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Personal digital health in Parkinson's disease: Case histories and commentary

The use of self-tracking of bio-behavioral states along with prescription dosing information is increasingly popular in the care and study of many human diseases. Parkinson’s Disease is particularly amenable to such tracking, as patients live with the progressive disease for many years, increasing m...

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Autores principales: Boving, Aidan T, Shuster, Coral L, Walls, Theodore A, Brothers, Todd
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8842464/
https://www.ncbi.nlm.nih.gov/pubmed/35173980
http://dx.doi.org/10.1177/20552076211061925
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author Boving, Aidan T
Shuster, Coral L
Walls, Theodore A
Brothers, Todd
author_facet Boving, Aidan T
Shuster, Coral L
Walls, Theodore A
Brothers, Todd
author_sort Boving, Aidan T
collection PubMed
description The use of self-tracking of bio-behavioral states along with prescription dosing information is increasingly popular in the care and study of many human diseases. Parkinson’s Disease is particularly amenable to such tracking, as patients live with the progressive disease for many years, increasing motivation to pursue quality of life changes through careful monitoring of symptoms and self-guided management of their medications and lifestyle choices. Through the use of digital self-tracking technologies, patients independently or in conjunction with professional medical advice are modulating their medications and behavioral regimens based on self-tracking data. Self-trackers engage in self-experimentation with their health, and more broadly, in personal digital health. This paper briefly depicts notable, recent patient accounts of self-tracking and the uses of digital health in Parkinson’s disease: those of Sara Riggare and Kevin Krejci. It also highlights important facets of a previously unreported case: Velva Walden’s care as managed jointly by her caregiver son. Key aspects of self-tracking inherent to these cases are examined and potential opportunities to advance personalized medicine through the use of digital health and self-experimentation are outlined.
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spelling pubmed-88424642022-02-15 Personal digital health in Parkinson's disease: Case histories and commentary Boving, Aidan T Shuster, Coral L Walls, Theodore A Brothers, Todd Digit Health Review Article The use of self-tracking of bio-behavioral states along with prescription dosing information is increasingly popular in the care and study of many human diseases. Parkinson’s Disease is particularly amenable to such tracking, as patients live with the progressive disease for many years, increasing motivation to pursue quality of life changes through careful monitoring of symptoms and self-guided management of their medications and lifestyle choices. Through the use of digital self-tracking technologies, patients independently or in conjunction with professional medical advice are modulating their medications and behavioral regimens based on self-tracking data. Self-trackers engage in self-experimentation with their health, and more broadly, in personal digital health. This paper briefly depicts notable, recent patient accounts of self-tracking and the uses of digital health in Parkinson’s disease: those of Sara Riggare and Kevin Krejci. It also highlights important facets of a previously unreported case: Velva Walden’s care as managed jointly by her caregiver son. Key aspects of self-tracking inherent to these cases are examined and potential opportunities to advance personalized medicine through the use of digital health and self-experimentation are outlined. SAGE Publications 2021-12-09 /pmc/articles/PMC8842464/ /pubmed/35173980 http://dx.doi.org/10.1177/20552076211061925 Text en © The Author(s) 2021 https://creativecommons.org/licenses/by-nc/4.0/This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Review Article
Boving, Aidan T
Shuster, Coral L
Walls, Theodore A
Brothers, Todd
Personal digital health in Parkinson's disease: Case histories and commentary
title Personal digital health in Parkinson's disease: Case histories and commentary
title_full Personal digital health in Parkinson's disease: Case histories and commentary
title_fullStr Personal digital health in Parkinson's disease: Case histories and commentary
title_full_unstemmed Personal digital health in Parkinson's disease: Case histories and commentary
title_short Personal digital health in Parkinson's disease: Case histories and commentary
title_sort personal digital health in parkinson's disease: case histories and commentary
topic Review Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8842464/
https://www.ncbi.nlm.nih.gov/pubmed/35173980
http://dx.doi.org/10.1177/20552076211061925
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