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Developing a toolkit for increasing the participation of black, Asian and minority ethnic communities in health and social care research
BACKGROUND: It is recognised that Black, Asian and Minority Ethnic (BAME) populations are generally underrepresented in research studies. The key objective of this work was to develop an evidence based, practical toolkit to help researchers maximise recruitment of BAME groups in research. METHODS: D...
Autores principales: | , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8758375/ https://www.ncbi.nlm.nih.gov/pubmed/35026996 http://dx.doi.org/10.1186/s12874-021-01489-2 |
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author | Farooqi, Azhar Jutlla, Karan Raghavan, Raghu Wilson, Andrew Uddin, Mohammud Shams Akroyd, Carol Patel, Naina Campbell-Morris, Pamela Peggy Farooqi, Aaisha Tasneem |
author_facet | Farooqi, Azhar Jutlla, Karan Raghavan, Raghu Wilson, Andrew Uddin, Mohammud Shams Akroyd, Carol Patel, Naina Campbell-Morris, Pamela Peggy Farooqi, Aaisha Tasneem |
author_sort | Farooqi, Azhar |
collection | PubMed |
description | BACKGROUND: It is recognised that Black, Asian and Minority Ethnic (BAME) populations are generally underrepresented in research studies. The key objective of this work was to develop an evidence based, practical toolkit to help researchers maximise recruitment of BAME groups in research. METHODS: Development of the toolkit was an iterative process overseen by an expert steering group. Key steps included a detailed literature review, feedback from focus groups (including researchers and BAME community members) and further workshops and communication with participants to review the draft and final versions. RESULTS: Poor recruitment of BAME populations in research is due to complex reasons, these include factors such as inadequate attention to recruitment strategies and planning, poor engagement with communities and individuals due to issues such as cultural competency of researchers, historical poor experience of participating in research, and lack of links with community networks. Other factors include language issues, relevant expertise in research team and a lack of adequate resources that might be required in recruitment of BAME populations. CONCLUSIONS: A toolkit was developed with key sections providing guidance on planning research and ensuring adequate engagement of communities and individuals. Together with sections suggesting how the research team can address training needs and adopt best practice. Researchers highlighted the issue of funding and how best to address BAME recruitment in grant applications, so a section on preparing a grant application was also included. The final toolkit document is practical, and includes examples of best practice and ‘top tips’ for researchers. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12874-021-01489-2. |
format | Online Article Text |
id | pubmed-8758375 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-87583752022-01-14 Developing a toolkit for increasing the participation of black, Asian and minority ethnic communities in health and social care research Farooqi, Azhar Jutlla, Karan Raghavan, Raghu Wilson, Andrew Uddin, Mohammud Shams Akroyd, Carol Patel, Naina Campbell-Morris, Pamela Peggy Farooqi, Aaisha Tasneem BMC Med Res Methodol Research BACKGROUND: It is recognised that Black, Asian and Minority Ethnic (BAME) populations are generally underrepresented in research studies. The key objective of this work was to develop an evidence based, practical toolkit to help researchers maximise recruitment of BAME groups in research. METHODS: Development of the toolkit was an iterative process overseen by an expert steering group. Key steps included a detailed literature review, feedback from focus groups (including researchers and BAME community members) and further workshops and communication with participants to review the draft and final versions. RESULTS: Poor recruitment of BAME populations in research is due to complex reasons, these include factors such as inadequate attention to recruitment strategies and planning, poor engagement with communities and individuals due to issues such as cultural competency of researchers, historical poor experience of participating in research, and lack of links with community networks. Other factors include language issues, relevant expertise in research team and a lack of adequate resources that might be required in recruitment of BAME populations. CONCLUSIONS: A toolkit was developed with key sections providing guidance on planning research and ensuring adequate engagement of communities and individuals. Together with sections suggesting how the research team can address training needs and adopt best practice. Researchers highlighted the issue of funding and how best to address BAME recruitment in grant applications, so a section on preparing a grant application was also included. The final toolkit document is practical, and includes examples of best practice and ‘top tips’ for researchers. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12874-021-01489-2. BioMed Central 2022-01-14 /pmc/articles/PMC8758375/ /pubmed/35026996 http://dx.doi.org/10.1186/s12874-021-01489-2 Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Farooqi, Azhar Jutlla, Karan Raghavan, Raghu Wilson, Andrew Uddin, Mohammud Shams Akroyd, Carol Patel, Naina Campbell-Morris, Pamela Peggy Farooqi, Aaisha Tasneem Developing a toolkit for increasing the participation of black, Asian and minority ethnic communities in health and social care research |
title | Developing a toolkit for increasing the participation of black, Asian and minority ethnic communities in health and social care research |
title_full | Developing a toolkit for increasing the participation of black, Asian and minority ethnic communities in health and social care research |
title_fullStr | Developing a toolkit for increasing the participation of black, Asian and minority ethnic communities in health and social care research |
title_full_unstemmed | Developing a toolkit for increasing the participation of black, Asian and minority ethnic communities in health and social care research |
title_short | Developing a toolkit for increasing the participation of black, Asian and minority ethnic communities in health and social care research |
title_sort | developing a toolkit for increasing the participation of black, asian and minority ethnic communities in health and social care research |
topic | Research |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8758375/ https://www.ncbi.nlm.nih.gov/pubmed/35026996 http://dx.doi.org/10.1186/s12874-021-01489-2 |
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