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Perceptions of Digital Technology Experiences and Development Among Family Caregivers and Technology Researchers: Qualitative Study

BACKGROUND: Caregiving is highly stressful and is associated with poor mental and physical health. Various technologies, including mobile and eHealth apps, have been developed to address caregiver needs. However, there is still a paucity of research examining the technology perceptions of informal c...

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Autores principales: Xiong, Chen, D'Souza, Andrea, El-Khechen-Richandi, Graziella, Mihailidis, Alex, Cameron, Jill I, Astell, Arlene, Nalder, Emily, Colantonio, Angela
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8838597/
https://www.ncbi.nlm.nih.gov/pubmed/35089150
http://dx.doi.org/10.2196/19967
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author Xiong, Chen
D'Souza, Andrea
El-Khechen-Richandi, Graziella
Mihailidis, Alex
Cameron, Jill I
Astell, Arlene
Nalder, Emily
Colantonio, Angela
author_facet Xiong, Chen
D'Souza, Andrea
El-Khechen-Richandi, Graziella
Mihailidis, Alex
Cameron, Jill I
Astell, Arlene
Nalder, Emily
Colantonio, Angela
author_sort Xiong, Chen
collection PubMed
description BACKGROUND: Caregiving is highly stressful and is associated with poor mental and physical health. Various technologies, including mobile and eHealth apps, have been developed to address caregiver needs. However, there is still a paucity of research examining the technology perceptions of informal caregivers, especially from the perspectives of sex, gender, and diversity. OBJECTIVE: To address the research gap and inform the development of future caregiving technologies, this study aims to examine how family caregivers perceive using technology to assist with their caregiving routines; identify the sex, gender, and diversity factors that shape these perceptions; and understand how these perceptions and needs are reflected within the current technology development process. METHODS: Semistructured interviews were conducted with 16 informal caregivers of individuals with a range of chronic medical conditions and 8 technology researchers involved in caregiving technology projects. RESULTS: Three main themes with subthemes were developed. The first main theme is that caregivers see a need for technology in their lives, and it comprises the following 3 subthemes: caregiving is a challenging endeavor, technology is multifaceted, and caregiver preferences facilitate technology use. The second main theme is that relationships play a vital role in mediating technology uptake, and it comprises the following 2 subthemes: the caregiver-care recipient dynamic shapes technology perceptions and caregivers rely on external sources for technology information. Finally, the third main theme is that barriers are present in the use and adoption of technology, and it comprises the following 2 subthemes: technology may not be compatible with personal values and abilities and technology that is not tailored toward caregivers lacks adoption. CONCLUSIONS: The findings highlight the multifaceted role that technology can play in aiding caregiving while drawing attention to the perceived drawbacks of these technologies among caregivers. The inclusion of technology researchers in this study provides a more holistic understanding of technologies in caregiving from their initial development to their eventual uptake by caregivers.
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spelling pubmed-88385972022-03-07 Perceptions of Digital Technology Experiences and Development Among Family Caregivers and Technology Researchers: Qualitative Study Xiong, Chen D'Souza, Andrea El-Khechen-Richandi, Graziella Mihailidis, Alex Cameron, Jill I Astell, Arlene Nalder, Emily Colantonio, Angela JMIR Form Res Original Paper BACKGROUND: Caregiving is highly stressful and is associated with poor mental and physical health. Various technologies, including mobile and eHealth apps, have been developed to address caregiver needs. However, there is still a paucity of research examining the technology perceptions of informal caregivers, especially from the perspectives of sex, gender, and diversity. OBJECTIVE: To address the research gap and inform the development of future caregiving technologies, this study aims to examine how family caregivers perceive using technology to assist with their caregiving routines; identify the sex, gender, and diversity factors that shape these perceptions; and understand how these perceptions and needs are reflected within the current technology development process. METHODS: Semistructured interviews were conducted with 16 informal caregivers of individuals with a range of chronic medical conditions and 8 technology researchers involved in caregiving technology projects. RESULTS: Three main themes with subthemes were developed. The first main theme is that caregivers see a need for technology in their lives, and it comprises the following 3 subthemes: caregiving is a challenging endeavor, technology is multifaceted, and caregiver preferences facilitate technology use. The second main theme is that relationships play a vital role in mediating technology uptake, and it comprises the following 2 subthemes: the caregiver-care recipient dynamic shapes technology perceptions and caregivers rely on external sources for technology information. Finally, the third main theme is that barriers are present in the use and adoption of technology, and it comprises the following 2 subthemes: technology may not be compatible with personal values and abilities and technology that is not tailored toward caregivers lacks adoption. CONCLUSIONS: The findings highlight the multifaceted role that technology can play in aiding caregiving while drawing attention to the perceived drawbacks of these technologies among caregivers. The inclusion of technology researchers in this study provides a more holistic understanding of technologies in caregiving from their initial development to their eventual uptake by caregivers. JMIR Publications 2022-01-28 /pmc/articles/PMC8838597/ /pubmed/35089150 http://dx.doi.org/10.2196/19967 Text en ©Chen Xiong, Andrea D'Souza, Graziella El-Khechen-Richandi, Alex Mihailidis, Jill I Cameron, Arlene Astell, Emily Nalder, Angela Colantonio. Originally published in JMIR Formative Research (https://formative.jmir.org), 28.01.2022. https://creativecommons.org/licenses/by/4.0/This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on https://formative.jmir.org, as well as this copyright and license information must be included.
spellingShingle Original Paper
Xiong, Chen
D'Souza, Andrea
El-Khechen-Richandi, Graziella
Mihailidis, Alex
Cameron, Jill I
Astell, Arlene
Nalder, Emily
Colantonio, Angela
Perceptions of Digital Technology Experiences and Development Among Family Caregivers and Technology Researchers: Qualitative Study
title Perceptions of Digital Technology Experiences and Development Among Family Caregivers and Technology Researchers: Qualitative Study
title_full Perceptions of Digital Technology Experiences and Development Among Family Caregivers and Technology Researchers: Qualitative Study
title_fullStr Perceptions of Digital Technology Experiences and Development Among Family Caregivers and Technology Researchers: Qualitative Study
title_full_unstemmed Perceptions of Digital Technology Experiences and Development Among Family Caregivers and Technology Researchers: Qualitative Study
title_short Perceptions of Digital Technology Experiences and Development Among Family Caregivers and Technology Researchers: Qualitative Study
title_sort perceptions of digital technology experiences and development among family caregivers and technology researchers: qualitative study
topic Original Paper
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8838597/
https://www.ncbi.nlm.nih.gov/pubmed/35089150
http://dx.doi.org/10.2196/19967
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