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“I Am the Home Care Agency”: The Dementia Family Caregiver Experience Managing Paid Care in the Home
As the locus of long-term care in the United States shifts from institutions to the community, paid caregivers (i.e., home health aides, personal care attendants) are providing more hands-on care to persons with dementia living at home. Yet, little is known about how family caregivers engage with pa...
Autores principales: | , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8834786/ https://www.ncbi.nlm.nih.gov/pubmed/35162335 http://dx.doi.org/10.3390/ijerph19031311 |
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author | Reckrey, Jennifer M. Watman, Deborah Tsui, Emma K. Franzosa, Emily Perez, Sasha Fabius, Chanee D. Ornstein, Katherine A. |
author_facet | Reckrey, Jennifer M. Watman, Deborah Tsui, Emma K. Franzosa, Emily Perez, Sasha Fabius, Chanee D. Ornstein, Katherine A. |
author_sort | Reckrey, Jennifer M. |
collection | PubMed |
description | As the locus of long-term care in the United States shifts from institutions to the community, paid caregivers (i.e., home health aides, personal care attendants) are providing more hands-on care to persons with dementia living at home. Yet, little is known about how family caregivers engage with paid caregivers. We conducted in-depth, semi-structured interviews (n = 15) with family caregivers, of persons living at home with severe dementia, and enriched our findings with data from a second cohort of family caregivers of persons with dementia (n = 9). Whether paid caregivers were hired privately or employed via a Medicaid-funded agency, family caregivers reported that they needed to manage paid caregivers in the home. Core management tasks were day-to-day monitoring and relationship building with family caregivers; training paid caregivers and coordinating care with homecare agencies was also described. In order to support family caregivers of individuals with dementia at home, it is important consider their preferences and skills in order to effectively manage paid caregivers. Support of efforts to build a high-quality paid caregiving workforce has the potential to improve not only care delivered to persons with dementia, but the experiences of their family caregivers. |
format | Online Article Text |
id | pubmed-8834786 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-88347862022-02-12 “I Am the Home Care Agency”: The Dementia Family Caregiver Experience Managing Paid Care in the Home Reckrey, Jennifer M. Watman, Deborah Tsui, Emma K. Franzosa, Emily Perez, Sasha Fabius, Chanee D. Ornstein, Katherine A. Int J Environ Res Public Health Article As the locus of long-term care in the United States shifts from institutions to the community, paid caregivers (i.e., home health aides, personal care attendants) are providing more hands-on care to persons with dementia living at home. Yet, little is known about how family caregivers engage with paid caregivers. We conducted in-depth, semi-structured interviews (n = 15) with family caregivers, of persons living at home with severe dementia, and enriched our findings with data from a second cohort of family caregivers of persons with dementia (n = 9). Whether paid caregivers were hired privately or employed via a Medicaid-funded agency, family caregivers reported that they needed to manage paid caregivers in the home. Core management tasks were day-to-day monitoring and relationship building with family caregivers; training paid caregivers and coordinating care with homecare agencies was also described. In order to support family caregivers of individuals with dementia at home, it is important consider their preferences and skills in order to effectively manage paid caregivers. Support of efforts to build a high-quality paid caregiving workforce has the potential to improve not only care delivered to persons with dementia, but the experiences of their family caregivers. MDPI 2022-01-25 /pmc/articles/PMC8834786/ /pubmed/35162335 http://dx.doi.org/10.3390/ijerph19031311 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Reckrey, Jennifer M. Watman, Deborah Tsui, Emma K. Franzosa, Emily Perez, Sasha Fabius, Chanee D. Ornstein, Katherine A. “I Am the Home Care Agency”: The Dementia Family Caregiver Experience Managing Paid Care in the Home |
title | “I Am the Home Care Agency”: The Dementia Family Caregiver Experience Managing Paid Care in the Home |
title_full | “I Am the Home Care Agency”: The Dementia Family Caregiver Experience Managing Paid Care in the Home |
title_fullStr | “I Am the Home Care Agency”: The Dementia Family Caregiver Experience Managing Paid Care in the Home |
title_full_unstemmed | “I Am the Home Care Agency”: The Dementia Family Caregiver Experience Managing Paid Care in the Home |
title_short | “I Am the Home Care Agency”: The Dementia Family Caregiver Experience Managing Paid Care in the Home |
title_sort | “i am the home care agency”: the dementia family caregiver experience managing paid care in the home |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8834786/ https://www.ncbi.nlm.nih.gov/pubmed/35162335 http://dx.doi.org/10.3390/ijerph19031311 |
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