Cargando…

The impact of COVID-19 on Brazilian children with MPS: Advocate group perspective

Detalles Bibliográficos
Autores principales:	Oliveira, Maria Carolina F.A., Yund, Brianna D., Grant, Nathan, Eisengart, Julie B., Giugliani, Roberto
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Academic Press 2022
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8811532/ http://dx.doi.org/10.1016/j.ymgme.2021.11.238

Ejemplares similares

A longitudinal study of emotional adjustment, quality of life and adaptive function in attenuated MPS II
por: Shapiro, Elsa G., et al.
Publicado: (2016)

Differences in MPS I and MPS II Disease Manifestations
por: Hampe, Christiane S., et al.
Publicado: (2021)

The natural history of MPS I: global perspectives from the MPS I Registry
por: Beck, Michael, et al.
Publicado: (2014)

Detection of Mosaic Variants in Mothers of MPS II Patients by Next Generation Sequencing
por: Oliveira Netto, Alice Brinckmann, et al.
Publicado: (2021)

Perspectives of an SRHR advocate on the impact of the Global Gag Rule in Kenya
por: Opondo, Evelyne
Publicado: (2020)

Advocating for group interaction in the age of COVID-19
por: Järvelä, Sanna, et al.
Publicado: (2020)

P15-15. Advocates' perspectives on community engagement in the HVTN 505
por: Warren, M, et al.
Publicado: (2009)

REFLECTIONS FROM THE PERSPECTIVE OF AN ADVOCATE AND CASE MANAGER
por: Keibler, Tracy
Publicado: (2019)

Neonatal Screening for MPS Disorders in Latin America: A Survey of Pilot Initiatives
por: Kubaski, Francyne, et al.
Publicado: (2020)

Genotype‐phenotype relationships in mucopolysaccharidosis type I (MPS I): Insights from the International MPS I Registry
por: Clarke, Lorne A., et al.
Publicado: (2019)

Advocacy for active transport: advocate and city council perspectives
por: Richards, Rosalina, et al.
Publicado: (2010)

Perspective of an Advocate - political advocacy in African cancer dialogue
por: Asante-Shongwe, Kwanele
Publicado: (2013)

Perspective of an advocate: best practices for Community Outreach Advocacy
por: Kandusi, Emmanuel J
Publicado: (2013)

Patient advocate perspectives on involvement in HTA: an international snapshot
por: Scott, Anna Mae, et al.
Publicado: (2017)

“I Know How to Advocate”: Parents’ Experiences in Advocating for Children and Youth Diagnosed With Autism Spectrum Disorder
por: Smith-Young, Joanne, et al.
Publicado: (2022)

The Devil's Advocate
por: Woods, Caspian
Publicado: (2013)

The Volunteers' Advocate
por: Bingley, Lady
Publicado: (1970)

Terri Grodzicker: advocate and influencer of impactful science
por: Berger, Shelley L.
Publicado: (2023)

No impact of previous evidence advocating openness to talk to children about their imminent death
por: Kreicbergs, Ulrika, et al.
Publicado: (2020)

Patient advocates respond to ‘Utilizing Patient Advocates…’ by Feeney et al
por: Riggare, Sara, et al.
Publicado: (2020)

Perspective of an advocate: a case and framework for research advocacy in Africa
por: Scroggins, Mary J
Publicado: (2013)

Perspectives of U.S. harm reduction advocates on persuasive message strategies
por: White, Sarah A., et al.
Publicado: (2023)

Diagnosis and treatment trends in mucopolysaccharidosis I: findings from the MPS I Registry
por: D’Aco, Kristin, et al.
Publicado: (2012)

Why advocating for children and vaccine equity is not zero-sum
por: Myles, David E.
Publicado: (2022)

The Nurse and Her Advocates
Publicado: (1921)

Advocating for the Health Worker
por: McDiarmid, Melissa
Publicado: (2019)

Family Caregivers as Advocates
por: Whiting, C Grace
Publicado: (2021)

Advocating for health and climate
por: Allan, Jen Iris
Publicado: (2023)

Iowa Farmer’s Advocate
Publicado: (1847)

Considerations on the best utilization of the MPS by the counter groups
por: Petrucci, G
Publicado: (1969)

Impact of COVID-19 on treatment and follow-up in patients with selected lysosomal diseases in a Brazilian center
por: Schwartz, Ida V.D., et al.
Publicado: (2021)

Advocating for a New Residency Application Process: A Student Perspective
por: Badiee, Ryan K., et al.
Publicado: (2022)

The composer's advocate : a radical orthodoxy for musicians /
por: Leinsdorf, Erich, 1912-1993
Publicado: (1981)

Long-term experience with enzyme replacement therapy (ERT) in MPS II patients with a severe phenotype: an international case series
por: Lampe, Christina, et al.
Publicado: (2014)

Advocating Global Health Security
por: Davies, Sara E.
Publicado: (2016)

Advanced Practitioners as Allies and Advocates
por: Faiman, Beth
Publicado: (2021)

The Christian Advocate and the Keeley Cure
Publicado: (1895)

Clinical findings in Brazilian patients with adult GM1 gangliosidosis
por: Giugliani, Luciana, et al.
Publicado: (2019)

When Clinical Trials Are Compromised: A Perspective from a Patient Advocate
por: Mayer, Musa
Publicado: (2005)

World Health Organization advocates for a healthy diet for all: Global perspective
por: Shrivastava, Saurabh R., et al.
Publicado: (2016)

Cannot write session to /tmp/vufind_sessions/sess_jlv9j0soqn7f6u6dem18r09dcp