Recommended respiratory tests are not routinely performed for mucopolysaccharidosis patients

Recommended respiratory tests used as major outcomes in clinical trials for MPS treatment cannot be routinely performed in everyday practice because neurocognitive impairment and motor skill difficulties affect compliance for most MPS patients https://bit.ly/3G4qp8U

Detalles Bibliográficos
Autores principales: Denamur, Sophie, Touati, Guy, Debelleix, Stéphane, Damaj, Léna, Barth, Magalie, Tardieu, Marine, Gorce, Magali, Broué, Pierre, Lacombe, Didier, Labarthe, François
Formato: Online Artículo Texto
Lenguaje:English
Publicado: European Respiratory Society 2021
Materias:
Research Letter
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8819247/
https://www.ncbi.nlm.nih.gov/pubmed/35141320
http://dx.doi.org/10.1183/23120541.00567-2021
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author Denamur, Sophie
Touati, Guy
Debelleix, Stéphane
Damaj, Léna
Barth, Magalie
Tardieu, Marine
Gorce, Magali
Broué, Pierre
Lacombe, Didier
Labarthe, François
author_facet Denamur, Sophie
Touati, Guy
Debelleix, Stéphane
Damaj, Léna
Barth, Magalie
Tardieu, Marine
Gorce, Magali
Broué, Pierre
Lacombe, Didier
Labarthe, François
author_sort Denamur, Sophie
collection PubMed
description Recommended respiratory tests used as major outcomes in clinical trials for MPS treatment cannot be routinely performed in everyday practice because neurocognitive impairment and motor skill difficulties affect compliance for most MPS patients https://bit.ly/3G4qp8U
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spelling pubmed-88192472022-02-08 Recommended respiratory tests are not routinely performed for mucopolysaccharidosis patients Denamur, Sophie Touati, Guy Debelleix, Stéphane Damaj, Léna Barth, Magalie Tardieu, Marine Gorce, Magali Broué, Pierre Lacombe, Didier Labarthe, François ERJ Open Res Research Letter Recommended respiratory tests used as major outcomes in clinical trials for MPS treatment cannot be routinely performed in everyday practice because neurocognitive impairment and motor skill difficulties affect compliance for most MPS patients https://bit.ly/3G4qp8U European Respiratory Society 2021-02-07 /pmc/articles/PMC8819247/ /pubmed/35141320 http://dx.doi.org/10.1183/23120541.00567-2021 Text en Copyright ©The authors 2022 https://creativecommons.org/licenses/by-nc/4.0/This version is distributed under the terms of the Creative Commons Attribution Non-Commercial Licence 4.0. For commercial reproduction rights and permissions contact permissions@ersnet.org (mailto:permissions@ersnet.org)
spellingShingle Research Letter
Denamur, Sophie
Touati, Guy
Debelleix, Stéphane
Damaj, Léna
Barth, Magalie
Tardieu, Marine
Gorce, Magali
Broué, Pierre
Lacombe, Didier
Labarthe, François
Recommended respiratory tests are not routinely performed for mucopolysaccharidosis patients
title Recommended respiratory tests are not routinely performed for mucopolysaccharidosis patients
title_full Recommended respiratory tests are not routinely performed for mucopolysaccharidosis patients
title_fullStr Recommended respiratory tests are not routinely performed for mucopolysaccharidosis patients
title_full_unstemmed Recommended respiratory tests are not routinely performed for mucopolysaccharidosis patients
title_short Recommended respiratory tests are not routinely performed for mucopolysaccharidosis patients
title_sort recommended respiratory tests are not routinely performed for mucopolysaccharidosis patients
topic Research Letter
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8819247/
https://www.ncbi.nlm.nih.gov/pubmed/35141320
http://dx.doi.org/10.1183/23120541.00567-2021
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