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Locked out during COVID-19 lockdown—an online survey of relatives of people with psychotic and bipolar disorders in Norway

BACKGROUND: Many relatives of people with psychotic and bipolar disorders experience a high caregiver burden normally. During the first COVID-19 lockdown, mental health services partly shut down in many countries. The impact on relatives is unknown. AIMS: Explore how relatives of people with psychot...

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Autores principales: Aminoff, Sofie R., Mork, Erlend, Barrett, Elizabeth Ann, Simonsen, Carmen, ten Velden Hegelstad, Wenche, Lagerberg, Trine Vik, Melle, Ingrid, Romm, Kristin Lie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2022
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8841121/
https://www.ncbi.nlm.nih.gov/pubmed/35151293
http://dx.doi.org/10.1186/s12889-022-12625-y
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author Aminoff, Sofie R.
Mork, Erlend
Barrett, Elizabeth Ann
Simonsen, Carmen
ten Velden Hegelstad, Wenche
Lagerberg, Trine Vik
Melle, Ingrid
Romm, Kristin Lie
author_facet Aminoff, Sofie R.
Mork, Erlend
Barrett, Elizabeth Ann
Simonsen, Carmen
ten Velden Hegelstad, Wenche
Lagerberg, Trine Vik
Melle, Ingrid
Romm, Kristin Lie
author_sort Aminoff, Sofie R.
collection PubMed
description BACKGROUND: Many relatives of people with psychotic and bipolar disorders experience a high caregiver burden normally. During the first COVID-19 lockdown, mental health services partly shut down in many countries. The impact on relatives is unknown. AIMS: Explore how relatives of people with psychotic and bipolar disorders experienced changes in treatment and service availability for their family member during the first COVID-19 pandemic lockdown in the spring of 2020, and to what extent they perceived information and support to be satisfactory. To help guide future contingency plans, we were also interested in what relatives would prioritize in the event of a future crisis. STUDY SETTING: We distributed an anonymous Norwegian online survey inviting relatives of individuals with psychotic and bipolar disorders. We distributed the survey using social media, through snowball sampling, collecting both quantitative and qualitative data. The survey was available between May and June 2020. We used systematic text condensation to analyse qualitative data. RESULTS: Two hundred and seventy-nine respondents replied, mostly mothers and partners. A majority experienced a reduction in health care for their family member. Most respondents did not receive any support during the lockdown. However, most found the information they received from the mental health services regarding their family members’ treatment as sufficient. The qualitative data analysis revealed that relatives experienced three major challenges: reductions in treatment for the family member; reduced organised daily activity for the family member; and an increased caretaker load. In the case of a future lockdown, they would prefer increased access to care compared with a normal situation; increased support for relatives; and enhanced information. CONCLUSIONS: Mental health services in Norway did not manage to meet the needs of patients with severe mental illness and their relatives during the first COVID-19 lockdown. To be better prepared, Norwegian mental health services should consider prioritising infrastructure to ensure access to care and support for both patients and relatives. Digital tools and telephone calls are generally well accepted as substitutes for face-to-face contact. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12889-022-12625-y.
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spelling pubmed-88411212022-02-16 Locked out during COVID-19 lockdown—an online survey of relatives of people with psychotic and bipolar disorders in Norway Aminoff, Sofie R. Mork, Erlend Barrett, Elizabeth Ann Simonsen, Carmen ten Velden Hegelstad, Wenche Lagerberg, Trine Vik Melle, Ingrid Romm, Kristin Lie BMC Public Health Research BACKGROUND: Many relatives of people with psychotic and bipolar disorders experience a high caregiver burden normally. During the first COVID-19 lockdown, mental health services partly shut down in many countries. The impact on relatives is unknown. AIMS: Explore how relatives of people with psychotic and bipolar disorders experienced changes in treatment and service availability for their family member during the first COVID-19 pandemic lockdown in the spring of 2020, and to what extent they perceived information and support to be satisfactory. To help guide future contingency plans, we were also interested in what relatives would prioritize in the event of a future crisis. STUDY SETTING: We distributed an anonymous Norwegian online survey inviting relatives of individuals with psychotic and bipolar disorders. We distributed the survey using social media, through snowball sampling, collecting both quantitative and qualitative data. The survey was available between May and June 2020. We used systematic text condensation to analyse qualitative data. RESULTS: Two hundred and seventy-nine respondents replied, mostly mothers and partners. A majority experienced a reduction in health care for their family member. Most respondents did not receive any support during the lockdown. However, most found the information they received from the mental health services regarding their family members’ treatment as sufficient. The qualitative data analysis revealed that relatives experienced three major challenges: reductions in treatment for the family member; reduced organised daily activity for the family member; and an increased caretaker load. In the case of a future lockdown, they would prefer increased access to care compared with a normal situation; increased support for relatives; and enhanced information. CONCLUSIONS: Mental health services in Norway did not manage to meet the needs of patients with severe mental illness and their relatives during the first COVID-19 lockdown. To be better prepared, Norwegian mental health services should consider prioritising infrastructure to ensure access to care and support for both patients and relatives. Digital tools and telephone calls are generally well accepted as substitutes for face-to-face contact. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12889-022-12625-y. BioMed Central 2022-02-13 /pmc/articles/PMC8841121/ /pubmed/35151293 http://dx.doi.org/10.1186/s12889-022-12625-y Text en © The Author(s) 2022 https://creativecommons.org/licenses/by/4.0/Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) . The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/ (https://creativecommons.org/publicdomain/zero/1.0/) ) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research
Aminoff, Sofie R.
Mork, Erlend
Barrett, Elizabeth Ann
Simonsen, Carmen
ten Velden Hegelstad, Wenche
Lagerberg, Trine Vik
Melle, Ingrid
Romm, Kristin Lie
Locked out during COVID-19 lockdown—an online survey of relatives of people with psychotic and bipolar disorders in Norway
title Locked out during COVID-19 lockdown—an online survey of relatives of people with psychotic and bipolar disorders in Norway
title_full Locked out during COVID-19 lockdown—an online survey of relatives of people with psychotic and bipolar disorders in Norway
title_fullStr Locked out during COVID-19 lockdown—an online survey of relatives of people with psychotic and bipolar disorders in Norway
title_full_unstemmed Locked out during COVID-19 lockdown—an online survey of relatives of people with psychotic and bipolar disorders in Norway
title_short Locked out during COVID-19 lockdown—an online survey of relatives of people with psychotic and bipolar disorders in Norway
title_sort locked out during covid-19 lockdown—an online survey of relatives of people with psychotic and bipolar disorders in norway
topic Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8841121/
https://www.ncbi.nlm.nih.gov/pubmed/35151293
http://dx.doi.org/10.1186/s12889-022-12625-y
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