Cargando…

The paradoxes experienced by informal caregivers of people with dementia during the transition from home to a nursing home

BACKGROUND: The transition from home to a nursing home is a common care process experienced by older persons with dementia and their informal caregivers. This transition process is often experienced as fragmented and is paired with negative outcomes for both older persons (e.g. mortality) and inform...

Descripción completa

Detalles Bibliográficos
Autores principales: Groenvynck, Lindsay, de Boer, Bram, Beaulen, Audrey, de Vries, Erica, Hamers, Jan P H, van Achterberg, Theo, van Rossum, Erik, Khemai, Chandni, Meijers, Judith M M, Verbeek, Hilde
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8824707/
http://dx.doi.org/10.1093/ageing/afab241
_version_ 1784647058648465408
author Groenvynck, Lindsay
de Boer, Bram
Beaulen, Audrey
de Vries, Erica
Hamers, Jan P H
van Achterberg, Theo
van Rossum, Erik
Khemai, Chandni
Meijers, Judith M M
Verbeek, Hilde
author_facet Groenvynck, Lindsay
de Boer, Bram
Beaulen, Audrey
de Vries, Erica
Hamers, Jan P H
van Achterberg, Theo
van Rossum, Erik
Khemai, Chandni
Meijers, Judith M M
Verbeek, Hilde
author_sort Groenvynck, Lindsay
collection PubMed
description BACKGROUND: The transition from home to a nursing home is a common care process experienced by older persons with dementia and their informal caregivers. This transition process is often experienced as fragmented and is paired with negative outcomes for both older persons (e.g. mortality) and informal caregivers (e.g. grief). Due to the central role that informal caregivers play, it is crucial to capture their experiences throughout all phases of the transition. METHODS: A secondary data analysis was conducted using an interpretative phenomenological design. A total of 24 informal caregivers of older persons with dementia, moving to a nursing home, participated in in-depth interviews. Data were collected between February 2018 and July 2018 in the Netherlands. Data were analysed using Interpretative Phenomenological Analysis. RESULTS: The transition experiences are characterised by three paradoxes: (i) contradicting emotions during the transition process; (ii) the need for a timely transition versus the need to postpone the transition process and (iii) the need for involvement versus the need for distance. All paradoxes are influenced by the healthcare system. CONCLUSIONS: The identified paradoxes show the impact of the healthcare system and the importance of timely planning/preparing for this transition on the experiences of informal caregivers. In addition, it provides healthcare professionals insight into the thought processes of informal caregivers. Future research can use these paradoxes as a foundation to develop innovations aiming to improve the transition process from home to a nursing home for informal caregivers and, consequently, older persons.
format Online
Article
Text
id pubmed-8824707
institution National Center for Biotechnology Information
language English
publishDate 2022
publisher Oxford University Press
record_format MEDLINE/PubMed
spelling pubmed-88247072022-02-09 The paradoxes experienced by informal caregivers of people with dementia during the transition from home to a nursing home Groenvynck, Lindsay de Boer, Bram Beaulen, Audrey de Vries, Erica Hamers, Jan P H van Achterberg, Theo van Rossum, Erik Khemai, Chandni Meijers, Judith M M Verbeek, Hilde Age Ageing Qualitative Paper BACKGROUND: The transition from home to a nursing home is a common care process experienced by older persons with dementia and their informal caregivers. This transition process is often experienced as fragmented and is paired with negative outcomes for both older persons (e.g. mortality) and informal caregivers (e.g. grief). Due to the central role that informal caregivers play, it is crucial to capture their experiences throughout all phases of the transition. METHODS: A secondary data analysis was conducted using an interpretative phenomenological design. A total of 24 informal caregivers of older persons with dementia, moving to a nursing home, participated in in-depth interviews. Data were collected between February 2018 and July 2018 in the Netherlands. Data were analysed using Interpretative Phenomenological Analysis. RESULTS: The transition experiences are characterised by three paradoxes: (i) contradicting emotions during the transition process; (ii) the need for a timely transition versus the need to postpone the transition process and (iii) the need for involvement versus the need for distance. All paradoxes are influenced by the healthcare system. CONCLUSIONS: The identified paradoxes show the impact of the healthcare system and the importance of timely planning/preparing for this transition on the experiences of informal caregivers. In addition, it provides healthcare professionals insight into the thought processes of informal caregivers. Future research can use these paradoxes as a foundation to develop innovations aiming to improve the transition process from home to a nursing home for informal caregivers and, consequently, older persons. Oxford University Press 2022-02-02 /pmc/articles/PMC8824707/ http://dx.doi.org/10.1093/ageing/afab241 Text en © The Author(s) 2022. Published by Oxford University Press on behalf of the British Geriatrics Society. All rights reserved. For permissions, please email: journals.permissions@oup.com. https://creativecommons.org/licenses/by-nc-nd/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution NonCommercial-NoDerivs licence (https://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial reproduction and distribution of the work, in any medium, provided the original work is not altered or transformed in any way, and that the work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle Qualitative Paper
Groenvynck, Lindsay
de Boer, Bram
Beaulen, Audrey
de Vries, Erica
Hamers, Jan P H
van Achterberg, Theo
van Rossum, Erik
Khemai, Chandni
Meijers, Judith M M
Verbeek, Hilde
The paradoxes experienced by informal caregivers of people with dementia during the transition from home to a nursing home
title The paradoxes experienced by informal caregivers of people with dementia during the transition from home to a nursing home
title_full The paradoxes experienced by informal caregivers of people with dementia during the transition from home to a nursing home
title_fullStr The paradoxes experienced by informal caregivers of people with dementia during the transition from home to a nursing home
title_full_unstemmed The paradoxes experienced by informal caregivers of people with dementia during the transition from home to a nursing home
title_short The paradoxes experienced by informal caregivers of people with dementia during the transition from home to a nursing home
title_sort paradoxes experienced by informal caregivers of people with dementia during the transition from home to a nursing home
topic Qualitative Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8824707/
http://dx.doi.org/10.1093/ageing/afab241
work_keys_str_mv AT groenvyncklindsay theparadoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT deboerbram theparadoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT beaulenaudrey theparadoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT devrieserica theparadoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT hamersjanph theparadoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT vanachterbergtheo theparadoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT vanrossumerik theparadoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT khemaichandni theparadoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT meijersjudithmm theparadoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT verbeekhilde theparadoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT groenvyncklindsay paradoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT deboerbram paradoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT beaulenaudrey paradoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT devrieserica paradoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT hamersjanph paradoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT vanachterbergtheo paradoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT vanrossumerik paradoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT khemaichandni paradoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT meijersjudithmm paradoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome
AT verbeekhilde paradoxesexperiencedbyinformalcaregiversofpeoplewithdementiaduringthetransitionfromhometoanursinghome