Cargando…
Guideline for feedback of individual genetic research findings for genomics research in Africa
As human genomics research in Africa continues to generate large amounts of data, ethical issues arise regarding how actionable genetic information is shared with research participants. The Human Heredity and Health in Africa Consortium (H3Africa) Ethics and Community Engagement Working group acknow...
Autores principales: | Matimba, Alice, Ali, Stuart, Littler, Katherine, Madden, Ebony, Marshall, Patricia, McCurdy, Sheryl, Nembaware, Victoria, Rodriguez, Laura, Seeley, Janet, Tindana, Paulina, Yakubu, Aminu, de Vries, Jantina |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BMJ Publishing Group
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8753388/ https://www.ncbi.nlm.nih.gov/pubmed/35017180 http://dx.doi.org/10.1136/bmjgh-2021-007184 |
Ejemplares similares
-
Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model
por: Tindana, Paulina, et al.
Publicado: (2019) -
Model framework for governance of genomic research and biobanking in Africa – a content description
por: Yakubu, Aminu, et al.
Publicado: (2018) -
Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries
por: de Vries, Jantina, et al.
Publicado: (2017) -
Addressing ethical issues in H3Africa research – the views of research ethics committee members
por: de Vries, Jantina, et al.
Publicado: (2015) -
Informed consent in genomic research and biobanking: taking feedback of findings seriously
por: Tindana, Paulina, et al.
Publicado: (2020)