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Protocol for an exploratory, longitudinal single case study of a novel palliative care rehabilitative service

Background: Early access to rehabilitation can improve quality of life for those with life-limiting illnesses and is highlighted as a core component of the Adult Palliative Care Services Model of Care for Ireland. Despite this, palliative rehabilitation remains under-utilised and under-developed. In...

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Autores principales: Ní Chéileachair, Fódhla N., Johnston, Bridget M., Payne, Cathy, Cahill, Fiona, Mannion, Lisa, McGirr, Lisa, Ryan, Karen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: F1000 Research Limited 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8790707/
https://www.ncbi.nlm.nih.gov/pubmed/35118229
http://dx.doi.org/10.12688/hrbopenres.13461.2
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author Ní Chéileachair, Fódhla N.
Johnston, Bridget M.
Payne, Cathy
Cahill, Fiona
Mannion, Lisa
McGirr, Lisa
Ryan, Karen
author_facet Ní Chéileachair, Fódhla N.
Johnston, Bridget M.
Payne, Cathy
Cahill, Fiona
Mannion, Lisa
McGirr, Lisa
Ryan, Karen
author_sort Ní Chéileachair, Fódhla N.
collection PubMed
description Background: Early access to rehabilitation can improve quality of life for those with life-limiting illnesses and is highlighted as a core component of the Adult Palliative Care Services Model of Care for Ireland. Despite this, palliative rehabilitation remains under-utilised and under-developed. In 2020, the Sláintecare Integration Fund provided opportunity to pilot a novel rehabilitative palliative care service, “Palliat Rehab”. This protocol proposes a case study, which aims to advance understanding of the form, content, and delivery of the pilot service. Methods: A prospective, longitudinal, mixed-methods, case study design will be used to describe the service and to explore the experiences of patients, informal carers and clinicians. Additionally, data collection instruments will be tested and the utility of outcome measures will be examined. Data will be collected from documentary, survey, and interview sources. Quantitative data will be analysed using descriptive statistics, including chi-square tests for categorical variables, Mann-Whitney U tests for ordinal data, and t-tests/ ANOVA for continuous data. Qualitative data will be analysed using thematic analysis. Conclusions: New pathways are required to advance service provision to ensure that patients receive the ‘right care, in the right place, at the right time’. This protocol outlines a case study which will aim to develop current understanding of the implementation and delivery of a novel rehabilitative palliative care service in Ireland and will consider its potential contribution to the achievement of Sláintecare goals. Investigating the service within its environmental context will lead to a better understanding of ‘how’ and ‘why’ things happen. Findings will be used to inform efforts to further develop and tailor the intervention.
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spelling pubmed-87907072022-02-02 Protocol for an exploratory, longitudinal single case study of a novel palliative care rehabilitative service Ní Chéileachair, Fódhla N. Johnston, Bridget M. Payne, Cathy Cahill, Fiona Mannion, Lisa McGirr, Lisa Ryan, Karen HRB Open Res Study Protocol Background: Early access to rehabilitation can improve quality of life for those with life-limiting illnesses and is highlighted as a core component of the Adult Palliative Care Services Model of Care for Ireland. Despite this, palliative rehabilitation remains under-utilised and under-developed. In 2020, the Sláintecare Integration Fund provided opportunity to pilot a novel rehabilitative palliative care service, “Palliat Rehab”. This protocol proposes a case study, which aims to advance understanding of the form, content, and delivery of the pilot service. Methods: A prospective, longitudinal, mixed-methods, case study design will be used to describe the service and to explore the experiences of patients, informal carers and clinicians. Additionally, data collection instruments will be tested and the utility of outcome measures will be examined. Data will be collected from documentary, survey, and interview sources. Quantitative data will be analysed using descriptive statistics, including chi-square tests for categorical variables, Mann-Whitney U tests for ordinal data, and t-tests/ ANOVA for continuous data. Qualitative data will be analysed using thematic analysis. Conclusions: New pathways are required to advance service provision to ensure that patients receive the ‘right care, in the right place, at the right time’. This protocol outlines a case study which will aim to develop current understanding of the implementation and delivery of a novel rehabilitative palliative care service in Ireland and will consider its potential contribution to the achievement of Sláintecare goals. Investigating the service within its environmental context will lead to a better understanding of ‘how’ and ‘why’ things happen. Findings will be used to inform efforts to further develop and tailor the intervention. F1000 Research Limited 2022-05-06 /pmc/articles/PMC8790707/ /pubmed/35118229 http://dx.doi.org/10.12688/hrbopenres.13461.2 Text en Copyright: © 2022 Ní Chéileachair FN et al. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Study Protocol
Ní Chéileachair, Fódhla N.
Johnston, Bridget M.
Payne, Cathy
Cahill, Fiona
Mannion, Lisa
McGirr, Lisa
Ryan, Karen
Protocol for an exploratory, longitudinal single case study of a novel palliative care rehabilitative service
title Protocol for an exploratory, longitudinal single case study of a novel palliative care rehabilitative service
title_full Protocol for an exploratory, longitudinal single case study of a novel palliative care rehabilitative service
title_fullStr Protocol for an exploratory, longitudinal single case study of a novel palliative care rehabilitative service
title_full_unstemmed Protocol for an exploratory, longitudinal single case study of a novel palliative care rehabilitative service
title_short Protocol for an exploratory, longitudinal single case study of a novel palliative care rehabilitative service
title_sort protocol for an exploratory, longitudinal single case study of a novel palliative care rehabilitative service
topic Study Protocol
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8790707/
https://www.ncbi.nlm.nih.gov/pubmed/35118229
http://dx.doi.org/10.12688/hrbopenres.13461.2
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