Using Informatics to Build a Digital Health Footprint of Patients Living With Inherited Metabolic Disorders Identified by Newborn Screening

Newborn screening is a process identifying people with inherited metabolic disorders (IMDs) at birth, but these patients are often lost to follow-up, and limited data on their long-term needs are available to advocate for policies that will help this vulnerable community. Using informatics best prac...

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Detalles Bibliográficos
Autores principales: Singh, Rani H., Brown, Sheereen J., Hale, Piper M., Narlow, Kristen, Gurung, Saran, Salvatore, Mary L., Tchamako, Jimica K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer Health, Inc. 2022
Materias:
Research Reports
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8781221/
https://www.ncbi.nlm.nih.gov/pubmed/33208722
http://dx.doi.org/10.1097/PHH.0000000000001250

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