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Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome

The aim of this study was to explore the lived experience of interstitial cystitis (IC)/painful bladder syndrome (PBS). A phenomenological approach with emphasis on reflection and openness was adopted. Twenty women diagnosed with IC an average of nine years prior to data collection produced a writte...

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Detalles Bibliográficos
Autores principales: Kirkham, Angela, Swainston, Katherine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8772249/
https://www.ncbi.nlm.nih.gov/pubmed/33514302
http://dx.doi.org/10.1177/0193945921990730
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author Kirkham, Angela
Swainston, Katherine
author_facet Kirkham, Angela
Swainston, Katherine
author_sort Kirkham, Angela
collection PubMed
description The aim of this study was to explore the lived experience of interstitial cystitis (IC)/painful bladder syndrome (PBS). A phenomenological approach with emphasis on reflection and openness was adopted. Twenty women diagnosed with IC an average of nine years prior to data collection produced a written account of their experiences. The textual data was analyzed using thematic analysis. Four themes were derived from data analysis: diagnostic uncertainty; restrictions and limitations on life; self-management; and interpersonal relationships and social support. Women reported issues in receiving a diagnosis of IC, undergoing numerous diagnostic tests, and experiencing multiple referrals. Having undergone numerous treatments with limited success, women sought information and management strategies outside of standard medical care and reported a negative impact on sexual and social relationships. The findings illustrate the complex nature of women’s experiences and the physical and psychological impacts and effects of IC/PBS on women’s daily lives.
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spelling pubmed-87722492022-01-21 Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome Kirkham, Angela Swainston, Katherine West J Nurs Res Research Reports The aim of this study was to explore the lived experience of interstitial cystitis (IC)/painful bladder syndrome (PBS). A phenomenological approach with emphasis on reflection and openness was adopted. Twenty women diagnosed with IC an average of nine years prior to data collection produced a written account of their experiences. The textual data was analyzed using thematic analysis. Four themes were derived from data analysis: diagnostic uncertainty; restrictions and limitations on life; self-management; and interpersonal relationships and social support. Women reported issues in receiving a diagnosis of IC, undergoing numerous diagnostic tests, and experiencing multiple referrals. Having undergone numerous treatments with limited success, women sought information and management strategies outside of standard medical care and reported a negative impact on sexual and social relationships. The findings illustrate the complex nature of women’s experiences and the physical and psychological impacts and effects of IC/PBS on women’s daily lives. SAGE Publications 2021-01-29 2022-02 /pmc/articles/PMC8772249/ /pubmed/33514302 http://dx.doi.org/10.1177/0193945921990730 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Research Reports
Kirkham, Angela
Swainston, Katherine
Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome
title Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome
title_full Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome
title_fullStr Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome
title_full_unstemmed Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome
title_short Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome
title_sort women’s experiences of interstitial cystitis/painful bladder syndrome
topic Research Reports
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8772249/
https://www.ncbi.nlm.nih.gov/pubmed/33514302
http://dx.doi.org/10.1177/0193945921990730
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