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4101 Creating a Culturally Sensitive Report Card for African American (AA) Kidney Transplant Candidates

OBJECTIVES/GOALS: AA are over-represented on the waitlist for kidney transplant and are often unaware of how waitlist acceptance practices differ across transplant programs and influence access to transplant. We will develop a culturally sensitive transplant program report card to communicate these...

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Autores principales: McKinney, Warren, Bruin, Marilyn J., Chu, Sauman, Kasiske, Bertram L., Israni, Ajay K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8823444/
http://dx.doi.org/10.1017/cts.2020.193
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author McKinney, Warren
Bruin, Marilyn J.
Chu, Sauman
Kasiske, Bertram L.
Israni, Ajay K.
author_facet McKinney, Warren
Bruin, Marilyn J.
Chu, Sauman
Kasiske, Bertram L.
Israni, Ajay K.
author_sort McKinney, Warren
collection PubMed
description OBJECTIVES/GOALS: AA are over-represented on the waitlist for kidney transplant and are often unaware of how waitlist acceptance practices differ across transplant programs and influence access to transplant. We will develop a culturally sensitive transplant program report card to communicate these variations. METHODS/STUDY POPULATION: Scientific Registry of Transplant Recipients (SRTR) data will be used to identity clinical factors strongly associated with AA access to transplant. Interviews and focus groups with AA kidney transplant candidates and their families will collect feedback on the SRTR report card and inform the development of the culturally sensitive report card. Additional focus groups will evaluate its effect on knowledge and medical decision making. We will collaborate with the stakeholders, including AA transplant candidates and their families, transplant programs, SRTR, and providers, to identify strategies to disseminate the report card in the AA community RESULTS/ANTICIPATED RESULTS: To date, no investigation has systematically collected feedback on the SRTR transplant program report card from AA candidates to ensure that the tool is accessible and effective in the AA community. We hypothesize that a culturally sensitive report card will improve AA candidates’ knowledge of program factors that impact access to transplant and enable informed decisions about where they pursue a transplant evaluation. The results of this study have the potential to change how AA patients are counselled while seeking transplantation. DISCUSSION/SIGNIFICANCE OF IMPACT: A culturally sensitive report card can reach more AA patients and enable more informed decision making by providing education about differences in transplant programs that may impact their access to transplant. In the future, we will design a trial to evaluate the prototype.
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spelling pubmed-88234442022-02-18 4101 Creating a Culturally Sensitive Report Card for African American (AA) Kidney Transplant Candidates McKinney, Warren Bruin, Marilyn J. Chu, Sauman Kasiske, Bertram L. Israni, Ajay K. J Clin Transl Sci Digital Health/Social Media OBJECTIVES/GOALS: AA are over-represented on the waitlist for kidney transplant and are often unaware of how waitlist acceptance practices differ across transplant programs and influence access to transplant. We will develop a culturally sensitive transplant program report card to communicate these variations. METHODS/STUDY POPULATION: Scientific Registry of Transplant Recipients (SRTR) data will be used to identity clinical factors strongly associated with AA access to transplant. Interviews and focus groups with AA kidney transplant candidates and their families will collect feedback on the SRTR report card and inform the development of the culturally sensitive report card. Additional focus groups will evaluate its effect on knowledge and medical decision making. We will collaborate with the stakeholders, including AA transplant candidates and their families, transplant programs, SRTR, and providers, to identify strategies to disseminate the report card in the AA community RESULTS/ANTICIPATED RESULTS: To date, no investigation has systematically collected feedback on the SRTR transplant program report card from AA candidates to ensure that the tool is accessible and effective in the AA community. We hypothesize that a culturally sensitive report card will improve AA candidates’ knowledge of program factors that impact access to transplant and enable informed decisions about where they pursue a transplant evaluation. The results of this study have the potential to change how AA patients are counselled while seeking transplantation. DISCUSSION/SIGNIFICANCE OF IMPACT: A culturally sensitive report card can reach more AA patients and enable more informed decision making by providing education about differences in transplant programs that may impact their access to transplant. In the future, we will design a trial to evaluate the prototype. Cambridge University Press 2020-07-29 /pmc/articles/PMC8823444/ http://dx.doi.org/10.1017/cts.2020.193 Text en © The Association for Clinical and Translational Science 2020 https://creativecommons.org/licenses/by/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Digital Health/Social Media
McKinney, Warren
Bruin, Marilyn J.
Chu, Sauman
Kasiske, Bertram L.
Israni, Ajay K.
4101 Creating a Culturally Sensitive Report Card for African American (AA) Kidney Transplant Candidates
title 4101 Creating a Culturally Sensitive Report Card for African American (AA) Kidney Transplant Candidates
title_full 4101 Creating a Culturally Sensitive Report Card for African American (AA) Kidney Transplant Candidates
title_fullStr 4101 Creating a Culturally Sensitive Report Card for African American (AA) Kidney Transplant Candidates
title_full_unstemmed 4101 Creating a Culturally Sensitive Report Card for African American (AA) Kidney Transplant Candidates
title_short 4101 Creating a Culturally Sensitive Report Card for African American (AA) Kidney Transplant Candidates
title_sort 4101 creating a culturally sensitive report card for african american (aa) kidney transplant candidates
topic Digital Health/Social Media
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8823444/
http://dx.doi.org/10.1017/cts.2020.193
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