International federation of genomic medicine databases using GA4GH standards

We promote a shared vision and guide for how and when to federate genomic and health-related data sharing, enabling connections and insights across independent, secure databases. The GA4GH encourages a federated approach wherein data providers have the mandate and resources to share, but where data...

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Detalles Bibliográficos
Autores principales: Thorogood, Adrian, Rehm, Heidi L., Goodhand, Peter, Page, Angela J.H., Joly, Yann, Baudis, Michael, Rambla, Jordi, Navarro, Arcadi, Nyronen, Tommi H., Linden, Mikael, Dove, Edward S., Fiume, Marc, Brudno, Michael, Cline, Melissa S., Birney, Ewan
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2021
Materias:
Commentary
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8813094/
https://www.ncbi.nlm.nih.gov/pubmed/35128509
http://dx.doi.org/10.1016/j.xgen.2021.100032
Descripción
Sumario:We promote a shared vision and guide for how and when to federate genomic and health-related data sharing, enabling connections and insights across independent, secure databases. The GA4GH encourages a federated approach wherein data providers have the mandate and resources to share, but where data cannot move for legal or technical reasons. We recommend a federated approach to connect national genomics initiatives into a global network and precision medicine resource.

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