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41896 Surveying knowledge of quality of dementia care among Latino caregivers

ABSTRACT IMPACT: This qualitative study describes health system barriers to high-quality care for Latino older adults with Alzheimer’s Disease and Related Dementias OBJECTIVES/GOALS: Compared to non-Latino Whites, Latino older adults are more likely to receive low-quality dementia care such as high-...

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Autores principales: Keller, Michelle S., McCleskey, Sara, Mays, Allison, Sarkisian, Catherine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8827963/
http://dx.doi.org/10.1017/cts.2021.620
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author Keller, Michelle S.
McCleskey, Sara
Mays, Allison
Sarkisian, Catherine
author_facet Keller, Michelle S.
McCleskey, Sara
Mays, Allison
Sarkisian, Catherine
author_sort Keller, Michelle S.
collection PubMed
description ABSTRACT IMPACT: This qualitative study describes health system barriers to high-quality care for Latino older adults with Alzheimer’s Disease and Related Dementias OBJECTIVES/GOALS: Compared to non-Latino Whites, Latino older adults are more likely to receive low-quality dementia care such as high-risk medications or services. Caregivers play a critical role in managing medical care for persons with dementia (PWD). Yet little is known about the perceptions and knowledge of dementia quality of care among Latino caregivers of PWD. METHODS/STUDY POPULATION: We used a qualitative research design and conducted interviews with Latino caregivers of PWD and caregiver advocates. We recruited both from community organizations, senior centers, and clinics. Our interview guide focused on experiences of caregiving, interactions with medical system, and knowledge and experiences managing behavioral and eating problems. We used Grounded Theory methodology for coding and analysis, focusing on contrasting and comparing experiences within and between caregivers and caregiver advocates. RESULTS/ANTICIPATED RESULTS: Preliminary results from interviews with two caregivers and two caregiver advocates illustrate that caregivers of persons with dementia have a difficult time receiving high quality care from primary care clinicians. All participants noted that many primary care doctors didn’t know how to diagnose ADRD and dismissed critical symptoms as part of old age. Caregivers also reported that they wished they had more information on what to expect with ADRD disease progression, noting they received little information from the formal medical care system. With respect to behavioral problems, caregiver advocates noted that primary care doctors often did not provide non-pharmacological alternatives to behavioral problems. DISCUSSION/SIGNIFICANCE OF FINDINGS: Findings from our pilot study demonstrate that there is a clear need to train primary care physicians who serve Latino older adults on ADRD care. Improved diagnosis and management could improve outcomes among Latino older adults with dementia.
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spelling pubmed-88279632022-02-28 41896 Surveying knowledge of quality of dementia care among Latino caregivers Keller, Michelle S. McCleskey, Sara Mays, Allison Sarkisian, Catherine J Clin Transl Sci Health Equity & Community Engagement ABSTRACT IMPACT: This qualitative study describes health system barriers to high-quality care for Latino older adults with Alzheimer’s Disease and Related Dementias OBJECTIVES/GOALS: Compared to non-Latino Whites, Latino older adults are more likely to receive low-quality dementia care such as high-risk medications or services. Caregivers play a critical role in managing medical care for persons with dementia (PWD). Yet little is known about the perceptions and knowledge of dementia quality of care among Latino caregivers of PWD. METHODS/STUDY POPULATION: We used a qualitative research design and conducted interviews with Latino caregivers of PWD and caregiver advocates. We recruited both from community organizations, senior centers, and clinics. Our interview guide focused on experiences of caregiving, interactions with medical system, and knowledge and experiences managing behavioral and eating problems. We used Grounded Theory methodology for coding and analysis, focusing on contrasting and comparing experiences within and between caregivers and caregiver advocates. RESULTS/ANTICIPATED RESULTS: Preliminary results from interviews with two caregivers and two caregiver advocates illustrate that caregivers of persons with dementia have a difficult time receiving high quality care from primary care clinicians. All participants noted that many primary care doctors didn’t know how to diagnose ADRD and dismissed critical symptoms as part of old age. Caregivers also reported that they wished they had more information on what to expect with ADRD disease progression, noting they received little information from the formal medical care system. With respect to behavioral problems, caregiver advocates noted that primary care doctors often did not provide non-pharmacological alternatives to behavioral problems. DISCUSSION/SIGNIFICANCE OF FINDINGS: Findings from our pilot study demonstrate that there is a clear need to train primary care physicians who serve Latino older adults on ADRD care. Improved diagnosis and management could improve outcomes among Latino older adults with dementia. Cambridge University Press 2021-03-31 /pmc/articles/PMC8827963/ http://dx.doi.org/10.1017/cts.2021.620 Text en © The Association for Clinical and Translational Science 2021 https://creativecommons.org/licenses/by/4.0/This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Health Equity & Community Engagement
Keller, Michelle S.
McCleskey, Sara
Mays, Allison
Sarkisian, Catherine
41896 Surveying knowledge of quality of dementia care among Latino caregivers
title 41896 Surveying knowledge of quality of dementia care among Latino caregivers
title_full 41896 Surveying knowledge of quality of dementia care among Latino caregivers
title_fullStr 41896 Surveying knowledge of quality of dementia care among Latino caregivers
title_full_unstemmed 41896 Surveying knowledge of quality of dementia care among Latino caregivers
title_short 41896 Surveying knowledge of quality of dementia care among Latino caregivers
title_sort 41896 surveying knowledge of quality of dementia care among latino caregivers
topic Health Equity & Community Engagement
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8827963/
http://dx.doi.org/10.1017/cts.2021.620
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