Impact of progressive familial intrahepatic cholestasis on caregivers: caregiver-reported outcomes from the multinational PICTURE study

BACKGROUND: Progressive familial intrahepatic cholestasis (PFIC) is a spectrum of rare genetic diseases characterized by inadequate bile secretion that requires substantial ongoing care, though little research is published in this area. We report health-related quality of life (HRQoL) and work produ...

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Detalles Bibliográficos
Autores principales: Mighiu, Claudia, O’Hara, Sonia, Ferri Grazzi, Enrico, Murray, Karen F., Schattenberg, Jörn M., Ventura, Emily, Karakaidos, Melanie, Taylor, Alison, Brrang, Harpreet, Dhawan, Anil, Willemse, Jose, Finnegan, Alan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8809495/
https://www.ncbi.nlm.nih.gov/pubmed/35109890
http://dx.doi.org/10.1186/s13023-022-02177-0

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