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Living Kidney Donor Knowledge of Provided Information and Informed Consent: The PRINCE Study †
Background: Informed consent for living kidney donation is paramount, as donors are healthy individuals undergoing surgery for the benefit of others. The informed consent process for living kidney donors is heterogenous, and the question concerns how well they are actually informed. Knowledge assess...
Autores principales: | , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2022
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837079/ https://www.ncbi.nlm.nih.gov/pubmed/35160147 http://dx.doi.org/10.3390/jcm11030698 |
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author | Spoon, Emerentia Q. W. Kortram, Kirsten Ismail, Sohal Y. Nieboer, Daan d’Ancona, Frank C. H. Christiaans, Maarten H. L. Dam, Ruth E. Hofker, Hendrik Sijbrand Hoksbergen, Arjan W. J. van der Pant, Karlijn Ami Toorop, Raechel J. van de Wetering, Jacqueline Ijzermans, Jan N. M. Dor, Frank J. M. F. |
author_facet | Spoon, Emerentia Q. W. Kortram, Kirsten Ismail, Sohal Y. Nieboer, Daan d’Ancona, Frank C. H. Christiaans, Maarten H. L. Dam, Ruth E. Hofker, Hendrik Sijbrand Hoksbergen, Arjan W. J. van der Pant, Karlijn Ami Toorop, Raechel J. van de Wetering, Jacqueline Ijzermans, Jan N. M. Dor, Frank J. M. F. |
author_sort | Spoon, Emerentia Q. W. |
collection | PubMed |
description | Background: Informed consent for living kidney donation is paramount, as donors are healthy individuals undergoing surgery for the benefit of others. The informed consent process for living kidney donors is heterogenous, and the question concerns how well they are actually informed. Knowledge assessments, before and after donor education, can form the basis for a standardized informed consent procedure for live kidney donation. Methods: In this prospective, a multicenter national cohort study conducted in all eight kidney transplant centers in The Netherlands, we assessed the current status of the informed consent practice for live donor nephrectomy. All of the potential living kidney donors in the participating centers were invited to participate. They completed a pop quiz during their first outpatient appointment (Cohort A). Living kidney donors completed the same pop quiz upon admission for donor nephrectomy (Cohort B). Results: In total, 656 pop quizzes were completed (417 in Cohort A, and 239 in Cohort B). The average donor knowledge score was 7.0/25.0 (±3.9, range 0–18) in Cohort A, and 10.5/25.0 (±2.8, range 0–17.5) in Cohort B. Cohort B scored significantly higher on overall knowledge, preparedness, and the individual item scores (p < 0.0001), except for the long-term complications (p = 0.91). Conclusions: Donor knowledge generally improves during the live donor workup, but it is still quite disappointing. Long-term complications, especially, deserve more attention during living kidney donor education. |
format | Online Article Text |
id | pubmed-8837079 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2022 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-88370792022-02-12 Living Kidney Donor Knowledge of Provided Information and Informed Consent: The PRINCE Study † Spoon, Emerentia Q. W. Kortram, Kirsten Ismail, Sohal Y. Nieboer, Daan d’Ancona, Frank C. H. Christiaans, Maarten H. L. Dam, Ruth E. Hofker, Hendrik Sijbrand Hoksbergen, Arjan W. J. van der Pant, Karlijn Ami Toorop, Raechel J. van de Wetering, Jacqueline Ijzermans, Jan N. M. Dor, Frank J. M. F. J Clin Med Article Background: Informed consent for living kidney donation is paramount, as donors are healthy individuals undergoing surgery for the benefit of others. The informed consent process for living kidney donors is heterogenous, and the question concerns how well they are actually informed. Knowledge assessments, before and after donor education, can form the basis for a standardized informed consent procedure for live kidney donation. Methods: In this prospective, a multicenter national cohort study conducted in all eight kidney transplant centers in The Netherlands, we assessed the current status of the informed consent practice for live donor nephrectomy. All of the potential living kidney donors in the participating centers were invited to participate. They completed a pop quiz during their first outpatient appointment (Cohort A). Living kidney donors completed the same pop quiz upon admission for donor nephrectomy (Cohort B). Results: In total, 656 pop quizzes were completed (417 in Cohort A, and 239 in Cohort B). The average donor knowledge score was 7.0/25.0 (±3.9, range 0–18) in Cohort A, and 10.5/25.0 (±2.8, range 0–17.5) in Cohort B. Cohort B scored significantly higher on overall knowledge, preparedness, and the individual item scores (p < 0.0001), except for the long-term complications (p = 0.91). Conclusions: Donor knowledge generally improves during the live donor workup, but it is still quite disappointing. Long-term complications, especially, deserve more attention during living kidney donor education. MDPI 2022-01-28 /pmc/articles/PMC8837079/ /pubmed/35160147 http://dx.doi.org/10.3390/jcm11030698 Text en © 2022 by the authors. https://creativecommons.org/licenses/by/4.0/Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Spoon, Emerentia Q. W. Kortram, Kirsten Ismail, Sohal Y. Nieboer, Daan d’Ancona, Frank C. H. Christiaans, Maarten H. L. Dam, Ruth E. Hofker, Hendrik Sijbrand Hoksbergen, Arjan W. J. van der Pant, Karlijn Ami Toorop, Raechel J. van de Wetering, Jacqueline Ijzermans, Jan N. M. Dor, Frank J. M. F. Living Kidney Donor Knowledge of Provided Information and Informed Consent: The PRINCE Study † |
title | Living Kidney Donor Knowledge of Provided Information and Informed Consent: The PRINCE Study † |
title_full | Living Kidney Donor Knowledge of Provided Information and Informed Consent: The PRINCE Study † |
title_fullStr | Living Kidney Donor Knowledge of Provided Information and Informed Consent: The PRINCE Study † |
title_full_unstemmed | Living Kidney Donor Knowledge of Provided Information and Informed Consent: The PRINCE Study † |
title_short | Living Kidney Donor Knowledge of Provided Information and Informed Consent: The PRINCE Study † |
title_sort | living kidney donor knowledge of provided information and informed consent: the prince study † |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837079/ https://www.ncbi.nlm.nih.gov/pubmed/35160147 http://dx.doi.org/10.3390/jcm11030698 |
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