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Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome
The aim of this study was to explore the lived experience of interstitial cystitis (IC)/painful bladder syndrome (PBS). A phenomenological approach with emphasis on reflection and openness was adopted. Twenty women diagnosed with IC an average of nine years prior to data collection produced a writte...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
SAGE Publications
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8772249/ https://www.ncbi.nlm.nih.gov/pubmed/33514302 http://dx.doi.org/10.1177/0193945921990730 |
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author | Kirkham, Angela Swainston, Katherine |
author_facet | Kirkham, Angela Swainston, Katherine |
author_sort | Kirkham, Angela |
collection | PubMed |
description | The aim of this study was to explore the lived experience of interstitial cystitis (IC)/painful bladder syndrome (PBS). A phenomenological approach with emphasis on reflection and openness was adopted. Twenty women diagnosed with IC an average of nine years prior to data collection produced a written account of their experiences. The textual data was analyzed using thematic analysis. Four themes were derived from data analysis: diagnostic uncertainty; restrictions and limitations on life; self-management; and interpersonal relationships and social support. Women reported issues in receiving a diagnosis of IC, undergoing numerous diagnostic tests, and experiencing multiple referrals. Having undergone numerous treatments with limited success, women sought information and management strategies outside of standard medical care and reported a negative impact on sexual and social relationships. The findings illustrate the complex nature of women’s experiences and the physical and psychological impacts and effects of IC/PBS on women’s daily lives. |
format | Online Article Text |
id | pubmed-8772249 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2021 |
publisher | SAGE Publications |
record_format | MEDLINE/PubMed |
spelling | pubmed-87722492022-01-21 Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome Kirkham, Angela Swainston, Katherine West J Nurs Res Research Reports The aim of this study was to explore the lived experience of interstitial cystitis (IC)/painful bladder syndrome (PBS). A phenomenological approach with emphasis on reflection and openness was adopted. Twenty women diagnosed with IC an average of nine years prior to data collection produced a written account of their experiences. The textual data was analyzed using thematic analysis. Four themes were derived from data analysis: diagnostic uncertainty; restrictions and limitations on life; self-management; and interpersonal relationships and social support. Women reported issues in receiving a diagnosis of IC, undergoing numerous diagnostic tests, and experiencing multiple referrals. Having undergone numerous treatments with limited success, women sought information and management strategies outside of standard medical care and reported a negative impact on sexual and social relationships. The findings illustrate the complex nature of women’s experiences and the physical and psychological impacts and effects of IC/PBS on women’s daily lives. SAGE Publications 2021-01-29 2022-02 /pmc/articles/PMC8772249/ /pubmed/33514302 http://dx.doi.org/10.1177/0193945921990730 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by/4.0/This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). |
spellingShingle | Research Reports Kirkham, Angela Swainston, Katherine Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome |
title | Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome |
title_full | Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome |
title_fullStr | Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome |
title_full_unstemmed | Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome |
title_short | Women’s Experiences of Interstitial Cystitis/Painful Bladder Syndrome |
title_sort | women’s experiences of interstitial cystitis/painful bladder syndrome |
topic | Research Reports |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8772249/ https://www.ncbi.nlm.nih.gov/pubmed/33514302 http://dx.doi.org/10.1177/0193945921990730 |
work_keys_str_mv | AT kirkhamangela womensexperiencesofinterstitialcystitispainfulbladdersyndrome AT swainstonkatherine womensexperiencesofinterstitialcystitispainfulbladdersyndrome |