Cargando…

Qualitative measures that assess functional disability and quality of life in ALS

BACKGROUND: Selection of appropriate trial endpoints and outcome measures is particularly important in rare disease and rapidly progressing disease such as amyotrophic lateral sclerosis (ALS) where the challenges to conducting clinical trials, are substantial: patient and disease heterogeneity, limi...

Descripción completa

Detalles Bibliográficos
Autores principales:	Hartmaier, Susan L., Rhodes, Thomas, Cook, Suzanne F., Schlusser, Courtney, Chen, Chao, Han, Steve, Zach, Neta, Murthy, Venkatesha, Davé, Shreya
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	BioMed Central 2022
Materias:	Review
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8781297/ https://www.ncbi.nlm.nih.gov/pubmed/35062955 http://dx.doi.org/10.1186/s12955-022-01919-9

Ejemplares similares

A Descriptive Review of Global Real World Evidence Efforts to Advance Drug Discovery and Clinical Development in Amyotrophic Lateral Sclerosis
por: Cook, Suzanne F., et al.
Publicado: (2021)

Disability and quality of life in patients with fibromyalgia
por: Verbunt, Jeanine A, et al.
Publicado: (2008)

Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study
por: Fernández-Ávalos, María Inmaculada, et al.
Publicado: (2020)

The perspectives of professional caregivers on quality of life of persons with profound intellectual and multiple disabilities: a qualitative study
por: Nieuwenhuijse, A.M., et al.
Publicado: (2020)

Quality of Life and Disability Among Migraine Patients: A Single-Center Study in AlAhsa, Saudi Arabia
por: Al Ghadeer, Hussain A, et al.
Publicado: (2021)

The impact of a low cost wheelchair on the quality of life of the disabled in the developing world
por: Shore, Susan, et al.
Publicado: (2012)

Quality of life predictors in physically disabled people
por: Rajati, Fatemeh, et al.
Publicado: (2018)

Migraine Disability, Quality of Life, and Its Predictors
por: R., Pradeep, et al.
Publicado: (2020)

Quality of life in people with intellectual and developmental disabilities
por: Gómez, Laura E.
Publicado: (2022)

Integration of palliative care in services for children with life-limiting neurodevelopmental disabilities and their families: a Delphi study
por: Guerin, Suzanne, et al.
Publicado: (2020)

Loneliness in online students with disabilities: qualitative investigation for experience, understanding and solutions
por: Kotera, Yasuhiro, et al.
Publicado: (2021)

The hitchhiker's guide to Python: best practices for development
por: Reitz, Kenneth, et al.
Publicado: (2016)

The direction of research into visual disability and quality of life in glaucoma
por: Glen, Fiona C, et al.
Publicado: (2011)

Disability and quality of life in patients with different forms of migraine
por: D'Amico, Domenico, et al.
Publicado: (2015)

Quality of life and disability in males with alcohol dependence syndrome
por: Patkar, Prajakta, et al.
Publicado: (2019)

The impact of disability, fatigue and sleep quality on the quality of life in multiple sclerosis
por: Ghaem, Haleh, et al.
Publicado: (2008)

Cancer Patients’ Perspectives and Experiences of Chemotherapy-Induced Myelosuppression and Its Impact on Daily Life
por: Epstein, Robert S, et al.
Publicado: (2021)

Specialised ALS care and Quality of Life
por: van den Berg, Jan-Paul
Publicado: (2006)

Focus on disability-free life expectancy: implications for health-related quality of life
por: Galvin, Ashley E., et al.
Publicado: (2021)

Development and standardization of Mysore Tridosha scale
por: Shilpa, S., et al.
Publicado: (2011)

Understanding personality from Ayurvedic perspective for psychological assessment: A case
por: Shilpa, S, et al.
Publicado: (2011)

Transitioning to a life with disability in rural South Africa: A qualitative study
por: Sadiki, M. Christinah, et al.
Publicado: (2021)

Quantifying Quality of Life and Disability of Patients with Advanced Schistosomiasis Japonica
por: Jia, Tie-Wu, et al.
Publicado: (2011)

Impact of Multimorbidity on Disability and Quality of Life in the Spanish Older Population
por: Garin, Noe, et al.
Publicado: (2014)

Disability and Quality of Life of Subjects with Bipolar Affective Disorder in Remission
por: Thomas, Soumya P., et al.
Publicado: (2016)

Perceptions of the impact of disability and impairment on health, quality of life and capability
por: Bray, Nathan, et al.
Publicado: (2019)

Influence of Scuba Diving on the Quality of Life of People with Physical Disabilities
por: Henrykowska, Gabriela, et al.
Publicado: (2022)

Factors influencing quality of life in caregivers of adolescents with developmental disabilities
por: Joung, Joung Woo
Publicado: (2022)

Quality of life, disability, and clinical variables in amyotrophic lateral sclerosis
por: Alencar, Mariana Asmar, et al.
Publicado: (2021)

Disability status and quality of life in multiple sclerosis: non-linearity of the Expanded Disability Status Scale (EDSS)
por: Twork, Sabine, et al.
Publicado: (2010)

Conceptualization, operationalization, and content validity of the EQOL-questionnaire measuring quality of life and participation for persons with disabilities
por: Jespersen, Louise Norman, et al.
Publicado: (2018)

The social and ethical issues of online learning during the pandemic and beyond
por: Bhattacharya, Sonali, et al.
Publicado: (2022)

Barriers and Facilitators to Accessing Health Services: A Qualitative Study Amongst People with Disabilities in Cameroon and India
por: Zuurmond, Maria, et al.
Publicado: (2019)

Differences in levels of disability and quality of life between genders in schizophrenia remission
por: Kujur, Nishi Suchita, et al.
Publicado: (2010)

Health-related quality of life of women with disabilities in relation to their employment status
por: Barišin, Andreja, et al.
Publicado: (2011)

Correlation between functional disability and quality of life in patients with adhesive capsulitis
por: Fernandes, Marcos Rassi
Publicado: (2015)

Quality of life and coping strategies of caregivers of children with physical and mental disabilities
por: Ganjiwale, Deepak, et al.
Publicado: (2016)

Untreated depression and tuberculosis treatment outcomes, quality of life and disability, Ethiopia
por: Ambaw, Fentie, et al.
Publicado: (2018)

Disability and quality of life 20 years after traumatic brain injury
por: Andelic, Nada, et al.
Publicado: (2018)

Age Categories Differences in Subjective Quality of Life of Women with Physical Disabilities
por: Nemček, Dagmar, et al.
Publicado: (2021)

Cannot write session to /tmp/vufind_sessions/sess_ngeeeb67o0j7oviltb2s6oj0pb