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National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project
BACKGROUND: In the SARS-CoV-2 pandemic, general and specialist Palliative Care (PC) plays an essential role in health care, contributing to symptom control, psycho-social support, and providing support in complex decision making. Numbers of COVID-19 related deaths have recently increased demanding m...
| Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2022
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8756412/ https://www.ncbi.nlm.nih.gov/pubmed/35027041 http://dx.doi.org/10.1186/s12904-021-00898-w |
| _version_ | 1784632561996136448 |
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| author | Bausewein, C. Hodiamont, F. Berges, N. Ullrich, A. Gerlach, C. Oechsle, K. Pauli, B. Weber, J. Stiel, S. Schneider, N. Krumm, N. Rolke, R. Gebel, C. Jansky, M. Nauck, F. Wedding, U. van Oorschot, B. Roch, C. Werner, L. Fischer, M. Schallenburger, M. Reuters, M. C. Schwartz, J. Neukirchen, M. Gülay, A. Maus, K. Jaspers, B. Radbruch, L. Heckel, M. Klinger, I. Ostgathe, C. Kriesen, U. Junghanß, C. Lehmann, E. Gesell, D. Gauder, S. Boehlke, C. Becker, G. Pralong, A. Strupp, J. Leisse, C. Schloesser, K. Voltz, R. Jung, N. Simon, S. T. |
| author_facet | Bausewein, C. Hodiamont, F. Berges, N. Ullrich, A. Gerlach, C. Oechsle, K. Pauli, B. Weber, J. Stiel, S. Schneider, N. Krumm, N. Rolke, R. Gebel, C. Jansky, M. Nauck, F. Wedding, U. van Oorschot, B. Roch, C. Werner, L. Fischer, M. Schallenburger, M. Reuters, M. C. Schwartz, J. Neukirchen, M. Gülay, A. Maus, K. Jaspers, B. Radbruch, L. Heckel, M. Klinger, I. Ostgathe, C. Kriesen, U. Junghanß, C. Lehmann, E. Gesell, D. Gauder, S. Boehlke, C. Becker, G. Pralong, A. Strupp, J. Leisse, C. Schloesser, K. Voltz, R. Jung, N. Simon, S. T. |
| author_sort | Bausewein, C. |
| collection | PubMed |
| description | BACKGROUND: In the SARS-CoV-2 pandemic, general and specialist Palliative Care (PC) plays an essential role in health care, contributing to symptom control, psycho-social support, and providing support in complex decision making. Numbers of COVID-19 related deaths have recently increased demanding more palliative care input. Also, the pandemic impacts on palliative care for non-COVID-19 patients. Strategies on the care for seriously ill and dying people in pandemic times are lacking. Therefore, the program ‘Palliative care in Pandemics’ (PallPan) aims to develop and consent a national pandemic plan for the care of seriously ill and dying adults and their informal carers in pandemics including (a) guidance for generalist and specialist palliative care of patients with and without SARS-CoV-2 infections on the micro, meso and macro level, (b) collection and development of information material for an online platform, and (c) identification of variables and research questions on palliative care in pandemics for the national pandemic cohort network (NAPKON). METHODS: Mixed-methods project including ten work packages conducting (online) surveys and qualitative interviews to explore and describe i) experiences and burden of patients (with/without SARS-CoV-2 infection) and their relatives, ii) experiences, challenges and potential solutions of health care professionals, stakeholders and decision makers during the SARS-CoV-2 pandemic. The work package results inform the development of a consensus-based guidance. In addition, best practice examples and relevant literature will be collected and variables for data collection identified. DISCUSSION: For a future “pandemic preparedness” national and international recommendations and concepts for the care of severely ill and dying people are necessary considering both generalist and specialist palliative care in the home care and inpatient setting. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12904-021-00898-w. |
| format | Online Article Text |
| id | pubmed-8756412 |
| institution | National Center for Biotechnology Information |
| language | English |
| publishDate | 2022 |
| publisher | BioMed Central |
| record_format | MEDLINE/PubMed |
| spelling | pubmed-87564122022-01-13 National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project Bausewein, C. Hodiamont, F. Berges, N. Ullrich, A. Gerlach, C. Oechsle, K. Pauli, B. Weber, J. Stiel, S. Schneider, N. Krumm, N. Rolke, R. Gebel, C. Jansky, M. Nauck, F. Wedding, U. van Oorschot, B. Roch, C. Werner, L. Fischer, M. Schallenburger, M. Reuters, M. C. Schwartz, J. Neukirchen, M. Gülay, A. Maus, K. Jaspers, B. Radbruch, L. Heckel, M. Klinger, I. Ostgathe, C. Kriesen, U. Junghanß, C. Lehmann, E. Gesell, D. Gauder, S. Boehlke, C. Becker, G. Pralong, A. Strupp, J. Leisse, C. Schloesser, K. Voltz, R. Jung, N. Simon, S. T. BMC Palliat Care Study Protocol BACKGROUND: In the SARS-CoV-2 pandemic, general and specialist Palliative Care (PC) plays an essential role in health care, contributing to symptom control, psycho-social support, and providing support in complex decision making. Numbers of COVID-19 related deaths have recently increased demanding more palliative care input. Also, the pandemic impacts on palliative care for non-COVID-19 patients. Strategies on the care for seriously ill and dying people in pandemic times are lacking. Therefore, the program ‘Palliative care in Pandemics’ (PallPan) aims to develop and consent a national pandemic plan for the care of seriously ill and dying adults and their informal carers in pandemics including (a) guidance for generalist and specialist palliative care of patients with and without SARS-CoV-2 infections on the micro, meso and macro level, (b) collection and development of information material for an online platform, and (c) identification of variables and research questions on palliative care in pandemics for the national pandemic cohort network (NAPKON). METHODS: Mixed-methods project including ten work packages conducting (online) surveys and qualitative interviews to explore and describe i) experiences and burden of patients (with/without SARS-CoV-2 infection) and their relatives, ii) experiences, challenges and potential solutions of health care professionals, stakeholders and decision makers during the SARS-CoV-2 pandemic. The work package results inform the development of a consensus-based guidance. In addition, best practice examples and relevant literature will be collected and variables for data collection identified. DISCUSSION: For a future “pandemic preparedness” national and international recommendations and concepts for the care of severely ill and dying people are necessary considering both generalist and specialist palliative care in the home care and inpatient setting. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12904-021-00898-w. BioMed Central 2022-01-13 /pmc/articles/PMC8756412/ /pubmed/35027041 http://dx.doi.org/10.1186/s12904-021-00898-w Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
| spellingShingle | Study Protocol Bausewein, C. Hodiamont, F. Berges, N. Ullrich, A. Gerlach, C. Oechsle, K. Pauli, B. Weber, J. Stiel, S. Schneider, N. Krumm, N. Rolke, R. Gebel, C. Jansky, M. Nauck, F. Wedding, U. van Oorschot, B. Roch, C. Werner, L. Fischer, M. Schallenburger, M. Reuters, M. C. Schwartz, J. Neukirchen, M. Gülay, A. Maus, K. Jaspers, B. Radbruch, L. Heckel, M. Klinger, I. Ostgathe, C. Kriesen, U. Junghanß, C. Lehmann, E. Gesell, D. Gauder, S. Boehlke, C. Becker, G. Pralong, A. Strupp, J. Leisse, C. Schloesser, K. Voltz, R. Jung, N. Simon, S. T. National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project |
| title | National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project |
| title_full | National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project |
| title_fullStr | National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project |
| title_full_unstemmed | National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project |
| title_short | National strategy for palliative care of severely ill and dying people and their relatives in pandemics (PallPan) in Germany - study protocol of a mixed-methods project |
| title_sort | national strategy for palliative care of severely ill and dying people and their relatives in pandemics (pallpan) in germany - study protocol of a mixed-methods project |
| topic | Study Protocol |
| url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8756412/ https://www.ncbi.nlm.nih.gov/pubmed/35027041 http://dx.doi.org/10.1186/s12904-021-00898-w |
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