Cargando…
4144 Identifying the needs of family caregivers of people with dementia to improve service delivery: Bridging a research-practice gap
OBJECTIVES/GOALS: The goal of this mixed methods project is to develop a comprehensive framework of the personal and care-related needs of informal caregivers of people with dementia. This model can be used to enhance targeted delivery of evidence-based services to caregivers in need. METHODS/STUDY...
Autores principales: | , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Cambridge University Press
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8823027/ http://dx.doi.org/10.1017/cts.2020.401 |
_version_ | 1784646728271527936 |
---|---|
author | Moss, Sara A. Gebhardt-Kram, Lauren E. Dabelko-Schoeny, Holly Cheavens, Jennifer |
author_facet | Moss, Sara A. Gebhardt-Kram, Lauren E. Dabelko-Schoeny, Holly Cheavens, Jennifer |
author_sort | Moss, Sara A. |
collection | PubMed |
description | OBJECTIVES/GOALS: The goal of this mixed methods project is to develop a comprehensive framework of the personal and care-related needs of informal caregivers of people with dementia. This model can be used to enhance targeted delivery of evidence-based services to caregivers in need. METHODS/STUDY POPULATION: To create a model of the personal and care-related needs of family caregivers of people with dementia, we conducted semi-structured in-depth interviews with current caregivers (N = 12) and conducted a content analysis of materials related to government reports and evidence-based interventions (N = 28) and existing measures of dementia caregiver needs (N = 54). Content analysis is a systematic qualitative methodology that is used to distill complex source material into content-related categories and is well-suited for both interview data and document data (Elo & Kyngäs, 2008). We identified themes related to caregiver needs through examination of materials within and across source categories. RESULTS/ANTICIPATED RESULTS: We propose a framework of five inter-related need categories: Environmental needs (e.g., transportation, health-care access, financial resources, time), psychological needs (e.g., emotional wellbeing, identity/autonomy, perceived preparedness), social needs (e.g., social support, family dynamics), health-related needs (e.g., health behaviors, sleep), and needs related to the care and functioning of the person with dementia. We also consider how needs and background characteristics transact to influence which services may be of greatest use. In the future, we plan to test this model empirically with a nationally representative sample of caregivers. DISCUSSION/SIGNIFICANCE OF IMPACT: Evidence-based services exist to meet the needs of dementia caregivers. A dearth of models clearly defining caregiver needs limits empirically-based plans for dissemination of services. We have identified a framework of the needs of family caregivers from which to create targeted dissemination plans. |
format | Online Article Text |
id | pubmed-8823027 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Cambridge University Press |
record_format | MEDLINE/PubMed |
spelling | pubmed-88230272022-02-18 4144 Identifying the needs of family caregivers of people with dementia to improve service delivery: Bridging a research-practice gap Moss, Sara A. Gebhardt-Kram, Lauren E. Dabelko-Schoeny, Holly Cheavens, Jennifer J Clin Transl Sci Translational Science, Policy, & Health Outcomes Science OBJECTIVES/GOALS: The goal of this mixed methods project is to develop a comprehensive framework of the personal and care-related needs of informal caregivers of people with dementia. This model can be used to enhance targeted delivery of evidence-based services to caregivers in need. METHODS/STUDY POPULATION: To create a model of the personal and care-related needs of family caregivers of people with dementia, we conducted semi-structured in-depth interviews with current caregivers (N = 12) and conducted a content analysis of materials related to government reports and evidence-based interventions (N = 28) and existing measures of dementia caregiver needs (N = 54). Content analysis is a systematic qualitative methodology that is used to distill complex source material into content-related categories and is well-suited for both interview data and document data (Elo & Kyngäs, 2008). We identified themes related to caregiver needs through examination of materials within and across source categories. RESULTS/ANTICIPATED RESULTS: We propose a framework of five inter-related need categories: Environmental needs (e.g., transportation, health-care access, financial resources, time), psychological needs (e.g., emotional wellbeing, identity/autonomy, perceived preparedness), social needs (e.g., social support, family dynamics), health-related needs (e.g., health behaviors, sleep), and needs related to the care and functioning of the person with dementia. We also consider how needs and background characteristics transact to influence which services may be of greatest use. In the future, we plan to test this model empirically with a nationally representative sample of caregivers. DISCUSSION/SIGNIFICANCE OF IMPACT: Evidence-based services exist to meet the needs of dementia caregivers. A dearth of models clearly defining caregiver needs limits empirically-based plans for dissemination of services. We have identified a framework of the needs of family caregivers from which to create targeted dissemination plans. Cambridge University Press 2020-07-29 /pmc/articles/PMC8823027/ http://dx.doi.org/10.1017/cts.2020.401 Text en © The Association for Clinical and Translational Science 2020 https://creativecommons.org/licenses/by/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Translational Science, Policy, & Health Outcomes Science Moss, Sara A. Gebhardt-Kram, Lauren E. Dabelko-Schoeny, Holly Cheavens, Jennifer 4144 Identifying the needs of family caregivers of people with dementia to improve service delivery: Bridging a research-practice gap |
title | 4144 Identifying the needs of family caregivers of people with dementia to improve service delivery: Bridging a research-practice gap |
title_full | 4144 Identifying the needs of family caregivers of people with dementia to improve service delivery: Bridging a research-practice gap |
title_fullStr | 4144 Identifying the needs of family caregivers of people with dementia to improve service delivery: Bridging a research-practice gap |
title_full_unstemmed | 4144 Identifying the needs of family caregivers of people with dementia to improve service delivery: Bridging a research-practice gap |
title_short | 4144 Identifying the needs of family caregivers of people with dementia to improve service delivery: Bridging a research-practice gap |
title_sort | 4144 identifying the needs of family caregivers of people with dementia to improve service delivery: bridging a research-practice gap |
topic | Translational Science, Policy, & Health Outcomes Science |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8823027/ http://dx.doi.org/10.1017/cts.2020.401 |
work_keys_str_mv | AT mosssaraa 4144identifyingtheneedsoffamilycaregiversofpeoplewithdementiatoimproveservicedeliverybridgingaresearchpracticegap AT gebhardtkramlaurene 4144identifyingtheneedsoffamilycaregiversofpeoplewithdementiatoimproveservicedeliverybridgingaresearchpracticegap AT dabelkoschoenyholly 4144identifyingtheneedsoffamilycaregiversofpeoplewithdementiatoimproveservicedeliverybridgingaresearchpracticegap AT cheavensjennifer 4144identifyingtheneedsoffamilycaregiversofpeoplewithdementiatoimproveservicedeliverybridgingaresearchpracticegap |