Cargando…
Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat
The translation of research findings into clinical practice is challenging, especially fields like in pediatric rheumatology, where the evidence base is limited, there are few clinical trials, and the conditions are rare and heterogeneous. Implementation science methodologies have been shown to redu...
Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2022
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8822721/ https://www.ncbi.nlm.nih.gov/pubmed/35130904 http://dx.doi.org/10.1186/s12969-022-00665-y |
_version_ | 1784646656824705024 |
---|---|
author | Yildirim-Toruner, Cagri Pooni, Rajdeep Goh, Y. Ingrid Becker-Haimes, Emily Dearing, James W. Fernandez, Maria E. Morgan, Esi M. Parry, Gareth Burnham, Jon M. Ardoin, Stacy P. Barbar-Smiley, Fatima Chang, Joyce C. Chiraseveenuprapund, Peter Del Gaizo, Vincent Eakin, Guy Johnson, Lisa C. Kimura, Yukiko Knight, Andrea M. Kohlheim, Melanie Lawson, Erica F. Lo, Mindy S. Pan, Nancy Ring, Andrea Ronis, Tova Sadun, Rebecca E. Smitherman, Emily A. Taxter, Alysha J. Taylor, Janalee Vehe, Richard K. Vora, Sheetal S. Weiss, Jennifer E. von Scheven, Emily |
author_facet | Yildirim-Toruner, Cagri Pooni, Rajdeep Goh, Y. Ingrid Becker-Haimes, Emily Dearing, James W. Fernandez, Maria E. Morgan, Esi M. Parry, Gareth Burnham, Jon M. Ardoin, Stacy P. Barbar-Smiley, Fatima Chang, Joyce C. Chiraseveenuprapund, Peter Del Gaizo, Vincent Eakin, Guy Johnson, Lisa C. Kimura, Yukiko Knight, Andrea M. Kohlheim, Melanie Lawson, Erica F. Lo, Mindy S. Pan, Nancy Ring, Andrea Ronis, Tova Sadun, Rebecca E. Smitherman, Emily A. Taxter, Alysha J. Taylor, Janalee Vehe, Richard K. Vora, Sheetal S. Weiss, Jennifer E. von Scheven, Emily |
author_sort | Yildirim-Toruner, Cagri |
collection | PubMed |
description | The translation of research findings into clinical practice is challenging, especially fields like in pediatric rheumatology, where the evidence base is limited, there are few clinical trials, and the conditions are rare and heterogeneous. Implementation science methodologies have been shown to reduce the research- to- practice gap in other clinical settings may have similar utility in pediatric rheumatology. This paper describes the key discussion points from the inaugural Childhood Arthritis and Rheumatology Research Alliance Implementation Science retreat held in February 2020. The aim of this report is to synthesize those findings into an Implementation Science Roadmap for pediatric rheumatology research. This roadmap is based on three foundational principles: fostering curiosity and ensuring discovery, integration of research and quality improvement, and patient-centeredness. We include six key steps anchored in the principles of implementation science. Applying this roadmap will enable researchers to evaluate the full range of research activities, from the initial clinical design and evidence acquisition to the application of those findings in pediatric rheumatology clinics and direct patient care. |
format | Online Article Text |
id | pubmed-8822721 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-88227212022-02-08 Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat Yildirim-Toruner, Cagri Pooni, Rajdeep Goh, Y. Ingrid Becker-Haimes, Emily Dearing, James W. Fernandez, Maria E. Morgan, Esi M. Parry, Gareth Burnham, Jon M. Ardoin, Stacy P. Barbar-Smiley, Fatima Chang, Joyce C. Chiraseveenuprapund, Peter Del Gaizo, Vincent Eakin, Guy Johnson, Lisa C. Kimura, Yukiko Knight, Andrea M. Kohlheim, Melanie Lawson, Erica F. Lo, Mindy S. Pan, Nancy Ring, Andrea Ronis, Tova Sadun, Rebecca E. Smitherman, Emily A. Taxter, Alysha J. Taylor, Janalee Vehe, Richard K. Vora, Sheetal S. Weiss, Jennifer E. von Scheven, Emily Pediatr Rheumatol Online J Review The translation of research findings into clinical practice is challenging, especially fields like in pediatric rheumatology, where the evidence base is limited, there are few clinical trials, and the conditions are rare and heterogeneous. Implementation science methodologies have been shown to reduce the research- to- practice gap in other clinical settings may have similar utility in pediatric rheumatology. This paper describes the key discussion points from the inaugural Childhood Arthritis and Rheumatology Research Alliance Implementation Science retreat held in February 2020. The aim of this report is to synthesize those findings into an Implementation Science Roadmap for pediatric rheumatology research. This roadmap is based on three foundational principles: fostering curiosity and ensuring discovery, integration of research and quality improvement, and patient-centeredness. We include six key steps anchored in the principles of implementation science. Applying this roadmap will enable researchers to evaluate the full range of research activities, from the initial clinical design and evidence acquisition to the application of those findings in pediatric rheumatology clinics and direct patient care. BioMed Central 2022-02-07 /pmc/articles/PMC8822721/ /pubmed/35130904 http://dx.doi.org/10.1186/s12969-022-00665-y Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Review Yildirim-Toruner, Cagri Pooni, Rajdeep Goh, Y. Ingrid Becker-Haimes, Emily Dearing, James W. Fernandez, Maria E. Morgan, Esi M. Parry, Gareth Burnham, Jon M. Ardoin, Stacy P. Barbar-Smiley, Fatima Chang, Joyce C. Chiraseveenuprapund, Peter Del Gaizo, Vincent Eakin, Guy Johnson, Lisa C. Kimura, Yukiko Knight, Andrea M. Kohlheim, Melanie Lawson, Erica F. Lo, Mindy S. Pan, Nancy Ring, Andrea Ronis, Tova Sadun, Rebecca E. Smitherman, Emily A. Taxter, Alysha J. Taylor, Janalee Vehe, Richard K. Vora, Sheetal S. Weiss, Jennifer E. von Scheven, Emily Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat |
title | Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat |
title_full | Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat |
title_fullStr | Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat |
title_full_unstemmed | Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat |
title_short | Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat |
title_sort | translating research into practice—implementation recommendations for pediatric rheumatology; proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retreat |
topic | Review |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8822721/ https://www.ncbi.nlm.nih.gov/pubmed/35130904 http://dx.doi.org/10.1186/s12969-022-00665-y |
work_keys_str_mv | AT yildirimtorunercagri translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT poonirajdeep translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT gohyingrid translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT beckerhaimesemily translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT dearingjamesw translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT fernandezmariae translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT morganesim translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT parrygareth translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT burnhamjonm translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT ardoinstacyp translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT barbarsmileyfatima translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT changjoycec translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT chiraseveenuprapundpeter translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT delgaizovincent translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT eakinguy translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT johnsonlisac translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT kimurayukiko translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT knightandream translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT kohlheimmelanie translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT lawsonericaf translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT lomindys translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT pannancy translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT ringandrea translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT ronistova translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT sadunrebeccae translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT smithermanemilya translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT taxteralyshaj translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT taylorjanalee translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT veherichardk translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT vorasheetals translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT weissjennifere translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT vonschevenemily translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat AT translatingresearchintopracticeimplementationrecommendationsforpediatricrheumatologyproceedingsofthechildhoodarthritisandrheumatologyresearchalliance2020implementationscienceretreat |