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Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden

(1) Background: Spouse carers of persons with dementia (PwD) are particularly vulnerable to negative outcomes of care, yet research rarely focuses on their caregiving situation. This study explores factors associated with the positive value and negative impact of caregiving in spouse carers of PwD i...

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Autores principales: Johansson, Marcus F., McKee, Kevin J., Dahlberg, Lena, Summer Meranius, Martina, Williams, Christine L., Marmstål Hammar, Lena
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8835239/
https://www.ncbi.nlm.nih.gov/pubmed/35162811
http://dx.doi.org/10.3390/ijerph19031788
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author Johansson, Marcus F.
McKee, Kevin J.
Dahlberg, Lena
Summer Meranius, Martina
Williams, Christine L.
Marmstål Hammar, Lena
author_facet Johansson, Marcus F.
McKee, Kevin J.
Dahlberg, Lena
Summer Meranius, Martina
Williams, Christine L.
Marmstål Hammar, Lena
author_sort Johansson, Marcus F.
collection PubMed
description (1) Background: Spouse carers of persons with dementia (PwD) are particularly vulnerable to negative outcomes of care, yet research rarely focuses on their caregiving situation. This study explores factors associated with the positive value and negative impact of caregiving in spouse carers of PwD in Sweden. (2) Methods: The study was a cross-sectional questionnaire-based survey, with a convenience sample of spouse carers of PwD (n = 163). The questionnaire addressed: care situation, carer stress, health and social well-being, relationship quality and quality of support, and contained measures of positive value and negative impact of caregiving. (3) Results: Hierarchical regression models explained 63.4% variance in positive value and 63.2% variance in negative impact of caregiving. Three variables were significant in the model of positive value: mutuality, change in emotional closeness following dementia and quality of support. Six variables were significant in the model of negative impact: years in relationship, years as carer, behavioural stress, self-rated health, emotional loneliness and change in physical intimacy following dementia. (4) Conclusions: Support to spouse carers of PwD should address the carer–care-recipient relationship quality, although different aspects of the relationship should be addressed if both the positive value of caregiving is to be enhanced and the negative impact reduced.
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spelling pubmed-88352392022-02-12 Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden Johansson, Marcus F. McKee, Kevin J. Dahlberg, Lena Summer Meranius, Martina Williams, Christine L. Marmstål Hammar, Lena Int J Environ Res Public Health Article (1) Background: Spouse carers of persons with dementia (PwD) are particularly vulnerable to negative outcomes of care, yet research rarely focuses on their caregiving situation. This study explores factors associated with the positive value and negative impact of caregiving in spouse carers of PwD in Sweden. (2) Methods: The study was a cross-sectional questionnaire-based survey, with a convenience sample of spouse carers of PwD (n = 163). The questionnaire addressed: care situation, carer stress, health and social well-being, relationship quality and quality of support, and contained measures of positive value and negative impact of caregiving. (3) Results: Hierarchical regression models explained 63.4% variance in positive value and 63.2% variance in negative impact of caregiving. Three variables were significant in the model of positive value: mutuality, change in emotional closeness following dementia and quality of support. Six variables were significant in the model of negative impact: years in relationship, years as carer, behavioural stress, self-rated health, emotional loneliness and change in physical intimacy following dementia. (4) Conclusions: Support to spouse carers of PwD should address the carer–care-recipient relationship quality, although different aspects of the relationship should be addressed if both the positive value of caregiving is to be enhanced and the negative impact reduced. MDPI 2022-02-04 /pmc/articles/PMC8835239/ /pubmed/35162811 http://dx.doi.org/10.3390/ijerph19031788 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Johansson, Marcus F.
McKee, Kevin J.
Dahlberg, Lena
Summer Meranius, Martina
Williams, Christine L.
Marmstål Hammar, Lena
Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden
title Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden
title_full Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden
title_fullStr Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden
title_full_unstemmed Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden
title_short Negative Impact and Positive Value of Caregiving in Spouse Carers of Persons with Dementia in Sweden
title_sort negative impact and positive value of caregiving in spouse carers of persons with dementia in sweden
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8835239/
https://www.ncbi.nlm.nih.gov/pubmed/35162811
http://dx.doi.org/10.3390/ijerph19031788
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