and their families is the health status represented by the EQ-5D score. To liberate and develop the labor ability of patients and their direct caregivers through clinical treatment, rehabilitation, and special education is the most effective way to reduce the socioeconomic burden of CP. Relevant government departments should perform their duties, integrate social assistance resources, implement early intervention, and launch targeted support and assistance policy. Hindawi 2022-01-04 /pmc/articles/PMC8752206/ /pubmed/35028115 http://dx.doi.org/10.1155/2022/1519689 Text en Copyright © 2022 Chaorong Bian et al. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Bian, Chaorong
Peng, Feng
Guo, Haibin
Chen, Kejin
Investigation on Quality of Life and Economic Burden of Children with Cerebral Palsy in Changzhou
title Investigation on Quality of Life and Economic Burden of Children with Cerebral Palsy in Changzhou
title_full Investigation on Quality of Life and Economic Burden of Children with Cerebral Palsy in Changzhou
title_fullStr Investigation on Quality of Life and Economic Burden of Children with Cerebral Palsy in Changzhou
title_full_unstemmed Investigation on Quality of Life and Economic Burden of Children with Cerebral Palsy in Changzhou
title_short Investigation on Quality of Life and Economic Burden of Children with Cerebral Palsy in Changzhou
title_sort investigation on quality of life and economic burden of children with cerebral palsy in changzhou
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8752206/
https://www.ncbi.nlm.nih.gov/pubmed/35028115
http://dx.doi.org/10.1155/2022/1519689
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