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Towards a feminist philosophy of engagements in health-related research

Engagement with publics, patients, and stakeholders is an important part of the health research environment today,and different modalities of ‘engaged’ health research have proliferated in recent years. Yet, th ere is no consensus on what, exactly, ‘engaging’ means, what it should look like, and wha...

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Autores principales: Erikainen, Sonja, Stewart, Ellen, Filipe, Angela Marques, Chan, Sarah, Cunningham-Burley, Sarah, Ilson, Sophie, King, Gabrielle, Porteous, Carol, Sinclair, Stephanie, Webb, Jamie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: F1000 Research Limited 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837807/
https://www.ncbi.nlm.nih.gov/pubmed/35211657
http://dx.doi.org/10.12688/wellcomeopenres.16535.2
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author Erikainen, Sonja
Stewart, Ellen
Filipe, Angela Marques
Chan, Sarah
Cunningham-Burley, Sarah
Ilson, Sophie
King, Gabrielle
Porteous, Carol
Sinclair, Stephanie
Webb, Jamie
author_facet Erikainen, Sonja
Stewart, Ellen
Filipe, Angela Marques
Chan, Sarah
Cunningham-Burley, Sarah
Ilson, Sophie
King, Gabrielle
Porteous, Carol
Sinclair, Stephanie
Webb, Jamie
author_sort Erikainen, Sonja
collection PubMed
description Engagement with publics, patients, and stakeholders is an important part of the health research environment today,and different modalities of ‘engaged’ health research have proliferated in recent years. Yet, th ere is no consensus on what, exactly, ‘engaging’ means, what it should look like, and what the aims, justifications, or motivations for it should be. In this paper, we set out what we see as important, outstanding challenges around the practice and theory of engaging and consider the tensions and possibilities that the diverse landscape of engaging evokes. We examine the roots, present modalities and institutional frameworks that have been erected around engaging, including how they shape and delimit how engagements are framed, enacted, and justified. We inspect the related issue of knowledge production within and through engagements, addressing whether engagements can, or should, be framed as knowledge producing activities. We then unpack the question of how engagements are or could be valued and evaluated, emphasising the plural ways in which ‘value’ can be conceptualised and generated. We conclude by calling for a philosophy of engagements that can capture the diversity of related practices, concepts and justifications around engagements, and account for the plurality of knowledges and value that engagements engender, while remaining flexible and attentive to the structural conditions under which engagements occur. Such philosophy should be a feminist one, informed by feminist epistemological and methodological approaches to equitable modes of research participation, knowledge production, and valuing. Especially, translating feminist tools of reflexivity and positionalityinto the sphere of engagements can enable a synergy of empirical, epistemic and normative considerations in developing accounts of engaging in both theory and praxis. Modestly, here, we hope to carve out the starting points for this work.
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spelling pubmed-88378072022-02-23 Towards a feminist philosophy of engagements in health-related research Erikainen, Sonja Stewart, Ellen Filipe, Angela Marques Chan, Sarah Cunningham-Burley, Sarah Ilson, Sophie King, Gabrielle Porteous, Carol Sinclair, Stephanie Webb, Jamie Wellcome Open Res Open Letter Engagement with publics, patients, and stakeholders is an important part of the health research environment today,and different modalities of ‘engaged’ health research have proliferated in recent years. Yet, th ere is no consensus on what, exactly, ‘engaging’ means, what it should look like, and what the aims, justifications, or motivations for it should be. In this paper, we set out what we see as important, outstanding challenges around the practice and theory of engaging and consider the tensions and possibilities that the diverse landscape of engaging evokes. We examine the roots, present modalities and institutional frameworks that have been erected around engaging, including how they shape and delimit how engagements are framed, enacted, and justified. We inspect the related issue of knowledge production within and through engagements, addressing whether engagements can, or should, be framed as knowledge producing activities. We then unpack the question of how engagements are or could be valued and evaluated, emphasising the plural ways in which ‘value’ can be conceptualised and generated. We conclude by calling for a philosophy of engagements that can capture the diversity of related practices, concepts and justifications around engagements, and account for the plurality of knowledges and value that engagements engender, while remaining flexible and attentive to the structural conditions under which engagements occur. Such philosophy should be a feminist one, informed by feminist epistemological and methodological approaches to equitable modes of research participation, knowledge production, and valuing. Especially, translating feminist tools of reflexivity and positionalityinto the sphere of engagements can enable a synergy of empirical, epistemic and normative considerations in developing accounts of engaging in both theory and praxis. Modestly, here, we hope to carve out the starting points for this work. F1000 Research Limited 2022-02-10 /pmc/articles/PMC8837807/ /pubmed/35211657 http://dx.doi.org/10.12688/wellcomeopenres.16535.2 Text en Copyright: © 2022 Erikainen S et al. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Open Letter
Erikainen, Sonja
Stewart, Ellen
Filipe, Angela Marques
Chan, Sarah
Cunningham-Burley, Sarah
Ilson, Sophie
King, Gabrielle
Porteous, Carol
Sinclair, Stephanie
Webb, Jamie
Towards a feminist philosophy of engagements in health-related research
title Towards a feminist philosophy of engagements in health-related research
title_full Towards a feminist philosophy of engagements in health-related research
title_fullStr Towards a feminist philosophy of engagements in health-related research
title_full_unstemmed Towards a feminist philosophy of engagements in health-related research
title_short Towards a feminist philosophy of engagements in health-related research
title_sort towards a feminist philosophy of engagements in health-related research
topic Open Letter
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837807/
https://www.ncbi.nlm.nih.gov/pubmed/35211657
http://dx.doi.org/10.12688/wellcomeopenres.16535.2
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